tag:blogger.com,1999:blog-19895454459196286762024-03-05T17:14:27.926-05:00Down Syndrome: A Day to Day GuidePlease enjoy this collection of notes, research and personal experience to help you best care for your loved one who has a little "extra"! Andi Durkinhttp://www.blogger.com/profile/03651762223667606607noreply@blogger.comBlogger214125tag:blogger.com,1999:blog-1989545445919628676.post-81977205612109629902023-01-06T10:52:00.001-05:002023-01-18T18:08:39.824-05:00<p> </p><p> <br /></p><p> </p><div class="separator" style="clear: both; text-align: center;"><a href="https://events.com/r/en_US/registration/down-syndrome-innovations-conference-columbia-february-876004" style="margin-left: 1em; margin-right: 1em;" target="_blank"><img border="0" data-original-height="300" data-original-width="930" height="206" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgpwfwtDNTWpDF58_zzoMHIGY6v3WlHCEdy72lCR54vybO5wqxujfv27C8KJbhUGPAbFG_7WXrZn0Vm9MY0a-QlW4nNs7AuOPD8a88_ZbtYTEeWEd9jhiVoXRpeqoMuwBfW__q1jZ-xEocOiR1YgsYXoAg5gFnbnwwVm_SuPekHHta-lpxe16k_kucX/w640-h206/Dsiconbanner1.png" width="640" /></a></div><br /><p></p><h2 style="text-align: center;">Registration is open for the </h2><h2 style="text-align: center;">2023 <a href="https://events.com/r/en_US/registration/down-syndrome-innovations-conference-columbia-february-876004" target="_blank">Down Syndrome Innovations Conference</a>!</h2><h2 style="text-align: center;">February 24-25</h2><h2 style="text-align: center;">Live Stream is available. <br /></h2><h2 style="text-align: center;">This is the perfect venue to learn alternative strategies to support the progress of people with DS. <span class="x193iq5w xeuugli x13faqbe x1vvkbs xlh3980 xvmahel x1n0sxbx x1lliihq x1s928wv xhkezso x1gmr53x x1cpjm7i x1fgarty x1943h6x xudqn12 x3x7a5m x6prxxf xvq8zen xo1l8bm xzsf02u x1yc453h" dir="auto"><div class="x11i5rnm xat24cr x1mh8g0r x1vvkbs xtlvy1s x126k92a"><div dir="auto" style="text-align: start;"> </div><div dir="auto" style="text-align: start;">The speakers are hand-picked by parents like me who have seen results.</div></div></span></h2><p></p><p><br /></p>Andi Durkinhttp://www.blogger.com/profile/03651762223667606607noreply@blogger.com0tag:blogger.com,1999:blog-1989545445919628676.post-47997875623059346582017-09-21T17:23:00.000-04:002017-09-21T17:23:32.039-04:002017 Down Syndrome Innovations Speakers and Topics<br />
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<span style="font-weight: bold;">September 28....</span> Early Bird Registration Ends</div>
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<span style="font-weight: bold;">October 4</span>..... Meet & Greet Registration Ends</div>
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<span style="font-weight: bold;">October 6</span>.... Hotel Registration Discount Ends</div>
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<span style="font-size: 16px;">Mitochondrial Dysfunction and Inflammation/ </span></div>
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<span style="font-size: 16px;">Neuroinflammation in T21 and What to do About It</span></div>
<div align="center" style="text-align: center;">
<span style="font-weight: bold;">Norman Schwartz, MD</span><span style="color: #545454;"> </span></div>
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<span style="font-size: 16px;">....</span></div>
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<br /></div>
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<span style="font-size: 16px;">My Life</span></div>
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<span style="font-weight: bold;">Lydia Winans, student and self-advocate</span></div>
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....</div>
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<span style="font-size: 16px;">Risk Reduction for Leukemia in those with Down Syndrome</span></div>
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<span style="font-weight: bold;">Laurette Janak</span></div>
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<span style="font-weight: bold;">....</span></div>
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<br /></div>
<div align="center" style="text-align: center;">
<span style="font-size: 16px;">Brilliant Learning Tips for Students with T21</span></div>
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<span style="font-weight: bold;">JoQueta Handy, PhD, SLP-CCC</span></div>
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<span style="font-weight: bold;">....</span></div>
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<br /></div>
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<span style="font-size: 16px;">Hope Unexpectedly Awaits in Sound: Tomatis Listening Therapy</span></div>
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<span style="font-weight: bold;">Ellen Young, PhD, MA, RCTC</span></div>
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<span style="font-weight: bold;">....</span></div>
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<br /></div>
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<span style="font-size: 16px;">Application
of Near-infrared LEDs to Improve Cognition ...and Improve Language...
Can Photobiomodulation Strengthen Connections in the Default Mode
Network?</span></div>
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<span style="font-weight: bold;">Margaret A. Naeser, Ph.D</span></div>
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<span style="font-weight: bold;">....</span></div>
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<span style="font-size: 16px;">Cognitive Improvements with Alzheimer's Disease/Dementia </span></div>
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<span style="font-size: 16px;">Using Low Level Light Therapy</span></div>
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<span style="font-weight: bold;">Anita Saltmarche, PhD</span></div>
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<span style="font-weight: bold;">....</span></div>
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<span style="font-size: 16px;">Reflex Integration Using Low Level Light Therapy</span></div>
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<span style="font-weight: bold;">Bonnie Brandes, M.Ed</span></div>
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<span style="font-weight: bold;">....</span></div>
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<br /></div>
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<span style="font-size: 16px;">Neuro-developmental Therapy and SOI (Structure of Intellect) </span></div>
<div align="center" style="text-align: center;">
<span style="font-size: 16px;">Intelligence Can Be Learned</span></div>
<div align="center" style="text-align: center;">
<span style="font-weight: bold;">Linda Kane, M.CND</span></div>
<div align="center" style="text-align: center;">
<span style="font-weight: bold;">....</span></div>
<div align="center" style="text-align: center;">
<br /></div>
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<span style="font-size: 16px;">Growth Hormone Deficiency in the T21 Population</span></div>
<div align="center" style="text-align: center;">
<span style="font-weight: bold;">Richard Levy, MD</span></div>
<div align="center" style="text-align: center;">
<span style="font-weight: bold;">....</span></div>
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<div align="center" style="text-align: center;">
<span style="font-size: 16px;">The Science Behind Reducing Oxalate in those with Down Syndrome</span></div>
<div align="center" style="text-align: center;">
<span style="font-weight: bold;">Susan Costen Owens, BS, MAIS</span></div>
<div align="center" style="text-align: center;">
<span style="font-weight: bold;">....</span></div>
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<span style="font-size: 16px;">Functional Nutrition Strategies for Enhancing Digestion </span></div>
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<span style="font-size: 16px;">and Preventing Neurodegenerative Decline</span></div>
<div align="center" style="text-align: center;">
<span style="font-weight: bold;">Gail Clayton</span><span style="color: #545454; font-weight: bold;">, R.Ph, MS, CNS</span></div>
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<span style="font-weight: bold;">....</span></div>
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<span style="font-size: 16px;">The Importance of the C Cleanse and </span></div>
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<span style="font-size: 16px;">Use of Functional Predictive Biomarkers in T21</span></div>
<div align="center" style="text-align: center;">
<span style="font-weight: bold;">Russell Jaffe, MD, PhD</span></div>
<div align="center" style="text-align: center;">
<span style="font-weight: bold;">....</span></div>
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<span style="font-size: 16px;">Sleep, Circadian and Stem Cell Renewal Factors </span></div>
<div align="center" style="text-align: center;">
<span style="font-size: 16px;">in the Learning Disability seen in those with Down Syndrome</span></div>
<div align="center" style="text-align: center;">
<span style="font-weight: bold;">Craig Heller, PhD</span></div>
<div align="center" style="text-align: center;">
<span style="font-weight: bold;">....</span></div>
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<a href="http://www.downsyndromeinnovations.com/" style="color: #1a75bb; font-style: normal; font-weight: bold; text-decoration: underline;" target="_blank">Down Syndrome Innovations Conference</a> </div>
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</div>
Andi Durkinhttp://www.blogger.com/profile/03651762223667606607noreply@blogger.com1tag:blogger.com,1999:blog-1989545445919628676.post-10831080811783809152017-07-12T14:21:00.002-04:002017-07-12T14:21:45.739-04:002017 DS Innovations Conference<div style="text-align: left;">
<span style="color: #990000;"><span style="font-size: large;">Important Conference Update:</span></span></div>
<div style="text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj0s5UBelwviVwbIntcZrU26aCb37eCcJWXuAjQqqTegWV0VSOfVhAPuXMpRJimEAl3z2Nvais0Y77HOyEiiE8X9QdYfJb3KPrWlfwYhtJcDoRSfltZJHFbs5lyG2tWbemgbQ4wVUAn9Po/s1600/2017register1.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1000" data-original-width="1000" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj0s5UBelwviVwbIntcZrU26aCb37eCcJWXuAjQqqTegWV0VSOfVhAPuXMpRJimEAl3z2Nvais0Y77HOyEiiE8X9QdYfJb3KPrWlfwYhtJcDoRSfltZJHFbs5lyG2tWbemgbQ4wVUAn9Po/s640/2017register1.jpg" width="640" /></a></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<a href="http://www.downsyndromeinnovations.com/" target="_blank"><span style="font-size: large;">The 2017 Down Syndrome Innovations Conference </span></a></div>
<div style="text-align: center;">
<span style="font-size: large;">will be held in </span></div>
<div style="text-align: center;">
<span style="font-size: large;">Houston, Texas on Oct. 28-29th. </span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;"><a href="http://www.downsyndromeinnovations.com/register.html" target="_blank">Registration is open</a>!</span></div>
<div style="text-align: center;">
<span style="font-size: large;"><a href="http://www.downsyndromeinnovations.com/locale.html" target="_blank">Hotel rooms are up for grabs</a>!</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">I can't wait to see ya'll there!</span></div>
<div style="text-align: center;">
<br /></div>
Andi Durkinhttp://www.blogger.com/profile/03651762223667606607noreply@blogger.com0tag:blogger.com,1999:blog-1989545445919628676.post-34787481676866121102017-04-08T11:40:00.003-04:002017-04-08T11:40:20.004-04:002017 Down Syndrome Innovations Conference<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiuV_Tnrbv-0nR2W7Jl1ddgyfA4ZD07k-HCrU8tRyyfeIgHc8oTxdIh7yRGBvOjf0qcpaekN3y6JgsiQ9CprK-rJo1eF53WVObriGfKMm0cRITaY7dLpvE4dsn1VjAPcpqUuaAStW-6vNw/s1600/yellowpostit17.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiuV_Tnrbv-0nR2W7Jl1ddgyfA4ZD07k-HCrU8tRyyfeIgHc8oTxdIh7yRGBvOjf0qcpaekN3y6JgsiQ9CprK-rJo1eF53WVObriGfKMm0cRITaY7dLpvE4dsn1VjAPcpqUuaAStW-6vNw/s320/yellowpostit17.png" width="285" /></a></div>
<div style="text-align: center;">
For more information, check out the <a href="http://www.downsyndromeinnovations.com/" target="_blank">2017 Down Syndrome Innovations Conference</a> site!</div>
<br />Andi Durkinhttp://www.blogger.com/profile/03651762223667606607noreply@blogger.com3tag:blogger.com,1999:blog-1989545445919628676.post-58126964618782609192017-04-08T11:35:00.000-04:002017-05-18T18:28:26.267-04:00Integrating Reflexes Using Low Level Light Therapy<div style="text-align: center;">
<b>I am QRI certified to integrated reflexes using safe, effective Low Level Light Therapy (LLLT).</b></div>
<br />
<b> <table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh6lKpU-ZvUMN6JO114tJcx2kanieqeI90f6no8ldOTSpOF6jmPsLNdSgS99mM7SjyXAkrtdXw_GXuUA9MZLaC-jPaoNHEGGXxG42O5pIFZNDywr6aH0jDVRaLuO_uxMfMx0ikwXr4tP-I/s1600/IMG_5477.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh6lKpU-ZvUMN6JO114tJcx2kanieqeI90f6no8ldOTSpOF6jmPsLNdSgS99mM7SjyXAkrtdXw_GXuUA9MZLaC-jPaoNHEGGXxG42O5pIFZNDywr6aH0jDVRaLuO_uxMfMx0ikwXr4tP-I/s320/IMG_5477.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Jett relaxing during a QRI laser session.</td></tr>
</tbody></table>
</b><br />
<b><a href="https://calendly.com/andidurkin" target="_blank">Book an LLLT Session</a> </b><br />
<br />
Integrating
reflexes improves speech, fine and gross motor movement, behavior,
cognition and mood. Using QRI Low Level Light Therapy (LLLT) allows the
reflexes to be integrated faster and to remain in place longer. Reflex
integration (RI) helps other therapies to work better. It's best to do
RI before other therapies like PT, OT and ST.<br />
<br />
<b>A customized hour session could include: </b><br />
<div style="margin-left: 20px;">
<br /></div>
<div style="margin-left: 20px;">
Prep Points </div>
<div style="margin-left: 20px;">
Healing Sound Frequencies</div>
<div style="margin-left: 20px;">
Reflex Integration Protocols for 18 reflexes including Moro, Fear Paralysis, STNR, ATNR and more.</div>
<div style="margin-left: 20px;">
Additional Protocols concentrating on Speech, ASD, Movement, Sensory Integration, Brain Balancing, Stimming etc.</div>
<br />
<b>Clients include those with:</b><br />
<div style="margin-left: 20px;">
<br /></div>
<div style="margin-left: 20px;">
Cerebral Palsy</div>
<div style="margin-left: 20px;">
Down Syndrome</div>
<div style="margin-left: 20px;">
Autism Spectrum Disorder</div>
<div style="margin-left: 20px;">
Learning Challenges</div>
<div style="margin-left: 20px;">
Movement Challenges</div>
<div style="margin-left: 20px;">
Speech Challenges</div>
<div style="margin-left: 20px;">
Behavior Challenges</div>
<div style="margin-left: 20px;">
PTSD</div>
<div style="margin-left: 20px;">
PANDAS/PANS<script type="text/javascript" defer="defer" src="//script.opentracker.net/?site=dsdaytoday.blogspot.com"></script></div>
Andi Durkinhttp://www.blogger.com/profile/03651762223667606607noreply@blogger.com2tag:blogger.com,1999:blog-1989545445919628676.post-52957883198880705052017-02-01T13:50:00.003-05:002017-05-18T18:28:44.558-04:00How to Stop Verbal Stimming<br />
<b><span style="color: #990000;"><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">What is verbal/auditory stimming and how can we stop it?</span></span></span></b><br />
<br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="color: #990000;"><b>First, What is Stimming? </b></span> </span></span><br />
<br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Stimming is short for "stimulation." According to
Neurodevelopmentalists Marilee Nicoll Coots, B.A. and Cyndi Ringoen,
B.S., B.A. in their article, "<a href="http://www.ican-do.net/sensory_play.htm">Sensory Play</a>": </span></span><br />
<div style="margin-left: 40px;">
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">...It
is repetitive, often appears compulsive and can occur using any
of the senses. Parents usually describe it as something that doesn’t
seem quite right...</span></span></div>
<div style="margin-left: 40px;">
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Sensory play is a learned behavior that an individual develops for
several reasons. Primarily, it feels good so the behavior is
repeated. </span></span></div>
<div style="margin-left: 40px;">
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">You may have heard some say that sensory play is beneficial, calming,
a communication attempt or even a type of psychological mechanism. It
is possible that on an unconscious level some children use stimming to
control their environment or to avoid the things they wish not to do.
