Babies



I'm so glad you made it here! This is a great time to have a healthy, happy baby with T21. Your baby's future has never looked better (and is looking better every day). I would love to tell you that you can find a physician who will know exactly what to do to best care for your baby. Unfortunately, that is not the case. Although your physician may not yet know the best way to treat many aspects of your baby's development, which I understand is a scary thought, rest assured that I will share with you what is working for my son, Jett. And I will help you get in touch with experienced moms, clue you in to great resources and keep you abreast of the most recent research and brainstorming about Down syndrome. You are not alone. You have all the resources you need to be a successful parent. You will be empowered to give your baby the best possible future with the best possible treatment. Your baby's future is in good hands -- yours!

I know it takes a while to come to terms with your emotions. It's okay to cry, to be angry, to blame yourself and others. Please accept all of these feelings as a normal, healthy reaction to disturbing news. This is an uncertain time for you, full of the unknown. Allow yourself to grieve and vent and ride out the emotional roller coaster. Talk to friends and family (but keep in mind they understandably have the old stereotype in their mind). Write in a journal. You don't have to share it, you don't have to read it ever again. In fact, you can even rip out the pages and throw them away. But, do acknowledge your feelings and express them so that you can move forward.

It's natural to feel overwhelmed.... There's a lot of information here. You can't learn all of this in one day (or month or year...)! I'm hoping to save parents the time and anguish of sorting through all the information that's out there on T21. I want to allow you to spend quality time enjoying and nurturing your child rather than spending the time that I already have going through piles of research. I am open minded and update blog posts according to my latest findings, but I do have specific beliefs about what works best and what doesn't and I only share what I either endorse or am still open to and researching. Feel free to share your experiences, questions and solutions you may have privately (click my profile for my email address) or as a comment for all to see.

You have some time! Please do not feel that you have to give your sweet little one with his/her delicate tummy lots of vitamins and supplements right away! My Jett couldn't tolerate anything other than breast milk for the first four months and he's turning out very well. Some babies can take a vitamin from day one and some babies can't tolerate anything until 6 months old. All is not lost! It's most important that you attend to his/her basic baby needs (see Feeding & Early Care) plus extra stimulation (see Early Therapy). Your love and attention is what he needs most during these precious first years!

Keep up-to-date by subscribing in a reader to this blog or sign up to get each new post automatically sent to you by entering your email address in the "Follow by Email" box on the right of your screen. I'd love to know that you are actively reading by adding yourself as a "follower." It's a small way to let me know you are listening! You can friend me on Facebook as well.

Also read New? Start Here to learn more about my philosophy and for updates on Jett's wonderful progress.

Where to Start

Books, websites, blogs, DVDs and forums that I recommend.
Lab Tests: Which to Request, What they Mean and How to Get a Good Blood Draw
Making a toxic free environment will give your baby the best possible start.


Breastfeeding Mom's Nutritional Support
 
Extra supplementation during pregnancy.
Which Multivitamin? Explores multivitamins specifically for babies with T21 and or nursing Moms
Feeding & Early Care

Moms, caring for your sweet one will be your number one priority. These posts will help address some common questions and concerns.
Why a Sippy Cup isn't recommended a blog post from speech learning pathologist, Sara Rosenfeld Johnson 
Keeping Nasal Passages Clear & Mouths Closed
This is an important issue for our babies with DS. You need to be aware of how immunizations can directly and permanently effect your baby.
Please take the time to see this easy to understand video on Vaccines and Down Syndrome.

Nutritional Supplementation (Targeted Nutritional Intervention)


Early Therapy
 
You want to start at-home therapy as soon as possible instead of/in addition to outside therapy. It's an easy fun way to bond with your baby while providing much needed stimulation. The work you do now will prevent many problems from ever arising in the future.
Oral Motor Therapy from the Bits of Real Life Blog 

Early Educational Support  
 
The more you do now, that more time your baby has to learn and develop his mind.
 

Treatment for Brain Health

We all want a cure for DS. These posts explain the latest treatment plans/biomedical intervention (usually don't start until 3-6 months of age depending on your baby's digestion). I have many posts exploring brain support, but as a new parent, it's best to stick with researching proven treatments that offer a lot of guidance. Our children may all share an extra chromosome, but since every child is different; it's important to follow your child's cues & clues.

Overview


Details

 
This post will lead you to a whole mind set in caring for your child.
Success Stories

Wondering how well treated kids are doing? Take a look for yourself.

Forum

Here's a forum for babies with DS whose parents believe in their Unlimited Potential. I'm there a lot.

Spiritual Guidance

From the Christian perspective, The Purpose Driven Life by Rick Warren has a chapter called, "You are Not a Mistake" that is available for free.
Here is a list of interesting articles and inspirational essays and poems compiled by Ria and Bill on their blog:
The Special Mother by Erma Bombeck
Thoughts of a Mom by Maureen K. Higgins
Welcome To Holland by Emily Perl Kingsley

Buying Guides

Handwriting Resources
Non-toxic Diapering Supplies
Review of BrillKids Little Reader  
BrillKids discounts for Special Needs Families



All Posts Regarding Infants & Babies
The Importance of Magnesium
Teaching the Alphabet

Gift Ideas for Babies & Toddlers
Little Reader Chinese Review
DS Track at AutismOne Conference in 2012
Hyperbaric Oxygen Therapy
Teaching the Alphabet
How to Find A Quality Physician
Sharing Inspiration
Handwriting Resources
Alphabet Tactile Quilt
The Importance of Magnesium
Glutathione
Glyconutrients
Piracetam
Link Between Sleep Deprivation & Alzheimer's Risk
Achieving Iron Balance with Diet
Why supplement and monitor zinc?
Neurofeedback
Lydia Does Math
The First 2,000 Days are Critical
Constipation: Causes and Cures
Methylation Pathways
Whole Grains Reduce Mineral Absorption
Feed Memory by Kan Herbs
Lydia's Success Story
Meet Lydia
Foods that Fight Alzheimer's Disease
Review of BrillKids Little Reader
Why B12 & Folinic Acid for Down syndrome?
Reflux in Down syndrome
Reflux: Treating the Problem Not the Symptoms
Signs of Nutritional Deficiency
Survey Results: Are Unvaccinated Children Healthier
Probiotic/Yogurt Strains: Benefits and Uses
First Shoes: What's Best?
Vitamin C Plays Important Role in Brain Function
Keeping Nasal Passages Clear & Mouths Closed
My TV/Video Strategy
Cinnamon can prevent and cure Alzheimer's
Jett "Reading" at 16 Months
Prozac & Vision Problems in DS
Cure Tooth Decay & Gum Disease Naturally
Pulmonary Hypertension: Causes, Symptoms, Diagnosis
Hashimoto's Encephalopathy Mimics Alzheimer's Disease
Get Your Own Neurodevelopmentalist
Readeez Sale!
Noggin and BDNF Promotes Neurogenesis
Natural Ways to Help with ADD & Hyperactivity
Vaccine Information Coalition
Parent's Resources for Guidance on Down Syndrome
Six Foods that are Surprisingly High in Toxins
Cerebral folate deficiency in Down syndrome