For example, if a child stims, he may be able to avoid uncomfortable
social situations. It is important to consider that many adults engage
in various behaviors for the same reasons -- including: smoking,
drinking, taking drugs, overworking etc. Just because a behavior has a purpose
does not mean the behavior is healthy or developmentally helpful.</span></span></div>
<div style="margin-left: 40px;">
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">There
is often a metabolic component to stimming. When children are out of
balance metabolically, their stimming is increased. Appropriate metabolic
intervention can often reduce stimming and occasionally halt it.</span></span></div>
<div style="margin-left: 40px;">
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Repetitive
sensory play creates endorphins, “happy,” “feel good” chemicals in the
brain, much the same as the “runner’s high.” These chemicals become
addictive, causing the individual to repeat the activity in order to
renew the good feeling. Thus, the child becomes trapped in a compulsive
behavior. Development stops progressing, becoming more and more delayed...</span></span></div>
<div style="margin-left: 40px;">
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">We
seek to stop sensory play, not as an end in itself, but as part of an
overall treatment plan, which includes addressing the underlying
neurodevelopmental causes of the behavior...</span></span></div>
<div style="text-align: right;">
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><a href="http://www.ican-do.net/sensory_play.htm">Read the complete article.</a></span></span></div>
<br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">The
most frequent verbal stimm that I've heard is a constant
"Ehhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhh....." But that might just be
because it's hard to ignore in public. Jett's verbal stimm when he
was little was to talk non stop. At his worst, he'd repeat every single
word that he heard. Everything. Any conversation, anything on TV, etc.
It was maddening!!</span></span><br />
<br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="color: #990000;"><b>Examples of Verbal Stimming</b></span> from "<a href="http://www.ican-do.net/sensory_play.htm">Sensory Play</a>":</span></span><br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><br /></span></span>
<br />
<ul>
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">blurting out loud and/or high pitched noises</span></span></li>
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Repetition of odd noises/sounds</span></span></li>
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">talking to self-- excessive and nondirective</span></span></li>
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">echolalia of phrases, movies, songs........</span></span></li>
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">humming</span></span></li>
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">nose humming</span></span></li>
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">banging on everything</span></span></li>
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">throat sound--compulsive (<i>Andi's Note: this can also be from a mycoplasma infection. Read the book <a href="http://americaisinfected.com/">America is Infected</a>.</i>)</span></span></li>
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">pounding toys or books</span></span></li>
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">excessive giggling (<i>Andi's Note: this can also be from yeast overgrowth.</i>)</span></span></li>
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">electronic games that repeat sounds</span></span></li>
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">inappropriate giggling (often a sign that they are stimming)</span></span></li>
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">repeating a video scene over and over</span></span></li>
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">telling the same story over and over</span></span></li>
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">constantly singing</span></span></li>
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">reciting alphabet over and over</span></span></li>
</ul>
<br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="color: #990000;"><b>What Stopped Jett's Verbal Stimming? </b></span></span></span><br />
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjl_x7Ddzrb-AHr7ZRX1bo2mfdBk_b25qXQQLHoXyY4yiWpgCRggFoc504KAxsu0Fudv_UVX9YoXjpnHvckmClN-QEpZ60I4UNeduyCTYagl-OqrLd2KKaX3rxKrQzN_fxUKI20gP3HpIU/s1600/FullSizeRender%252834%2529.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjl_x7Ddzrb-AHr7ZRX1bo2mfdBk_b25qXQQLHoXyY4yiWpgCRggFoc504KAxsu0Fudv_UVX9YoXjpnHvckmClN-QEpZ60I4UNeduyCTYagl-OqrLd2KKaX3rxKrQzN_fxUKI20gP3HpIU/s320/FullSizeRender%252834%2529.jpg" width="132" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Jett quietly standing still.</td><td class="tr-caption" style="text-align: center;"><br /></td></tr>
</tbody></table>
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Bacopa
monera extract! </span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"> </span></span></span></span><br />
<br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">BME is an Ayurvedic medicinal herb traditionally used for enhancing cognitive functioning. </span></span> I discovered this cure by accident. I was trying to stop Jett from running around in circles... which led me to why
animals in cages do it... which is because of stress... which led me to
trying to regulate his stress levels... leading me to bacopa monera.
</span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span class="gmail-Apple-style-span">After
about 2 weeks upon giving Jett BME, </span></span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">not only did it stop the running in circles, but it
also stopped the verbal stimming! <i>Score!</i> </span></span><br />
<br />
<span style="font-size: small;"></span><br />
<span style="font-size: small;"></span><br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"></span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span class="gmail-Apple-style-span">Jett started it when he was a year or so old.</span></span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"> And it has never come back -- unless I run out of BME. <span class="gmail-Apple-style-span">Then it reappears about two to three days upon
stopping it. I also saw that Jett was more affectionate. </span></span></span><br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><br /></span></span>
<br />
<div>
</div>
<div>
<br />
<b><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><br /><br />Benefits of Bacopa</span></span></b></div>
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">
</span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">
</span></span><br />
<ul>
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><b>Memory Enhancer</b>. Human studies conducted on 76 adults, between the ages of 40 and 65, showed significant
improvements in memory retention of learning new information.</span></span></li>
</ul>
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">
</span></span>
<ul>
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><b>Neuro Protection</b>. Acting as a powerful neuron
antioxidant, BME was shown to provide significant protection against
free radical induced toxicity of the neurons as well as a protector of
DNA against damage. Further protection was demonstrated for aluminum
induced oxidative stress, and against excitotoxcity elicited in
epileptic rats.</span></span></li>
</ul>
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">
</span></span>
<ul>
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><b>Anti-Depressant</b>. BME was found to provide important antidepressant activity in animal studies.</span></span></li>
</ul>
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">
</span></span>
<ul>
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><b>Reduction in beta-amyloid deposits</b> in the brain (as
is characteristic of Alzheimer’s disease), in animal research. The
authors suggest that such mechanisms of action may have application in
Alzheimer’s.</span></span></li>
</ul>
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">
</span></span>
<ul>
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><b>Enhance</b> <b>learning and academic performance and improve mental alertness</b>. </span></span></li>
</ul>
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">
</span></span>
<ul>
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><b>Enhances mental focus</b> in stressful situations and improves mental clarity and mood.</span></span></li>
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><a href="http://www.wellnessresources.com/studies/bacopa_balances_neurotransmitters_and_cortisol/" target="_blank"><b>Helps regulate cortisol levels</b>.</a> </span></span></li>
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"></span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><b>Thyroid-stimulating. </b></span></span>An animal study investigating the effects of botanicals on the
thyroid found <a href="http://www.raysahelian.com/bacopa.html" target="_blank">Bacopa increased T4</a> (Thyroid Hormone) levels by 41
percent. (If you do
give this to your child, be sure to watch for signs of hyperthyroidism
although many of our children can't convert T4 to T3 anyway!) </span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><b> </b></span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"></span></span></li>
</ul>
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><a href="http://dsdaytoday.blogspot.com/2011/05/bacopa-monera-extract-bme.html" target="_blank">Check out this post for more about bacopa, including recommended brands and dosing information.</a>
</span><script type="text/javascript" defer="defer" src="//script.opentracker.net/?site=dsdaytoday.blogspot.com"></script></span>Andi Durkinhttp://www.blogger.com/profile/03651762223667606607noreply@blogger.com6tag:blogger.com,1999:blog-1989545445919628676.post-60233952256466594052016-06-15T10:35:00.002-04:002016-06-20T14:31:34.135-04:00Two Down Syndrome Conferences for the Price of One!<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="color: #a64d79;"><b><span style="font-size: large;"> </span></b></span><a href="http://www.downsyndromeinnovations.com/" target="_blank"><img alt="http://www.downsyndromeinnovations.com/" border="0" height="328" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhxc1p7b4z-k58ZqpAS79C8zoONlWm77c1kYeB5pAB38n-WDIo29S3ap_92BtpC9JpCuMh9wRJguEvI421bw02dR4mheOaum9zOwm4Cj2aysBoEz6Eyo2rSkTE4vvYgWVbyLnt9WbZcopQ/s400/freeaccess.jpg" width="400" /></a></div>
<div style="text-align: center;">
<span style="color: #073763;"><br /></span></div>
<br />
<div style="text-align: center;">
<span style="font-size: small;"><span style="color: #134f5c;"><b><span style="color: #351c75;"><a href="http://www.downsyndromeinnovations.com/" target="_blank"><span style="font-size: large;">Register here.</span></a></span> </b></span></span><br />
<br />
<span style="color: purple;"><span style="font-size: small;"><span style="color: #134f5c;"><b>Registration already includes free access to the 2016 videos, so this is a great bonus!</b></span></span></span><br />
<span style="color: purple;"><br /></span>
<span style="font-size: small;"><span style="color: #134f5c;"><span style="color: purple;">Note: Several speakers will include information about Green Tea Extract in the Down syndrome population in their presentations at the conference.</span><b> </b></span></span></div>
<b><br /></b>
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g"><b>Here are the presentations that are part of the free video access:</b></span></span></span><br />
<blockquote class="tr_bq">
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">EGCG in the Down Syndrome Population</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">John Starbuck, PhD</span></span></span> </blockquote>
<blockquote class="tr_bq">
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Thinking About Trisomy 21 – Towards a Best Practices Approach</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Norman Schwartz, MD</span></span></span><br />
<span style="color: #20124d;"><br /></span>
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Hypothyroidism and Down Syndrome</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Erica Peirson, ND</span></span></span><br />
<span style="color: #20124d;"><br /></span>
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">NeuroMovement: Turning the Child with Down Syndrome into a Potent Learner</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Anat Baniel, ABM creator</span></span></span><br />
<span style="color: #20124d;"><br /></span>
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Maternal Choline/Neurogenesis/Therapeutic Intervention for Basic Brain Cognition Support</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Barbara Strupp, PhD</span></span></span><br />
<span style="color: #20124d;"><br /></span>
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Oxidative
Stress and Epigenetic Alterations in Down Syndrome: Targeted
Nutritional Intervention Trail at Arkansas Children’s Hospital</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">S. Jill James, PhD</span></span></span><br />
<span style="color: #20124d;"><br /></span>
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Dietary Targeting of RCAN1 and Chromosome 21 Genes to Treat the Down Syndrome Population</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Dana Crawford, PhD</span></span></span><br />
<span style="color: #20124d;"><br /></span>
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Molecular
Mechanisms Engaged in Brain Prior to and Following Development of
Alzheimer’s Disease Neuropathology and Dementia in Down Syndrome</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">D. Allan Butterfield, PhD</span></span></span><br />
<span style="color: #20124d;"><br /></span>
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Mitochrondial Dysfunction and Oxidative Stress in the Down Syndrome Population</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Jorge A. Busciglio, PhD</span></span></span><br />
<span style="color: #20124d;"><br /></span>
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Treatment Strategies for Mitochondrial Dysfunction</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Richard Frye, MD PhD</span></span></span><br />
<span style="color: #20124d;"><br /></span>
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Healthy Digestion-Healthy Microbiome: What to Test, What Tests Mean and What to Do</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Russell Jaffe, MD Phd FACN</span></span></span><br />
<span style="color: #20124d;"><br /></span>
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Oral Placement Therapy Techniques for Better Speech</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Monica Purdy, MA CCC-SLP</span></span></span><br />
<span style="color: #20124d;"><br /></span>
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Optimized Nutrition is Essential for those with Trisomy 21. Where’s the Debate?</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Kent MacLeod, BSc Pharmacology</span></span></span><br />
<span style="color: #20124d;"><br /></span>
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">The Baby-Led Weaning Approach: An Excellent Option to Assist Babies with Down Syndrome in Transitioning to Solid Foods</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Jill Rabin, MS CCC-SLP</span></span></span></blockquote>
<blockquote class="tr_bq">
<span style="color: #20124d;"><b>Gluten Free</b></span><br />
<span style="color: #20124d;">Paula Dempsey, Small Business Owner and Grandmother <br />to child w/Celiac</span></blockquote>
<blockquote class="tr_bq">
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Balancing Minerals in the Down Syndrome Population</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Morley Robbins, MBA CHC</span></span></span><br />
<span style="color: #20124d;"><br /></span>
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Developmental and Behavioral Consultants</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Alison Wimmer, BS Neurodevelopmentalist</span></span></span><br />
<span style="color: #20124d;"><br /></span>
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Early Dental Intervention to Improve Airway Size and to Correct Oral Rest Posture</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">James Bieneman, DDS</span></span></span><br />
<span style="color: #20124d;"><br /></span>
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Small Intestinal Bacterial Overgrowth</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Erica Peirson, ND</span></span></span><br />
<span style="color: #20124d;"><br /></span>
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">My Teen Life: Living with Trisomy 21</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Lydia Winans, student</span></span></span></blockquote>
Andi Durkinhttp://www.blogger.com/profile/03651762223667606607noreply@blogger.com0tag:blogger.com,1999:blog-1989545445919628676.post-88061871031127555802016-05-14T19:20:00.000-04:002016-05-14T19:20:57.129-04:00DSI Registration<div class="separator" style="clear: both; text-align: center;">
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<span style="font-family: Verdana,sans-serif;"><a href="http://downsyndromeinnovations.com/" target="_blank">Register today!</a> </span></h2>
</div>
<br />Andi Durkinhttp://www.blogger.com/profile/03651762223667606607noreply@blogger.com0tag:blogger.com,1999:blog-1989545445919628676.post-35423025837432099982016-05-10T13:06:00.004-04:002016-05-10T13:10:53.423-04:00Down Syndrome Innovations Conference Sept. 16-17, 2006 Little Rock, AR<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjWd1E0hG2K9CmBNxVnXDVr-_IBgqx_OxJOp7URkoflkto1d1W0pmACspQn_aLi1LQOZ-6QotlLk2ifD1o7PvZg6bRAdBEYkwNdFDjWZrCyTx6GZG0PiklwdCjUBP8bi2bcJ6qdk43ctaU/s1600/dsi_banner_image1+%25281%2529%25284%2529-1.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="272" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjWd1E0hG2K9CmBNxVnXDVr-_IBgqx_OxJOp7URkoflkto1d1W0pmACspQn_aLi1LQOZ-6QotlLk2ifD1o7PvZg6bRAdBEYkwNdFDjWZrCyTx6GZG0PiklwdCjUBP8bi2bcJ6qdk43ctaU/s640/dsi_banner_image1+%25281%2529%25284%2529-1.jpg" width="640" /></a></div>
<div style="text-align: center;">
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<div style="text-align: center;">
<span style="font-family: "verdana" , sans-serif;"><span style="color: #24678d;"><b>September 16-17<br />Statehouse Convention Center</b></span></span><br />
<span style="font-family: "verdana" , sans-serif;"><span style="color: #24678d;"><b>Little Rock, Arkansas</b></span></span>
<span style="font-family: "verdana" , sans-serif;"><span style="color: #24678d;"><b> </b></span> </span></div>
<div style="text-align: center;">
</div>
<div style="text-align: center;">
<span style="color: #0b5394;"><b><span style="font-family: "verdana" , sans-serif;"><a href="http://downsyndromeinnovations.com/" target="_blank">Early Bird Registration ends May 15th. Secure your spot today!</a> </span></b></span></div>
<br />
<span style="font-family: "verdana" , sans-serif;">Don't miss out on this one-of-a-kind opportunity to hear
dynamic researchers, physicians, therapists and advocates present
cutting edge translational medical research and interventions to improve
the health, cognition, behavior and development of individuals with
Down syndrome.</span><br />
<span style="font-family: "verdana" , sans-serif;"><br /></span>
<span style="font-family: "verdana" , sans-serif;">Make new friends and connections. Network with
other attendees who share the common goal of exploring ways to enrich
the lives of individuals with Down syndrome. Be able to speak face to
face with expert vendors of supplements, quality service providers and
try out innovative products for yourself.</span><br />
<br />
<span style="font-family: "verdana" , sans-serif;">Sponsorship Opportunities available! </span><br />
<span style="font-family: "verdana" , sans-serif;"><br /></span>
<span style="font-family: "verdana" , sans-serif;"><span style="font-family: "arial" , "helvetica" , sans-serif;">Check out the Down Syndrome Innovations <a href="http://downsyndromeinnovations.com/" target="_blank">conference website</a> </span>for details.</span><br />
<span style="font-family: "verdana" , sans-serif;"><br /></span>
<span style="font-family: "verdana" , sans-serif;">Also join the <a href="https://www.facebook.com/events/614192605404796/" target="_blank">2016 Down Syndrome Innovations Conference Event Page</a> for up to date news. </span>Andi Durkinhttp://www.blogger.com/profile/03651762223667606607noreply@blogger.com2tag:blogger.com,1999:blog-1989545445919628676.post-72959940076341990852016-02-26T11:34:00.001-05:002016-02-26T11:35:24.825-05:00Preorder your Readeez Volume 4 DVD Today!<div data-contents="true">
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjN69nvo6GgMQkDH17aSTd4Hc3AaK7006tnDtnEzaAPxS3Ji6a3-O1hJQzFLUByoTxXKNuXP1c4dYrdY_yjSqNvcUV-6djj6QXK4qWCaoBbWjlasnNJrIHLT5zwS81ZwgrYK8rw-hmPJqM/s1600/414980_300x300.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjN69nvo6GgMQkDH17aSTd4Hc3AaK7006tnDtnEzaAPxS3Ji6a3-O1hJQzFLUByoTxXKNuXP1c4dYrdY_yjSqNvcUV-6djj6QXK4qWCaoBbWjlasnNJrIHLT5zwS81ZwgrYK8rw-hmPJqM/s1600/414980_300x300.jpg" /></a></div>
<div class="_1mf _1mj" data-offset-key="39cm1-0-0">
<span data-offset-key="39cm1-0-0"><span data-text="true">For those of you haven't heard of Readeez, it's short musical, educational video songs. In them, the words come up the same time that the child hears them. So kids are learning to read with them as well as concepts such as math, money, planets, etc. </span></span><span data-offset-key="39cm1-0-0"><span data-text="true">Readeez is working on a new DVD and have GREAT specials so that you
get Volumes 1-3 and preorder Volume 4. But you only have a few days left
to do it! </span></span><br />
<br />
For $10 you can preorder the digital download of V<span class="text_exposed_show">olume 4.</span><br />
<div class="text_exposed_show">
<br />
For $50 you can order the whole set to be donated to a family w/a child with Down syndrome or ASD. <br />
<br />
For $75, you'll get the Readeez Volume Four DVD/CD set, signed by
Michael Rachap, weeks ahead of the August release. Your name (or your
child's) will appear during the closing credits. Plus you get the
digital versions and the sticker. As well as everything in the Readeez
Mega Bundle (that's 3 DVDs -- Volumes 1-3, 1 CD called Songeez and 6
digital downloads). <br />
<br />
Estimated delivery: Jun 2016<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgRxT_25gk1kCh6CKRuuqBZLwSvqgEWE63aFAaAvzW9hQpzM2nkGrZc2UfhdafSST2WU6KRToHq906_e6D-gUVPZBC5TAW96IpNnjlBVgBQeOBHYv86auIxfdgdvEgasEOSPj-GI_VdGYA/s1600/readeez-grand-slam-bundle.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="278" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgRxT_25gk1kCh6CKRuuqBZLwSvqgEWE63aFAaAvzW9hQpzM2nkGrZc2UfhdafSST2WU6KRToHq906_e6D-gUVPZBC5TAW96IpNnjlBVgBQeOBHYv86auIxfdgdvEgasEOSPj-GI_VdGYA/s320/readeez-grand-slam-bundle.jpg" width="320" /></a></div>
<br />
Here's a sample: <a href="http://www.readeez.com/watch/22-blues">http://www.readeez.com/watch/22-blues</a><br />
<br />
Jett
learned all the Presidents of the US as well as all 50 states by
listening to Readeez. (I guess that's how--I didn't teach him!) It's
also the perfect distraction while feeding your child supplements,
getting a hair cut or getting blood work done. Yes, we've used Readeez
successfully for all three.<br />
<br />
So not only can Jett read, but he also has nice hair, a good nutritional panel and up-to-date labs. Readeez is pretty amazing!<br />
<br />
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<iframe allowfullscreen="" class="YOUTUBE-iframe-video" data-thumbnail-src="https://i.ytimg.com/vi/A6fEYpmqqE0/0.jpg" frameborder="0" height="266" src="https://www.youtube.com/embed/A6fEYpmqqE0?feature=player_embedded" width="320"></iframe></div>
Don't let this opportunity to support quality products for our kids slip from our fingers! </div>
<a href="https://www.kickstarter.com/projects/1310173902/help-us-make-readeez-volume-four-music-and-video-f"><span data-offset-key="39cm1-0-0"><span data-text="true">https://www.kickstarter.com/projects/1310173902/help-us-make-readeez-volume-four-music-and-video-f</span></span></a></div>
</div>
</div>
<span style="font-size: x-small;"><span style="font-family: "verdana" , sans-serif;"><span style="font-size: x-small;"><span style="font-style: italic;"></span> </span></span></span>Andi Durkinhttp://www.blogger.com/profile/03651762223667606607noreply@blogger.com0tag:blogger.com,1999:blog-1989545445919628676.post-59770972889593583932016-01-19T09:19:00.003-05:002016-01-19T09:26:26.945-05:00Watch me Online at the FREE Happy Healthy Kids Summit!<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhfJKKdULNoVvqrqGaY2vKe1LHEzRjnO4kZ7Mbz-gvdkGXbhDABtxB_mNSYUeaE5HCqOAUHwaf29TUhhwHnJI4QX3tPhT1gsnOXVNzwkFmdfDedVtgX2p58R7MDUGF3Kenag_SXMXPo3A0/s1600/Jett+and+Andi5.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhfJKKdULNoVvqrqGaY2vKe1LHEzRjnO4kZ7Mbz-gvdkGXbhDABtxB_mNSYUeaE5HCqOAUHwaf29TUhhwHnJI4QX3tPhT1gsnOXVNzwkFmdfDedVtgX2p58R7MDUGF3Kenag_SXMXPo3A0/s320/Jett+and+Andi5.jpg" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Me and Jett, 5 years old</td></tr>
</tbody></table>
<div style="text-align: center;">
<b><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Join me at the FREE Online <span style="color: #990000;">Happy Healthy Kids Summit</span></span></span></b></div>
<div style="text-align: center;">
<b><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Thursday, January 21st </span></span></b></div>
<div style="text-align: center;">
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">(and will be available on Friday and Saturday)</span></span></div>
<br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">I'll be giving tips on: </span></span><br />
<ul>
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">clearing congestion </span></span></li>
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">relieving constipation </span></span></li>
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">things to consider regarding vaccinations for our kids with DS </span></span></li>
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">importance of thyroid treatment </span></span></li>
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">my favorite supplements </span></span></li>
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">alternative therapies </span></span></li>
</ul>
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><a href="http://www.healthyhappykidssummit.com/AndiDurken" target="_blank">Sign up today to get the Summit link</a>. </span></span><br />
<br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">It's especially good for newbies. :D </span></span><br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Hosted by chef/author Christine Waltermyer. </span></span>
Andi Durkinhttp://www.blogger.com/profile/03651762223667606607noreply@blogger.com0tag:blogger.com,1999:blog-1989545445919628676.post-68402996050297871962015-10-13T17:12:00.001-04:002017-05-18T18:30:16.391-04:00Recipe for Success: How to Get Your Child to Feed Supplements to Himself!<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Finally, a way to give supplements without a struggle! This is also how your child can get his supplements at school. Jett takes his morning dose of vitamins, herbs and minerals mixed in his applesauce or a mashed banana while he watches one or two 3-4 minute educational videos from <a href="https://jr.brainpop.com/" target="_blank">Brain Pop, Jr</a>. But I also put in 4-5 "party balls" in his lunch with about six supplements and he always eats them. I also brew him some holy basil or rooibos tea </span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">(with apple cider vinegar and probiotics-- I know, yum<span style="font-family: "verdana" , sans-serif;">!) </span></span></span>and put it in his straw cup that he brings to school. <span style="font-family: "verdana" , sans-serif;"></span></span></span><br />
<br />
<div class="separator" style="clear: both; text-align: center;">
<iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.blogger.com/video.g?token=AD6v5dw8rDrkatNTJS6amlLgnQ44fus7m2PGTCir6k9BcBTl17gWPQgKLV6Z4iCPW9XEfP8HcLkUy0sOIBFdfJh4xA' class='b-hbp-video b-uploaded' frameborder='0'></iframe></div>
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><br /></span></span>
<br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">The video is of Oliver, Jett's 25 month old brother who has cerebral palsy, feeding himself his supplements. I did make too many (11) so he ate 3-4 at the first sitting and 4 at the next and then the rest a couple of hours later. But that's okay because he's still getting them! Since then, I've been adding much less nut butter and making only about 4-5 "party balls" so he eats them all by noon. </span></span><br />
<br />
<div class="separator" style="clear: both; text-align: center;">
<iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.blogger.com/video.g?token=AD6v5dzoZte6P-aIDAkmlM9zwaRIOvvri9bTPpVrqJ5NnSdZBoMZQXQOQDbK0oBEIhxuGEu-_yX26cODYJp4aiVKNg' class='b-hbp-video b-uploaded' frameborder='0'></iframe></div>
<br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">And here's Jett's (5 years old) review of them while doing a little math. (I swear, <span style="font-family: "verdana" , sans-serif;">HE started <span style="font-family: "verdana" , sans-serif;">the math</span> -- I was just <span style="font-family: "verdana" , sans-serif;">fol<span style="font-family: "verdana" , sans-serif;">lowing <span style="font-family: "verdana" , sans-serif;">his lead.)</span></span></span></span> :) </span></span><br />
<br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="color: #990000;"><b>Recipe for Supplement Success </b></span></span></span><br />
<br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">They are a gluten and casein free, nutrient-dense treat.</span></span><br />
<br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><b>Party Balls </b></span></span><br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><br /></span></span>
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Ingredients</span></span><br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><i>You can purchase all the ingredients <a href="http://astore.amazon.com/dosyadatodagu-20?_encoding=UTF8&node=84" target="_blank">here</a>.</i> </span></span><br />
<ul>
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Supplements of your choice (<i>See how to decide what to give </i></span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><i><span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;"><a href="http://dsdaytoday.blogspot.com/2011/03/complete-protocol.html" target="_blank">here</a></span></span>.</i>)</span></span></li>
<li><span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">N</span>ut butter </span></span><span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;">of your choice </span></span><span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">(preferably sprouted<span style="font-family: "verdana" , sans-serif;"> and</span> organic so that it becomes a nutrient as well rather than an anti-nutrient) </span></span>or dates/figs can replace the nut butter:</span></span></li>
</ul>
<blockquote class="tr_bq">
<blockquote class="tr_bq">
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Pumpkin seed butter or smashed dried dates/figs<br />Sun nut butter<br />Peanut butter<br />Almond butter </span></span></blockquote>
</blockquote>
<ul>
<li><span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;">Organic sweetener of your choice: </span></span></li>
</ul>
<blockquote class="tr_bq">
<blockquote class="tr_bq">
<span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;">Stevia (plus one of the others)</span></span><br />
<span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;">Manuka honey</span><span style="font-size: small;"> </span></span><br />
<span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;">Maple syrup </span></span></blockquote>
</blockquote>
<ul>
<li><span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;">Pink Himalayan sea salt (as needed)</span></span></li>
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"></span><span style="font-family: "verdana" , sans-serif;">Organic "goodies" of your choice:</span></span></li>
</ul>
<blockquote class="tr_bq">
<blockquote class="tr_bq">
<span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;">Puffed amaranth</span></span><br />
<span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;">Shelled hemp seeds</span></span><br />
<span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;">Chia seeds</span></span><br />
<span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;">Coconut shavings/shredded</span></span><br />
<span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;">Finely chopped organic, unsulphured, dried goji berries</span></span><br />
<span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;">Finely chopped organic, unsulphured, dried gooseberries (amla)</span></span><br />
<span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;">Chia Goodness cereal like apple almond (It's not organic but it's quicker and cheaper--in the short term--because it has most of the ingredients already in it.) </span></span></blockquote>
</blockquote>
<br />
<span style="font-family: "verdana" , sans-serif; font-size: small;">Directions</span><br />
<br />
<span style="font-family: "verdana" , sans-serif; font-size: small;">These are the supplements that Oliver is eating in the video: 1 MitoQ, 2 </span><span style="font-family: "verdana" , sans-serif; font-size: small;"><span style="font-family: "verdana" , sans-serif;"><a href="http://dsdaytoday.blogspot.com/2011/03/longvida-curcumin.html">Curcumin Longvida</a></span>, 1 Partoid PMG (for detox), 1 </span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><a href="http://dsdaytoday.blogspot.com/2011/09/why-b12-folinic-acid-for-down-syndrome.html" target="_blank">MegaFolinic</a></span>, 2 Stress Guards (organic B vitamins with a</span><span style="font-family: "verdana" , sans-serif;"><span class="_Tgc">daptogens</span>), Mega Food </span><span style="font-family: "verdana" , sans-serif;"><a href="http://dsdaytoday.blogspot.com/2011/10/why-supplement-and-monitor-zinc.html">Zinc</a>, Raintree Immune Support (natural antivirals/antibacterials/antifungals), 2 Vitamin Code </span><span style="font-family: "verdana" , sans-serif;"><a href="http://dsdaytoday.blogspot.com/2011/08/vitamin-c-plays-important-role-in-brain.html">Vitamin C</a>s, 2 Cognitex (brain support mix), 2 Prenatal Fish Oils and 2 Garden of Life Children's Multivitamins. </span></span><br />
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<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg_vUgY_HPeWVTpsFDnC7q2M-37-vWNupCgPndiBGLNIYyr5kP_lm7CJIftxp4f8bTcpyle9iFiaU4ffm2RaCubvgwm1k2FfNUHyNffeVwkFLoZgv5nFc-bqjowGrUW3d9WoaXzFgaQSkI/s1600/FullSizeRender%25282%2529.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="191" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg_vUgY_HPeWVTpsFDnC7q2M-37-vWNupCgPndiBGLNIYyr5kP_lm7CJIftxp4f8bTcpyle9iFiaU4ffm2RaCubvgwm1k2FfNUHyNffeVwkFLoZgv5nFc-bqjowGrUW3d9WoaXzFgaQSkI/s320/FullSizeRender%25282%2529.jpg" width="320"></a></span></span></div>
<div style="text-align: center;">
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<div style="text-align: center;">
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">1) Crush tablets, open capsules and squirt soft gels into a bowl. </span></span></div>
<div style="text-align: center;">
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<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEglPAZpQT8NhQcHynmkasn-WWbGB8OXQDJP5EcYy1NJepmBSWcZ95skFpJbDo3Eg0MdrBRiTi1lhuHev_2eSEyvAcXC9BVMhAWM838sjPa_Y_VLblpFvzjQrHiLLdC9nnWwpf6ztfRDoM0/s1600/IMG_0995.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEglPAZpQT8NhQcHynmkasn-WWbGB8OXQDJP5EcYy1NJepmBSWcZ95skFpJbDo3Eg0MdrBRiTi1lhuHev_2eSEyvAcXC9BVMhAWM838sjPa_Y_VLblpFvzjQrHiLLdC9nnWwpf6ztfRDoM0/s320/IMG_0995.JPG" width="320"></a></span></span></div>
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<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">2) Add a nut butter to the supplements with a bit of cinnamon and stir until well blended. Taste. Then add a tiny bit of salt (helps with bitter flavors), a drop of stevia and a bit of maple syrup (helps with sour flavors) until you think your child will like it. The first time you make it, I'd err on the side of a little too sweet just so that <span style="font-family: "verdana" , sans-serif;">he</span>'ll like it. Then once <span style="font-family: "verdana" , sans-serif;">he</span> already thinks of it as good, then the next time you can make it less sweet.</span></span><br />
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<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Notes: It seems that the less the mix contains synthetic ingredients, the easier it is for their palates to tolerate. When I buy the raw sprouted pumpkin seed butter, I try to buy it without added sweeteners or salt so I can add my own. When I first open the jar, I stir in some pink Himalayan sea salt (more nutritious than processed salt) and maple syrup if absolutely necessary. I would use manuka honey instead of maple syrup, but both Jett and Oliver muscle test negatively for honey at the moment. </span></span></div>
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<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">3) Get some nutrient-packed goodies and put them in a bowl and stir. Pic<span style="font-family: "verdana" , sans-serif;">tured: </span></span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Chia Goodness cereal, shelled hemp seeds, chia seeds<span style="font-family: "verdana" , sans-serif;"> and </span></span></span></span></span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">puffed
amaranth<span style="font-family: "verdana" , sans-serif;">. I also add</span> </span></span></span></span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"> coconut
flakes <span style="font-family: "verdana" , sans-serif;">and</span> finely chopped goji berries or gooseberries. </span></span></span></span></span></div>
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<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhER3l5zKRggmLuYdAT-gUcnyFCuUdwhV1ozuzzzs6cJDR4fssW0Fh_aEMLFdp0U0KXlrylfnQHy6akHba7HSa6USlxHJ_668NafD8i9KFNok9QF09drvsYd7A6AvKjVWQzxm2REzqcZpo/s1600/IMG_0998.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhER3l5zKRggmLuYdAT-gUcnyFCuUdwhV1ozuzzzs6cJDR4fssW0Fh_aEMLFdp0U0KXlrylfnQHy6akHba7HSa6USlxHJ_668NafD8i9KFNok9QF09drvsYd7A6AvKjVWQzxm2REzqcZpo/s320/IMG_0998.JPG" width="320"></a></span></span></div>
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<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">4) Roll the nut butter/supplement mix into balls and <span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;">put</span></span> in the goody mix. </span></span></div>
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<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Note: Now, I smush the balls into the mix first so that the goodies are incorporated throughout the nut butter then I roll into a ball. I add more puffed </span></span><br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">amaranth to coat the outside.</span></span></div>
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<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">5) Coat with goodies and give to your little one for a healthy treat that he can feed himself and you can feel really good about!</span></span><br />
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<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Note: If there's any extra goodies left over that I didn't use, I put in a wax paper baggie and use for the next day. </span></span></div>
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<b><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Make Ahead Suggestions</span></span></b></div>
<ul style="text-align: left;">
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Premix the "goodies" in a wax paper bag for quick easy mixing the morning of.</span></span></li>
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Put the unopened capsules, uncrushed tablets and unpunctured softgels in a small container ready for the next day.</span></span></li>
<li><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">I don't know that I would premake the balls other than one serving the night before because you can't be certain how potent the supplements would stay. I do make mine every morning. I did premake it once and the balls were more crunchy on the inside. Jett enjoyed that texture was well as the softer texture of the freshly made ones.</span></span></li>
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<span style="color: #990000;"><b><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Related Posts</span></span></b></span></div>
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<span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;"><a href="http://dsdaytoday.blogspot.com/2011/03/complete-protocol.html" target="_blank">Supplementing: How to Start</a></span></span></div>
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<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><a href="http://dsdaytoday.blogspot.com/2012/08/doctors-presentations-on-biomedical.html">Doctors' Presentations on Biomedical Issues and Solutions for those with Down Syndrome</a> <br />
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<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><a href="http://dsdaytoday.blogspot.com/2012/02/list-of-supplements-in-related-to-t21.html">List of Supplements Related to T21</a> </span></span><br />
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<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><a href="http://dsdaytoday.blogspot.com/2011/03/complete-protocol.html" target="_blank">Jett's Supplement List</a></span></span></div>
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<div style="text-align: center;">
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><br /></span></span></div>
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><br /></span></span>
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<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><br /></span><script type="text/javascript" defer="defer" src="//script.opentracker.net/?site=dsdaytoday.blogspot.com"></script></span>Andi Durkinhttp://www.blogger.com/profile/03651762223667606607noreply@blogger.com2tag:blogger.com,1999:blog-1989545445919628676.post-8237615081625123922015-06-30T08:54:00.000-04:002015-07-27T11:58:47.767-04:00Down Syndrome Innovations Conference Sept 11-13, 2015 Arkansas Children's Hospital<div style="text-align: center;">
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi9C-EWh_5Brpj-dahDaXNaT0j0GW5jae_4wiwf47sJUrT6gC6VoTFV-k244vEqqIVSV04_mi7S5pyHDzVqjiQ9Q-dEWASCeZN2LiRopL6i5ycldON-pC02O_fKveiGwsvbEzgXLWDYeRI/s1600/ACH+logo.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi9C-EWh_5Brpj-dahDaXNaT0j0GW5jae_4wiwf47sJUrT6gC6VoTFV-k244vEqqIVSV04_mi7S5pyHDzVqjiQ9Q-dEWASCeZN2LiRopL6i5ycldON-pC02O_fKveiGwsvbEzgXLWDYeRI/s1600/ACH+logo.png" /></a></div>
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<span style="font-size: large;"> and</span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgWJTmEFzrCg7-8fmVg0AWA7_26-_EHIYd5A1jvhR1uMJ5jh7VmapzKskGotmBfnmRyK3UBDQPKAfUGoB_ADp8oJokrRxHCRUisIYCXX02HF6KptLZgREboqZAt2Nom2K1hyphenhyphenllcxO9MI18/s1600/Options.gif" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgWJTmEFzrCg7-8fmVg0AWA7_26-_EHIYd5A1jvhR1uMJ5jh7VmapzKskGotmBfnmRyK3UBDQPKAfUGoB_ADp8oJokrRxHCRUisIYCXX02HF6KptLZgREboqZAt2Nom2K1hyphenhyphenllcxO9MI18/s1600/Options.gif" /></a></div>
<span style="font-size: large;"> Arkansas Children's Hospital and Down Syndrome OPTIONs bring you therapeutic ideas, educational strategies and research
supporting translational medical interventions that can improve the
symptoms seen in those with Trisomy 21.</span><br />
<br />
<span style="font-size: large;"><a href="http://www.brownpapertickets.com/event/1740255" target="_blank">Register today!</a></span><br />
<br />
<br />
<span style="font-size: large;"><i>Seize this opportunity to make life-long connections with caregivers, practitioners and researchers!</i><b><br /></b> </span></div>
<b>Schedule of Events</b><br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; text-align: right;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhPpNHpDVi4Z2BWu_vf5ONFDp4b5gLXbpLZzB2s-DJvJjVF26A2ZWELBs89x-P_b6Kx-cGqO8oTaeKqnYFAh9zvMIS6yYK2QYwzZ39VZRPRu5BqLkLg9tAyO-tnsSA1m1mFYUYknWZ9OPw/s1600/Billy+the+Artist.jpg" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhPpNHpDVi4Z2BWu_vf5ONFDp4b5gLXbpLZzB2s-DJvJjVF26A2ZWELBs89x-P_b6Kx-cGqO8oTaeKqnYFAh9zvMIS6yYK2QYwzZ39VZRPRu5BqLkLg9tAyO-tnsSA1m1mFYUYknWZ9OPw/s320/Billy+the+Artist.jpg" width="318" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b>Billy Spillman, Artist</b></td></tr>
</tbody></table>
<br />
<b>Friday, September 11, 2015</b><br />
<br />
<b> Day 1</b> supports physicians and other professionals* <i><i>Continental</i> breakfast and lunch included.</i><br />
<b> Meet and Greet </b>that evening.<br />
<b>Art Gallery</b> featuring adult artist with T21, Billy Spillman. <br />
<br />
<b>Saturday, September 12, 2015</b><br />
<br />
<b> Day 2 </b>gives parents, advocates, and caregivers* more knowledge and better tools to help individuals with Trisomy 21. <i>Continental breakfast and lunch included.</i><br />
<br />
<i> *Both days of the conference will be open for parents and professionals to attend. </i><br />
<br />
<b>Sunday, September 13, 2015</b><br />
<br />
<b> Day 3 </b>Family day!<br />
Join attendees at either <a href="http://www.littlerockzoo.com/">Little Rock Zoo</a> or the <a href="https://www.museumofdiscovery.org/">Donald W. Reynolds Science Center</a><br />
<br />
To get the group rate, email kerrinelson70(a)gmail.com to let us know
which one you want to attend and how many adults and children (indicate
ages) will come. <b><br /></b>
<b> </b><br />
<b>Expert Presenters on Must-Hear T21 Topics for Day 1 and Day 2</b><br />
<ul>
<li><b>Dana Crawford</b>, Ph.D. -- Dietary Targeting of RCAN1 and Chromosome 21 Genes to Treat the Down Syndrome Population </li>
<li><b>Jorge A. Busciglio</b>, Ph.D. -- Mitochondrial Dysfunction </li>
<li><b>Norman Schwartz</b>, M.D. -- Thinking About Trisomy 21- Towards a Best Practices Approach </li>
<li><b>Barbara Strupp</b>, Ph.D. -- Maternal Choline/Neurogenesis/Therapeutic Intervention for Basic Brain-Cognition support </li>
<li><b>D. Allan Butterfield</b>, Ph.D. -- <span class="null">Molecular Mechanisms Engaged in Brain Prior to and
Following Development of Alzheimer's Disease Neuropathology and Dementia
in Down Syndrome</span> </li>
<li><b>Anat Baniel</b> -- NeuroMovement: Turning the child with Down Syndrome into a Potent Learner</li>
<li><b>Raphael Kellman</b>, M.D. -- Thyroid/Endocrine Function, Microbiome </li>
<li><b>S. Jill James, Ph.D</b>. -- Oxidative Stress and Epigenetic Alterations in Down syndrome: Targeted
Nutritional Intervention Trial at Arkansas Children’s Hospital</li>
<li><b>Richard Frye</b>, M.D., Ph.D. -- Treatment Strategies for Mitochondrial Dysfunction </li>
<li><b>Alison Wimmer</b> -- Educational Strategies: Change Your Perception of dis-Abilities</li>
<li><b>Monica Purdy</b>, MA, CCC-SLP -- Oral Placement Therapy – The Missing Link for Increased Feeding and Intelligibility in Speech</li>
<li><b>Erica Peirson</b>, N.D. -- Small Intestinal Bacterial Overgrowth </li>
<li><b>Morley Robbins</b>, MBA, CHC -- Balancing Minerals in Down Syndrome </li>
<li><b>Louisa Silva</b>, M.D., M.P.H. -- Qi Gong Massage Benefits </li>
<li><b>Jill Rabin</b>, M.S., CCC-SLP -- The Baby-Led Weaning Approach: An Excellent Option to Assist Babies with Down Syndrome in Transitioning to Solid Foods</li>
<li><b>Lydia Winans</b> -- The Life and Times of a Teen with T21 </li>
<li><b>Kent MacLeod </b>-- Optimized Nutrition is Essential for those with Trisomy 21 </li>
<li><b>James Bieneman</b>, D.D.S. -- Palate Expansion in the Down Syndrome Population </li>
<li><b>Russell Jaffe</b>, M.D., Ph.D., FACN -- <span class="null">Healthy Digestion = Healthy Microbiome:
What to Test, What Tests Mean and What to Do</span></li>
</ul>
<div style="text-align: center;">
<b><a href="http://www.downsyndromeoptions.org/2015/06/down-syndrome-innovations-conference.html" target="_blank">Check out the Conference Schedule.</a></b></div>
<ul>
</ul>
<div class="separator" style="clear: both; text-align: center;">
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<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEijG4Bwij0RNRPRfk9H6i1mK3B_tc6l6Z3QlRtkXozyFh1P3MOcpmpeA2xYMI2bCd3oOOzeyWfz4AoTfT6qiHTrT57RRsiKOjYNABvu2wvowdE1kjL6RMIYR40imo1O1z_gnLCA1AooEDo/s1600/Lydia.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEijG4Bwij0RNRPRfk9H6i1mK3B_tc6l6Z3QlRtkXozyFh1P3MOcpmpeA2xYMI2bCd3oOOzeyWfz4AoTfT6qiHTrT57RRsiKOjYNABvu2wvowdE1kjL6RMIYR40imo1O1z_gnLCA1AooEDo/s320/Lydia.jpg" width="285" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b>Lydia Winans, Presenter</b></td></tr>
</tbody></table>
<b>Child Care</b><br />
Register
now for child care. We will be providing qualified special needs care
givers to make sure your little ones are safe and having fun. There will
be a 2:1 ratio for kids w/special needs and 4:1 ratio for typical
children, which is reflected in the price.<br />
<br />
<b>Hotel Reservations</b><br />
We have rooms blocked off at <a href="http://www.reservationcounter.com/hotels/show/431400/residence-inn-little-rock-downtown/?TID=o9IdDxRu%7Cpcrid%7C6161045265&utm_source=bing&utm_medium=cpc&utm_term=+residence%20+inn%20+little%20+rock&utm_campaign=New%20Additions%208-15-13&mm_campaign=61e23501c3a7666376c173fa44c75e69&keyword=+residence%20+inn%20+little%20+rock&hotelid=431400">Residence Inn Little Rock Downtown</a>. Let them know you are with the Down Syndrome Innovations Conference. <br />
<a href="http://www.archildrens.org/documents/campusmap2015.pdf">View map of Arkansas Children's Hospital.</a><br />
<div style="text-align: center;">
<br />
<b>Please support <a href="http://www.downsyndromeoptions.org/p/about-us.html" target="_blank">Down Syndrome OPTIONs' mission</a>! </b><br />
<br />
<b>Donate at <a href="http://www.downsyndromeoptions.org/" target="_blank">Down Syndrome OPTIONs</a>.</b></div>
<br />Andi Durkinhttp://www.blogger.com/profile/03651762223667606607noreply@blogger.com0tag:blogger.com,1999:blog-1989545445919628676.post-35791166126082917572015-05-22T18:12:00.000-04:002017-05-18T18:30:47.985-04:00Teaching Your Child to Get Dressed from Infancy On<br />
<div>
<span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">We all want our children to be independent. But sometimes we don't realize our child can't do something that other kids his age can do until your child reaches that age and is already behind. So we need to be proactive and allow our children plenty of opportunities to acquire the tools necessary to accomplish his life skills in a timely manner. For such an important and rather complicated daily task as dressing one's self, it's best to start early so that by the time your child is in kindergarten, he would have had plenty of opportunities to learn and would be well on his way to getting dressed on his own. </span></span></div>
<div>
</div>
<div>
<br />
<span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">The first list is the order in which children usually learn how to dress as far as being able to physically and cognitively perform the skills. The second list has tips and the steps in which you can teach your child to dress himself.</span></span></div>
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<tr><td style="text-align: center;"><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg3iNke0Fj0cZ-_f85wK19dFQMIWim2P9GfqX185EHBBzNmG2G6-4jyTtkLGI5WNYXdUu3dJ0SkzzMMmR-Vrk-LU-XLBpy-uUHQLwNW3AkgwN1wZ7Hnj3MwDC5OyeCvic1szcectXvczSc/s1600/photo%252814%2529.JPG" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg3iNke0Fj0cZ-_f85wK19dFQMIWim2P9GfqX185EHBBzNmG2G6-4jyTtkLGI5WNYXdUu3dJ0SkzzMMmR-Vrk-LU-XLBpy-uUHQLwNW3AkgwN1wZ7Hnj3MwDC5OyeCvic1szcectXvczSc/s320/photo%252814%2529.JPG" width="186"></a></span></span></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Jett dressing Bessy.</span></span></td></tr>
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<div>
<span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Find out where your child is on the first list and go from there as far as helping him to acquire the skills needed to properly dress himself. If your child can do things in a different order than is shown, go ahead and rearrange the list to best fit your child. For instance, all the ones that I marked (FM) for fine motor, Jett did in a later order than is shown here. One child with DS that I know did all the FM's earlier than the other tasks. Much to his single mom's "delight" his fine motor skills made him quite the escape artist. She'd often get a hug from him while driving even though he had been well strapped in his car seat! </span></span></div>
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</div>
<div>
<br />
<span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">The list allows you to notice where your child is and what the next step may be so that you can let him give it a try the next time you go through your dressing routine. And then you can add supportive activities like practicing buttoning on a doll like "Dressy Bessy" or on a busy board. Our local library has a developmental center where we can check out developmental toys such as a giant book that has big buttons, zippers, etc. You can make something for your child to practice on by taking an old shirt and stapling it onto an unused frame. Here is a <a href="http://livingmontessorinow.com/2012/04/09/montessori-monday-diy-dressing-frames-and-alternatives/" target="_blank">great list of items</a> you can make at home to help your child acquire these fine motor skills related to dressing. One of my favorites is the Button Snake.</span></span><br />
<br />
<span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Different types of therapy can help with gaining these skills. <a href="http://dsdaytoday.blogspot.com/2011/04/low-muscle-tone-what-to-do.html" target="_blank">Kay Ness' Tactile Sequence</a>, part of neurodevelopmental therapy, helps your child to integrate his tactile senses. <a href="http://dsdaytoday.blogspot.com/p/therapy.html" target="_blank">MNRI</a> is another type of therapy that releases the blocked reflexes so your child can move more easily. One exercise Jett does directly relates to holding a pencil, for instance. </span></span></div>
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<span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><br /></span></span></div>
<div>
<span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">If your child has difficulty cooperating, check out <a href="http://dsdaytoday.blogspot.com/2013/07/my-behavior-strategy.html" target="_blank">How I get Good Behavior from Jett</a>. And, of course, I can't help but mention the importance of supporting your child's health and thereby supporting his cognitive development with <a href="http://dsdaytoday.blogspot.com/p/nutrition.html" target="_blank">proper nutrition</a> and <a href="http://dsdaytoday.blogspot.com/2011/03/complete-protocol.html" target="_blank">supplements</a>. For instance, <a href="http://dsdaytoday.blogspot.com/2011/09/why-b12-folinic-acid-for-down-syndrome.html" target="_blank">B12</a> helps restore sensations in the nerves, which means your child would be able to feel his or her fingers better, allowing him to use his fingers more accurately.</span></span></div>
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<span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><br /></span></span></div>
<div>
<span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><b>Order of skill acquisition related to dressing</b></span></span><br />
<ol>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Holds arms out for sleeves and puts foot up for shoes</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Pushes arms through sleeves and legs through pants</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Pulls socks and shoes off</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Removes unfastened coat</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Removes shoes when laces are untied</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Helps push down pants</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Finds armholes in t-shirts</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Pulls down pants with elastic waist</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Tries to put on socks (FM)</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Puts on front-buttoned shirt (without doing up buttons)</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Unbuttons one large button (FM)</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Puts on t-shirt with little help</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Puts on shoes without fastening (might be wrong foot)</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Puts on socks (might have trouble getting heel in the right place) (FM)</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Pulls down pants on his own</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Zips and unzips without joining or separating zipper</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Removes t-shirt without assistance</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Buttons large front buttons (FM)</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Finds front of clothing</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Snaps or hooks clothing in front (press studs and zips) (FM)</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Unzips/zips front zipper on jacket (separating zipper) (FM)</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Puts on gloves (FM)</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Buttons series of 3-4 buttons (FM)</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Unbuckles shoes or belt</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Removes t-shirts on her own</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Buckles shoes or belt (FM)</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Connects jacket zipper and zips up zipper (FM)</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Puts on socks the right way (FM)</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Puts on shoes with little help (FM)</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Knows front and back of clothing</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Steps into pants and pulls them up</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Puts belt in loop (FM)</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Dresses without your help or supervision</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Puts on t-shirt or sweater correctly each time</span></span></li>
</ol>
</div>
<div>
<span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"> This list is adapted from Dunn Klein, M. (1983). <i>Pre-dressing skills</i> (rev. edn). Tucson: Communication Skill Builders.</span></span></div>
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<div>
<br />
<span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><b>How to Teach Your Child to get Dressed</b></span></span></div>
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<ul><table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; margin-left: 1em; text-align: right;"><tbody>
<tr><td style="text-align: center;"><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhdBgojwmbFU55TXymyPy0x_VdisjjlCHjHP_buVfhfZpkRU3LlYZiRHOx2SA33rtX1tm6NQHsIyvb24ecg2CHMby0hO3WPvikSKDmYtN_QIp2qawBitesL3OnfE2IIYgsMrMNCCcpzZls/s1600/photo%252815%2529.JPG" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhdBgojwmbFU55TXymyPy0x_VdisjjlCHjHP_buVfhfZpkRU3LlYZiRHOx2SA33rtX1tm6NQHsIyvb24ecg2CHMby0hO3WPvikSKDmYtN_QIp2qawBitesL3OnfE2IIYgsMrMNCCcpzZls/s320/photo%252815%2529.JPG" width="258"></a></span></span></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Oh, the hat's the easiest, Jett! But you do look cute!</span></span></td></tr>
</tbody></table>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">First, <b>teach him
how to undress</b>. Once he can do that fine, then he's ready to dress
himself.</span></span></li>
</ul>
<div>
<ul>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><b>Give yourself plenty of time so you don't have to rush or feel anxious.</b> He'll feel the anxiety and can effect him as well. </span></span></li>
</ul>
<ul>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Find
the same spot to do it every morning. Lay out his clothes with shirt
flat and face down, then pants face up, then underwear face up.</span></span></li>
</ul>
<div>
<span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><br /></span></span></div>
<div>
<span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><b>1)
</b> Slowly go through each step w/him yourself, quietly. Use only the key
words described below for each action. Show him what you are doing w/out
expecting him to do it. Use hand over hand for all of the actions, which means to put your hand over his hand and do the action with him. Use the verbal cues according to what processing level your child is at. For an auditory processing of one, use one word "foot." For two, say "Put foot." For three "Put in foot," etc. You don't want to keep a constant flow of words going or he might lose the key word you want him to remember. You can get an explanation of auditory processing <a href="http://dsdaytoday.blogspot.com/2013/07/my-behavior-strategy.html" target="_blank">here</a>. </span></span></div>
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<span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><br /></span></span></div>
<div>
<span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><b>The steps:</b></span></span></div>
<ol>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Say, "Where's your clothes?" or "Where clothes?" or "Clothes?"</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Say, "Oh, here are your clothes!" "Clothes, here!" or "Here!"</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Say "sit." Sit him down in front of the clothes. </span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">"Oh, here's your underwear!"</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Put
on underwear: Have him stick his thumbs in and pinch each side w/both
hands. Just say "thumb" to get his thumb there and then "pinch" for one
side and "thumb" and "pinch" for the other side. </span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Pull the underwear open (not tight though). Say "open."</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Say "foot". He puts one foot in one hole. Say "foot". He puts the other foot in the other hole. </span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Then you say "pull" and pull the underwear up past his knees. </span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">"Stand" Then he holds on to you and stands up. If he can't yet stand, you can have him lay down.</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">"Thumb
front" Then he puts his thumb at his waist band in the front and
pinches. Say "pinch front" and puts his thumb at his waist band in the
back and pinches. Say "pinch back."</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">The "pull up."</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">"Sit" Then he sits back down and does the same process with the pants.</span></span></li>
<li><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">For the shirt, I like head first, then arms, saying "Head" and "arm" "arm"</span></span></li>
</ol>
<div>
<span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><b>2)</b> You actually start teaching him with the <b>last thing first</b>. Depending on the processing level, kids usually only remember the last thing you say, so that's why you start with last task first. Have you noticed that you tell your child "Blah blah blah... don't touch the dog." And then they go and touch the dog? It's because they can only remember the last part of what you say. That's why I also never use the word "don't...." because they might not catch the "don't" part!</span></span></div>
<div>
<span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><br /><b>Day 1</b>, you do the whole thing hand over hand for every action.<br /><b>Day 2</b>, he does the arms part by himself in Step 13, you say "arm" and pause to give him a chance to do it.<br /><b>Day 3</b>, he does both arms himself.<br /><b>Day 4</b>, he does head and arms himself. Once he gets the entire sequence of putting on his shirt, then he will automatically group the actions together in his mind, called "chunking". Then you can just say "shirt" and he can do all the steps involved with putting on his shirt.<br /><b>Day 5</b>, he pulls up the pants himself and then puts on his shirt... etc.</span></span></div>
<div>
<span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Say things like "good try" or "great pinch" each time instead of "good boy." <i>He's always a "good boy", no matter the situation. This activity isn't about his self worth, it's about practicing new skills.</i> :) </span></span></div>
<span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><b><br /></b></span></span>
<span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><b>3)</b> In real life, things are never carefully set out for you each morning! So, after
he has the whole sequence down, then you do things like mess up the
clothes and ask him to lay them right. Then once he can do that, you
have him choose between two different outfits starting with an obviously poor choice and an obviously correct choice, depending on the weather, time etc. Like pajamas verses a raincoat. Then you
have him decide which clothes to wear out of several choices and eventually, the entire drawer. </span></span><br />
<br />
<span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">Before you know it, your child will be one step closer to independence. And you'll have your mornings back! (Or at least enough time for a second cup of coffee.) </span></span><br />
<span style="font-family: Verdana, sans-serif;"><br /><b>Mãe de criança com síndrome de Down explica como ensinar os filhos a se vestirem desde pequenos. Confira: <a href="http://bit.ly/1Jh3S6O">http://bit.ly/1Jh3S6O</a></b></span><script type="text/javascript" defer="defer" src="//script.opentracker.net/?site=dsdaytoday.blogspot.com"></script></div>
Andi Durkinhttp://www.blogger.com/profile/03651762223667606607noreply@blogger.com0tag:blogger.com,1999:blog-1989545445919628676.post-811477145849753642015-04-28T16:24:00.000-04:002017-05-18T18:31:13.520-04:00Jett's Progress<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Even though all of our kids share the T21 diagnosis, each of our kids is created uniquely. About half, like Jett, have had <a href="http://dsdaytoday.blogspot.com/2011/03/preparing-for-heart-surgeryhospital.html">heart surgery</a>... most</span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">, like Jett,</span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"> have <a href="http://dsdaytoday.blogspot.com/2011/04/thyroid-ds-go-hand-in-hand.html">hypoth</a><a href="http://dsdaytoday.blogspot.com/2011/04/thyroid-ds-go-hand-in-hand.html">yroidism</a>... and others have extra challenges that Jett has not had to face. <br /><br />With that said, I do believe that it's because of proper intervention — <a href="http://dsdaytoday.blogspot.com/p/nutrition.html">nutritionally</a>, <a href="http://dsdaytoday.blogspot.com/p/therapy.html">therapeutically</a>, <a href="http://dsdaytoday.blogspot.com/p/medical.html">medically</a> and <a href="http://dsdaytoday.blogspot.com/p/environmental.html">environmentally</a> — that Jett has been able to thrive as he has. I also support Jett's healthy diet with <a href="http://dsdaytoday.blogspot.com/2011/03/complete-protocol.html">supplements</a>. <br /><br />So, <b>I share these videos and information to spark <i>inspiration</i>, not <i>frustration</i>.</b> This is what Jett has been able to do with the supports, strengths and challenges that he has. Your child's victories will be different. Your child will reach some milestones more quickly than Jett and he will have reached some more quickly than your child. I look forward to rejoicing in your child's victories and to give support with your child's challenges. </span></span><span class="Apple-style-span" style="font-family: "verdana" , sans-serif;"><span style="color: #990000;"><b> </b></span></span><br />
<br />
<span class="Apple-style-span" style="font-family: "verdana" , sans-serif;"><span style="color: #990000;"><b>Jett's Milestones</b></span></span><br />
<span style="font-family: "verdana" , sans-serif; font-size: small;"><b><br /></b></span>
<br />
<div>
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; text-align: right;"><tbody>
<tr><td style="text-align: center;"><span style="font-family: "verdana" , sans-serif; font-size: small;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhDvjD_4nXB9mniwJHl1sxAz5T8y3NytYQsv-CDrXpZYDU3Ofo5pxY_nIEb8GuA7DuN76xirWcjJPg3uvYmGwCVlyif6bw7oMnDLSBAylikzjpTS64is9AQz2aMTngzLlKwg7CJTqtfS8E/s320/Jettpumpkins3.jpg" width="277" /></span></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: "verdana" , sans-serif; font-size: small;">The cutest pumpkin in the patch! 20 months</span></td></tr>
</tbody></table>
<span style="font-family: "verdana" , sans-serif; font-size: small;">Jett rolled over at <b>5 months</b> and drank from a straw at <b>6 months</b> (the day before his heart surgery). He said his first meaningful word at <b>8 months</b>, his first two-word sentence at <b>11 months</b> (but didn't again until about 17 months). This post explains what I did to <a href="http://dsdaytoday.blogspot.com/2011/03/getting-your-baby-to-communicate.html" target="_blank">support his speech</a>. </span><br />
<br />
<span style="font-family: "verdana" , sans-serif; font-size: small;">At <b>10 months old</b>, he no longer went #2 in his diaper. We practiced Elimination Communication. At <b>12 months old</b>, he went #2 in the adult toilet for the first time. Here's how we <a href="http://dsdaytoday.blogspot.com/2011/03/its-potty-time.html" target="_blank">supported potty training</a>.</span><br />
<span style="font-family: "verdana" , sans-serif; font-size: small;"> </span><br />
<span style="font-family: "verdana" , sans-serif; font-size: small;">At <b>13 months old</b>, he was four-point crawling after many months of army crawling, which is important for development. Here's what you can do to <a href="http://dsdaytoday.blogspot.com/2011/03/teaching-your-baby-to-crawl.html" target="_blank">support proper crawling</a>. </span><br />
<span style="font-family: "verdana" , sans-serif; font-size: small;"><br /></span>
<span style="font-family: "verdana" , sans-serif; font-size: small;">At <b>14 months</b>, he pulled himself up to lean against me and furniture and could walk a few steps when assisted (just as a test). </span><br />
<br />
<span style="font-family: "verdana" , sans-serif; font-size: small;">At his <b>16 month</b>
speech evaluation, his language skills, both receptive and expressive,
were deemed "average for his age"! At 16 months, he was a master stair
climber (on hands and knees) and has a great love of words and books.
Here you can see <a href="http://dsdaytoday.blogspot.com/2011/07/jett-reading-at-16-months.html" target="_blank">Jett pretending to read at 16 months. </a></span></div>
<div>
<span class="Apple-style-span" style="font-family: "verdana" , sans-serif;"><span style="font-size: small;"><br /></span></span>
<span class="Apple-style-span" style="font-family: "verdana" , sans-serif;"><span style="font-size: small;">At <b>17 months</b>,
he started sight reading! The words he first could recognize were:
craaaaack, gulp, hug and whoosh. (I guess that reveals a little about
his fun personality since all but one word is an onomatopoeia. He didn't
always say the word, but loved to hear you read it out loud. Oh, and
when he pointed to "hug," he expected you to hug him.) Here's a video of
him reading at <b>18 months</b>: </span><span style="font-size: small; min-height: 50px;"><a href="http://durkinworks.blogspot.com/2011/09/jett-and-magnadoodle.html" rel="" target="_blank">at my husband's blog.</a></span> And another of <span style="font-size: small;"><a href="http://dsdaytoday.blogspot.com/2011/10/sharing-inspiration-to-support-yamini.html" target="_blank">Jett reading 9 words in 1 minute 40 seconds.</a></span><span style="font-size: small; min-height: 50px;"> This post explains what I did to <a href="http://dsdaytoday.blogspot.com/2011/03/teaching-your-baby-to-read.html" target="_blank">support his reading skills</a>.</span></span></div>
<span class="Apple-style-span" style="font-family: "verdana" , sans-serif;"><span style="font-size: small; min-height: 50px;"><br /></span></span>
<span class="Apple-style-span" style="font-family: "verdana" , sans-serif;"><span style="font-size: small; min-height: 50px;">At <b>21 months</b>,
he has started to sound out words; "bus" was first. After that, he
attempted to read any and all words out loud. It's amazing to me! It was
so fun and rewarding to point to a word while I'm reading and hear him
joyfully pronounce it. (A favorite book to read with me at this age was <b>Whoo Goes There?</b>) Also, this month, he gave me his first hug and kiss (after taking <a href="http://dsdaytoday.blogspot.com/2011/12/neuroprotek-for-those-with-t21.html" target="_blank">Neuro</a><span style="font-family: "verdana" , sans-serif;"><a href="http://dsdaytoday.blogspot.com/2011/12/neuroprotek-for-those-with-t21.html" target="_blank">Protek</a>)</span>. And it was the first time he really gave me good eye contact.</span></span><br />
<br />
<span class="Apple-style-span" style="font-family: "verdana" , sans-serif;"><span style="font-size: small; min-height: 50px;">Here's </span><span style="font-size: small;"><a href="http://dsdaytoday.blogspot.com/2012/02/jett-reading-out-loud.html" target="_blank">Jett Reading Out Loud at <b>23 Months</b></a></span><span style="font-size: small; min-height: 50px;">.</span></span><br />
<br />
<span class="Apple-style-span" style="font-family: "verdana" , sans-serif;"><span style="font-size: small; min-height: 50px;"><span class="Apple-style-span" style="font-family: "verdana" , sans-serif;"><span style="font-size: small;">At <b>24 months</b>, he could do the
large-pieced wooden puzzles (like Melissa & Doug brand) on his own.</span></span> </span></span><br />
<span class="Apple-style-span" style="font-family: "verdana" , sans-serif; font-size: small;"><span style="min-height: 50px;"><br /></span></span>
<span class="Apple-style-span" style="font-family: "verdana" , sans-serif; font-size: small;"><span style="min-height: 50px;">At </span><b>25 months </b>old, Jett read a whole <span class="il">book</span> out loud, by himself for <span class="il">the</span> first time. It was 27 pages long — <b><span class="il">The</span> <span class="il">Eye</span> <span class="il">Book</span></b> by Dr. Seuss. It's late kindergarten level.</span><br />
<span class="Apple-style-span" style="font-family: "verdana" , sans-serif; font-size: small;"><br /></span>
<span class="Apple-style-span" style="font-family: "verdana" , sans-serif; font-size: small;">At <b>27 months</b>, he sang "Twinkle twinkle <span class="il">little</span>
star, how I wonder what you are" completely on his own (just that
stanza) and I hadn't been singing it at all that day either! So,
although his expressive language (words coming from his own head and not
mimicking) does need work, it is coming along nicely.</span><br />
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<span class="Apple-style-span" style="font-family: "verdana" , sans-serif;"><span style="font-size: small;">At <b>28 months</b>, he loved to explore the house and get into everything he
could. His favorite things to play with were my purse, the contents of
the grocery bags, the utensils from the dishwasher and the sandbox.
(Yes, he ha<span style="font-size: small;">d</span> toys </span><span style="font-size: small;">— I
promise! He still loved his magnadoodle.) He has been using his potty
for #2, since about 11 months old (it happened before we realized it so
we're not sure when this started).</span></span>
<span class="Apple-style-span" style="font-family: "verdana" , sans-serif;"><span class="Apple-style-span" style="font-size: small;">At this time,
he would tell us when he's hungry ("hungry" "bite" "piece" "food" and
"eat"), what he wants to eat ("beans", "rice," "soup", "pizza" [gluten
and casein free], "yogurt", "avocado" and "chicken" most often), when
he's thirsty ("cup," "drink," "thirsty," "milk," "sip," "water," "juice"
and "coconut [water]"). And he lets us know what he wants to do like
"outside," "book," "bath" and "computer" </span><span class="Apple-style-span" style="font-size: small;">—</span><span class="Apple-style-span" style="font-size: small;"> with
his requests for "Mary Poppins," "Readeez" and "Winnie da Pooh" about
250 times a day. And he tells us when he's "hurt", "happy" and "hot." He
tells us to "hurry" and "stop it." He also says "I love you so much!"
but not that many other phrases</span><span class="Apple-style-span" style="font-size: small;">—</span><span class="Apple-style-span" style="font-size: small;">from his own head.</span></span><br />
<br />
<span class="Apple-style-span" style="font-family: "verdana" , sans-serif;"><span class="Apple-style-span" style="font-size: small;">Jett could recognize and name numbers 0 to 100. (He says
"ten-ten" for one hundred, for some reason.) He does count with me, but I
have no idea if he has a concept of numbers yet. (Maybe he understands
one, two and three? He seems to get those right...) He does know
triangle, square, circle, rectangle and oval. This is what we did to <a href="http://dsdaytoday.blogspot.com/2012/08/teaching-your-young-child-math.html" target="_blank">support his math skills</a>. </span></span><br />
<br />
<span class="Apple-style-span" style="font-family: "verdana" , sans-serif; font-size: small;">At <b>33 months</b>,
he uses such sentences spontaneously and appropriately as: I dropped
it! No, thank you. This is cold/soft/Brittany, etc. Where's the pillow?
Mommy sit! I got it! Hmm let's see. Mommy…Daddy… Jett...together…
family! He now can sing over 50 songs while they play and sometimes on
his own, just from memory. (Most impressive is "Lordly is the Life I
Lead" from Mary Poppins.) </span><br />
<span class="Apple-style-span" style="font-family: "verdana" , sans-serif;"><span style="font-size: small;">He started to verbally
let me know when he has to go #2. </span></span><br />
<span class="Apple-style-span" style="font-family: "verdana" , sans-serif;"><span style="font-size: small;">And he can do an 8 piece jigsaw puzzles on his own without too
much frustration.</span></span><br />
<br />
<span class="Apple-style-span" style="font-family: "verdana" , sans-serif;"><span style="font-size: small;">At
<b>34 months</b>, he knew the concept of 0-10. He says "empty" to explain
"zero." And he knew all his shapes, even complicated ones. I put both
hands together and said, "a heart" and he tried to do it and said, "a
polygon!" Late
into his third year, Jett could also count by tens, identify patterns of 3
or less, sort and classify like items and add and subtract physical
objects (not on paper, with symbols). </span></span><br />
<span class="Apple-style-span" style="font-family: "verdana" , sans-serif; font-size: small;"><br /></span>
<span class="Apple-style-span" style="font-family: "verdana" , sans-serif; font-size: small;">At <span style="color: #990000;"><b>36 months</b></span>, he enjoys activity magazines such as <a href="http://www.highlights.com/high-five-magazine-for-kids" target="_blank">Highlights' High Five</a>
or NWF's Wild Animal Baby magazine that has stories, I Spy and cooking
and craft activities. Yesterday, he said: "There's a mouse. A mouse goes
'squeak, squeak, squeak' everywhere!" He also enjoys his Pre-K
worksheets where he loves to practice writing using a dry erase marker.
He now substitutes lyrics to change up songs and make them express what
is going on that day.</span><br />
<br />
<span class="Apple-style-span" style="font-family: "verdana" , sans-serif; font-size: small;">Jett stood independently and walked the same day, at <span style="color: #990000;"><b>3 years old</b></span>. He had a previously undiagnosed spinal issue. Once it was addressed, he stood and took his first tentative steps the next day! See <a href="http://dsdaytoday.blogspot.com/2013/01/walking-and-children-with-down-syndrome.html" target="_blank">Walking and Children with Down Syndrome</a> to learn what I wish I would have known! </span><br />
<br />
<span class="Apple-style-span" style="font-family: "verdana" , sans-serif; font-size: small;"><span class="Apple-style-span" style="font-family: "verdana" , sans-serif; font-size: small;">His auditory processing reached a level 3 at <b>3 years, 3 months</b>.</span> At <b>3 years, 4 months</b>,
he said his first 6-word sentence (that he made up and that I'm aware
of): "No one will sing the blackbird song!" (It was late and we were too
tired to indulge him.)</span><span class="Apple-style-span" style="font-family: "verdana" , sans-serif; font-size: small;"><b><span class="Apple-style-span" style="color: #990000;"> </span></b></span><br />
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<span class="Apple-style-span" style="font-family: "verdana" , sans-serif; font-size: small;"><span class="Apple-style-span">Video of Jett</span>,
three years old, reading a word in English, translating it to Japanese
and then spelling the word using hiragana, the Japanese alphabet: <a href="https://www.youtube.com/watch?v=llDeNMBSdEA">https://www.youtube.com/watch?v=llDeNMBSdEA</a></span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiTzmVpCSk4d-kxBB1Z63LaXgVGOIrlodpDButJGnY9BDM7Ovo0rZxGKO8kEigMuzftOspxyIzyKExgqdgQR85OfT24SmJKBk-LJndOFCK_JM9vFUs8iJAMtPn_XOrmv94SZWyYCx8fGyw/s1600/Jett+holding+hands.jpg" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiTzmVpCSk4d-kxBB1Z63LaXgVGOIrlodpDButJGnY9BDM7Ovo0rZxGKO8kEigMuzftOspxyIzyKExgqdgQR85OfT24SmJKBk-LJndOFCK_JM9vFUs8iJAMtPn_XOrmv94SZWyYCx8fGyw/s1600/Jett+holding+hands.jpg" width="153" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Jett, 4 years old</td></tr>
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<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">At<span style="color: #990000;"><b> 4 years old</b></span>, Jett went through 5 hours of testing before he started 4K and he did not qualify as having an intellectual disability nor did he need speech therapy. He reads at a 5th grade level with comprehension at 2nd grade. No, these results are not typical -- not even for a neuro-typical child! <br /><br /> At 4 years old 1 month, we have such conversations as: <br /><br />Jett: What's this? (referring to the song that is playing from The Jungle Book)<br />Me: It's 'I Wanna Be Like You'.<br />Jett: Noooo... Is this jazz?<br /><br /> another<br /><br /> Aunt Suzie: What are you doing?<br />Jett: (playing air guitar wildly) I'm singing the blues!<br />Me: The blues? What other kinds of music is there?<br />Jett: Reggae... Classical... Hip Hop... Salsa… <br /><br /><a href="http://youtu.be/xdgbuCcU_wY">A video of Jett spelling at 4 years old</a>, it was an off day. <br /><br /> Here's a <a href="https://www.youtube.com/watch?v=HJpJv6bzBRs&feature=youtu.be" target="_blank">video of Jett reading</a>. He chose "An Alphabet of Dinosaurs." You'll see why it's hard to get a good video... </span></span><br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">The book has a Lexile® Measure of 830L, which means that the average 4-5th grader reads at that level. </span></span><br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"> At 4 years old, Jett got tested through the local school district and the school psychologist was excited to tell me that Jett could do all the math, including adding and subtracting (using pictures and manipulatives -- but the math "sentences" like 2+2=?, he didn't get all of those right, but he did get some right!) </span></span><br />
<br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Here is Jett right after he turned <span style="color: #990000;"><b>5 years old</b></span>, doing a little <a href="https://youtu.be/Z6jTm4nwhj8" target="_blank">PSA for World DS Day</a>. Turn up the volume and turn on the subtitles. <br /><br />Since Jett is so short, he just starting going #1 standing up at 5 years old while standing on a stool. (He's the size of a 3 year old because we haven't been able to get him on growth hormone treatment yet.) He's rather proud of this, so I had to include it. :)<br /><br /> He's able to write all of the letters of the alphabet independently, using the magna doodle. It has a very smooth surface that is easier to use than paper and pencil. He knew them all very early, but writing is his biggest challenge. Here's what we did to <a href="http://dsdaytoday.blogspot.com/2011/10/handwriting-resources.html">support his handwriting skills</a>. </span></span><br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><br /></span></span>
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">At 5 1/2 years old, Jett wrote his first word on his own -- thought of it, knew how to spell it and wrote it. It was close to the end of summer and I had a local teen come by to work with him on his handwriting -- just through certain physical activities -- like playing tug of war and using the monkey bars -- not by having him sit down to write. And so I hadn't asked him all summer to write for me. Finally I got the Magnadoodle out and said, "Jett, will you write your name for me?" </span></span><br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><br /></span></span>
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">He said, "No, but I'll write Ludwig von Beethoven's name." And he took the pen and wrote the capital "L" very large in the middle of the screen with the small "u" and "d" next to it. He ran out of space so he put the "w" very big above the "L" and squeezed in the "i" but ran out of space. So he wrote the "g" all the way to the left of the screen. Of course, by that time, he had no room for the rest of Beethoven's name, but I was so excited! The first word he wrote completely on his own was "Ludwig". So very "Jett"! His fine motor skills are finally catching up to his brain!! I can't wait to see what he does next! (I did run to get my camera to take a picture of it but he erased it before I got ba<span style="font-family: "verdana" , sans-serif;">ck.)</span></span></span><br />
<span style="font-size: small;"><br /></span>
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">At five, he taught himself all 50 states, all the names of the US presidents<span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"> and the <span style="font-family: "verdana" , sans-serif;">Greek</span> alphabet. He's learning lots of <span style="font-family: "verdana" , sans-serif;">Spanish and (with the introduction of anti<span style="font-family: "verdana" , sans-serif;">fungal<span style="font-family: "verdana" , sans-serif;">)</span></span> is <span style="font-family: "verdana" , sans-serif;">becoming more social -- playing with peers. (He's very social with adults just not c<span style="font-family: "verdana" , sans-serif;">hildren.) He's <span style="font-family: "verdana" , sans-serif;">ev<span style="font-family: "verdana" , sans-serif;">en letting his 2 year old <span style="font-family: "verdana" , sans-serif;">brother hu<span style="font-family: "verdana" , sans-serif;">g him<span style="font-family: "verdana" , sans-serif;">. <br /><br /><span style="font-family: "verdana" , sans-serif;"><span style="color: #990000;"><b>A</b></span><span style="font-family: "verdana" , sans-serif;"><span style="color: #990000;"><b>ge <span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;">6</span></span></b></span> has been the year for his biggest creative and social gains. Upon introduction of fava bean extract and lotus seeds<span style="font-family: "verdana" , sans-serif;">, Jett started to feel a whole range of em<span style="font-family: "verdana" , sans-serif;">otions and even empathy. And with the addition of </span></span>the QRI C<span style="font-family: "verdana" , sans-serif;">old Laser Home Program, <span style="font-family: "verdana" , sans-serif;">h<span style="font-family: "verdana" , sans-serif;">is</span> social <span style="font-family: "verdana" , sans-serif;">skills</span> have increased dramatically<span style="font-family: "verdana" , sans-serif;">. He</span> has made <span style="font-family: "verdana" , sans-serif;">friends</span> with his little brother and finally enjoys playing with him.</span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span><br />
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<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span class="fbPhotosPhotoCaption" data-ft="{"tn":"K"}" id="fbPhotoSnowliftCaption" tabindex="0"><span class="hasCaption"><span style="font-family: "verdana" , sans-serif;">And h</span>ere's
Jett enjoying a conversation with Jonovin, a boy in his upcoming class,
during a play date. Yep! Jett... Enjoying a conversation... with a
friend... During a play date... Bye bye symptoms of ASD! Hello engaged<span style="font-family: "verdana" , sans-serif;">
childhood!</span></span></span><span style="font-family: "verdana" , sans-serif;"> </span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span><br />
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<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="font-size: x-small;"><br /></span><span data-ft="{"tn":"K"}"><span class="UFICommentBody"><span data-ft="{"tn":"K"}"><span class="UFICommentBody">In this picture, he drew a Jabberwocky from <i>Through the Looking Glass</i>. (What we are
reading before bed.) I'm happy he can have fun with crayons! (Both my husband and I are artists.)</span></span></span></span></span></span><br />
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<tr><td class="tr-caption" style="text-align: center;">I love this one! Looks like stained glass.</td><td class="tr-caption" style="text-align: center;"><br /></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgumu9_M4CPQQtOeosrFVRoZib5F-FRXL78SG4BnFsw2p-pjKismNMa3NPuA4ezfxrv4eS3-e_9B4wtrbfWaCuB2C1XVMSlSWZGvMa5vXhX_PYTqgrdJblVlcFWsMW2z5AlgML7CdMaKjI/s1600/FullSizeRender%252840%2529.jpg" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="308" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgumu9_M4CPQQtOeosrFVRoZib5F-FRXL78SG4BnFsw2p-pjKismNMa3NPuA4ezfxrv4eS3-e_9B4wtrbfWaCuB2C1XVMSlSWZGvMa5vXhX_PYTqgrdJblVlcFWsMW2z5AlgML7CdMaKjI/s320/FullSizeRender%252840%2529.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Jett loves cats.</td><td class="tr-caption" style="text-align: center;"><br /></td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhKovtdx1FrtJ0MFDce86HF3yKb4eT4TjowDIh6TTVA6s3yuGdWGFKqg1byWFAjWmulDjtS3N2uJAAnVWIj3v2laviRmwiUALA6h4r8_THUsmV8coFmQym8iX3GmrPl-16GiZ0zFwiL-6E/s1600/IMG_2582.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhKovtdx1FrtJ0MFDce86HF3yKb4eT4TjowDIh6TTVA6s3yuGdWGFKqg1byWFAjWmulDjtS3N2uJAAnVWIj3v2laviRmwiUALA6h4r8_THUsmV8coFmQym8iX3GmrPl-16GiZ0zFwiL-6E/s320/IMG_2582.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Jett does a lot of these crayon paintings.</td><td class="tr-caption" style="text-align: center;"><br /></td></tr>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiHZiYIbHF6S3fOgFWJiLXdoAN6poBkGYKbIU1JeEAEAggch7kl0nJXv-7nSjPnHwhlO6thBAEWN6yt9jCto7B_mullGQ1ahpb6CJXjmMqFH-KoXCeZ9TzW0oTpQQprq6QHg5mI-5m1NgU/s1600/FullSizeRender%252839%2529.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiHZiYIbHF6S3fOgFWJiLXdoAN6poBkGYKbIU1JeEAEAggch7kl0nJXv-7nSjPnHwhlO6thBAEWN6yt9jCto7B_mullGQ1ahpb6CJXjmMqFH-KoXCeZ9TzW0oTpQQprq6QHg5mI-5m1NgU/s320/FullSizeRender%252839%2529.jpg" width="253" /></a></div>
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<span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">This is the work/reading comprehension that Jett is doing in school. He dictated the answers rather than write them because it would take him too long to write it in the time allotted. This is the work that they pull Jett out of his classroom for since he's ahead of his neurotypical classmates.</span></span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEirpPsl4kK9IBoDvZGL1H6dwzmNYWpP8pqTJtim6KmTQ1_qm315Vo1jBnH1FyIB-tHSVTYF9toqHfHzY1CZ6h_QuSsrDyK3Ztqnx_sKVrN7UbY0aUp1Va7CM3M9o9LJ1xAvy4VENkxlGWo/s1600/IMG_4276.JPG" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEirpPsl4kK9IBoDvZGL1H6dwzmNYWpP8pqTJtim6KmTQ1_qm315Vo1jBnH1FyIB-tHSVTYF9toqHfHzY1CZ6h_QuSsrDyK3Ztqnx_sKVrN7UbY0aUp1Va7CM3M9o9LJ1xAvy4VENkxlGWo/s320/IMG_4276.JPG" width="240" /></a></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgizqVUhwtlYyFMQzuvI1LiqyibuQCcG2Com2Fb-efLhTb9x6EDZ3cO1On4C_i_iOL0S7lM9-oUvIRoX3Z-JfjQ4zALX5SZNJYpI4XmoObcX93WR24nWmi-carOvADT1zWQ-DRW7D-J6JI/s1600/IMG_4277.JPG" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgizqVUhwtlYyFMQzuvI1LiqyibuQCcG2Com2Fb-efLhTb9x6EDZ3cO1On4C_i_iOL0S7lM9-oUvIRoX3Z-JfjQ4zALX5SZNJYpI4XmoObcX93WR24nWmi-carOvADT1zWQ-DRW7D-J6JI/s320/IMG_4277.JPG" width="240" /></a><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"> </span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj6D4vzJ9M8JApq9-Ap2cjGPjcxdOXwVP1f1bXqHiwvms0BuH1JZahXwuGJnE5hMwnpfvaEGNCzNL-2NnWy4eNOlSNPDbTGx3dquTQmUAsYE9SV7LEXOyE-B72Btu3apUJAv9OUF7pqqjA/s1600/FullSizeRender%252838%2529.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj6D4vzJ9M8JApq9-Ap2cjGPjcxdOXwVP1f1bXqHiwvms0BuH1JZahXwuGJnE5hMwnpfvaEGNCzNL-2NnWy4eNOlSNPDbTGx3dquTQmUAsYE9SV7LEXOyE-B72Btu3apUJAv9OUF7pqqjA/s320/FullSizeRender%252838%2529.jpg" width="262" /></a></div>
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;">Early in his <span style="color: #990000;"><b>7th year</b></span>, Jett has come out of his shell even more. He </span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;">performed in his class circus as a <span class="highlightNode">tiger <span style="font-family: "verdana" , sans-serif;"><span style="font-family: "verdana" , sans-serif;">onstage with the dancing bears</span></span></span><span style="font-family: "verdana" , sans-serif;"> c</span>omplete with loud music, face painting, singing, dancing and doing tricks<span style="font-family: "verdana" , sans-serif;">! </span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span><span style="font-family: "verdana" , sans-serif; font-size: small;"> <span data-ft="{"tn":"K"}"><span class="UFICommentBody">I
asked Jett what he thought about being in the circus. He said, "It was crazy,
fun, wild and different." He said being onstage was "cool".</span></span></span><br />
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<iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.blogger.com/video.g?token=AD6v5dyS1v3Sv4qosYws2c7baBa82R3OP75OMieExfm_9IpcyecwVp034i2To-tk0HqY-SV1X27336XbkIHKTHLxPg' class='b-hbp-video b-uploaded' frameborder='0'></iframe></div>
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<span style="font-family: "verdana" , sans-serif;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody">My camera kept shutting off, but here is another part:</span></span></span><br />
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<iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.blogger.com/video.g?token=AD6v5dzPh7GFbzLNyicLOTHxL3WBVuUxmeyvHrqjdrxWkuIW5tTPiTQ5OD0JBLymocHahl_q1eRnyr7L0uVpQYnz0g' class='b-hbp-video b-uploaded' frameborder='0'></iframe></div>
<span style="font-family: "verdana" , sans-serif;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody"><br /></span><script type="text/javascript" defer="defer" src="//script.opentracker.net/?site=dsdaytoday.blogspot.com"></script></span></span>Andi Durkinhttp://www.blogger.com/profile/03651762223667606607noreply@blogger.com0tag:blogger.com,1999:blog-1989545445919628676.post-24926764519622533882015-04-17T21:40:00.002-04:002017-05-18T18:31:39.928-04:00Lithium orotate<span style="color: #990000;"><b><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Our Experience</span></span></b></span><br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><br /></span></span>
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">I started Jett at </span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">3 years, 10 months old on </span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">lithium orotate</span></span> because of all the possible benefits to the brain. With only 5mg a day, the rest of his sound sensitivity and teeth grinding went a way! Yeah! (I'm now able to only give 2.5 mg and get the same results.) I knew that both issues were mineral related and so I had seen great results with magnesium alone, but once I added the LO, they went away completely. So now I can finally vacuum without him freaking out. I can use the blender, even when he's in the room! And we can go to parties without having to leave early or take him into another room or outside for awhile to decompress from the sound </span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">over stimulation. I haven't exposed him to fire engines... his worst sound sensitivity yet, though! But he's fine with his baby brother crying (after about three months, he was okay even without the LO.)</span></span><br />
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<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">At five years old, </span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">every
once in a while, in the middle of the night, I hear Jett grind his teeth
for a couple of seconds, but that's it. (We sleep in the same room.) And if he misses his dose of either the LO or
magnesium, the sound sensitivity comes back just as badly within a day or two. So, LO is one of his must-have supplements.</span></span></span></span><br />
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<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><br /></span></span></span></span>
<span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;"><b><span style="color: #990000;">Note:</span> Before starting, make sure that your child's thyroid is functioning properly.</b> According to <a href="http://thyroid.about.com/od/relatedconditions1/a/lithium_bipolar.htm">this article</a> (which is about prescription lithium, not lithium orotate), your child needs to have a complete thyroid test before starting LO treatment. Jett's thyroid was properly treated before starting LO and no thyroid antibodies were present. Once on LO, make sure your child gets thyroid testing every six months or yearly.</span></span><br />
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<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="background-color: rgba(255, 255, 255, 0);"><br /></span></span></span>
<span style="color: #990000;"><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><b>What is Lithium Orotate?</b></span></span></span><br />
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<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Most people have heard of lithium used as treatment for bipolar disorder, mania and depression. But that is </span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">lithium <i>carbonate</i> and lithium <i>citrate</i> -- </span></span>the pharmaceutical forms of lithium, which are chemical extracts unlike the naturally occurring mineral, lithium <i>orotate (LO)</i>.<br /><br />LO is not a drug. Just like calcium and potassium, lithium is something that every human body requires for mental and physical health.<br /><br />LO is different than the other forms of the mineral. Whereas pharmaceutical drug forms of lithium require high doses to get into our cells, lithium orotate is only needed in a small amount because about 97% of it gets into the cell. The other great news is that unlike its pharmaceutical counterparts, lithium orotate is non-toxic, safe, has little side effects, and works on 70% to 80% of people who use it.</span></span><br />
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<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">LO's bio-availability allows the
mineral to penetrate the mitochondria, glia and lysosomes within our cells. The mineral stabilizes
these lysosomal membranes, slowing the enzymatic reaction that leads to
many of the negative side effects of other forms of lithium salts.</span></span> </span></span><br />
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<span style="color: #990000;"><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="background-color: rgba(255, 255, 255, 0);"><b>Overview of Benefits</b></span></span></span></span></h2>
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<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><b>Brain Protection</b><br />Studies show that LO can actually rejuvenate and build the grey matter nerve cells in the brain by up to three percent. (Hey, I'll take that!)<br /><br /><b>Anti-Aging Effects</b><br />Small amounts of LO have been shown to offer anti-aging effects to the brain.<br /><br /><b>Neuroprotection From Environmental Toxins</b><br />LO has been shown to protect the system from numerous toxins, particularly in the grey matter of the brain.</span></span><br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"></span></span><br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><b>Helps transport folate and Vitamin B12 into cells</b> Without adequate Lithium, Vitamin B12 and Folate cannot get into cells and just floats around in the blood. Often due to a lithium deficiency, it may appear that the B12 level is adequate or even elevated B12 when in fact little of it is getting into cells where it is really needed.</span></span><br />
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<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><b>Increases Lymphocytes</b></span></span><br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Lithium may increase the creation of more </span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">white blood cells -- </span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">lymphocytes. </span></span><br />
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<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><br /><span style="color: #990000;"><b>Precautions</b></span></span></span><br />
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<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Lithium should not be taken by those with renal or cardiovascular diseases, severe dehydration or exhaustion, sodium depletion, or in individuals using any form of diuretics or ACE inhibitors.</span></span><br />
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<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Also lithium works in balance with iodine. So, I do give Jett some iodine. I just put in a drop of kelp extract into a full bottle of water then, I shake that up and label the bottle "Iodine Water" then I add a little of that mixture to another full bottle of water. It is VERY easy to overdose by using kelp drops. One drop goes a LONG way!</span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"> (In fact, I had given Jett too much potassium that way and thought it was from the lithium, but it was the kelp drops. I found out about the potassium through a hair analysis.)</span></span>
<span style="font-size: small;"><span style="color: #990000; font-family: "verdana" , sans-serif;"><b> </b></span></span><br />
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<span style="font-size: small;"><span style="color: #990000; font-family: "verdana" , sans-serif;"><b>Side Effects</b></span></span><br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><br /> In <a href="http://www.ncbi.nlm.nih.gov/pubmed/3718672">one study</a>, eight (of forty two people) showed side effects such as muscle weakness, loss of appetite or mild apathy. <br /><br />Again, although no studies have been made on LO and the thyroid, other forms of lithium have been known to affect the thyroid so test for thyroid issues before and during use and keep the dose as low as you can.</span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><br /></span></span>
<span style="color: #990000;"><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="background-color: rgba(255, 255, 255, 0);"><b> </b></span></span></span></span><br />
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<span style="color: #990000;"><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="background-color: rgba(255, 255, 255, 0);"><b>Research on lithium in relation to Down syndrome</b></span></span></span></span><br />
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<b style="font-family: Verdana, sans-serif;"><a href="http://www.sciencedaily.com/releases/2012/12/121203121630.htm" target="_blank">Lithium restores cognitive function in Down syndrome mice</a> </b><br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Date: December 3, 2012 <br />Source: Journal of Clinical Investigation <br />Summary: Researchers report that lithium, a drug commonly used for the treatment of mood disorders in humans, restores neurogenesis in the hippocampus, a part of the brain strongly associated with learning and memory.</span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="background-color: rgba(255, 255, 255, 0);"></span></span></span><br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="background-color: rgba(255, 255, 255, 0);"><br /></span></span></span>
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><a href="http://www.sciencedaily.com/releases/2013/10/131022170726.htm" target="_blank"><b>Gene-silencing strategy opens new path to understanding Down Syndrome </b></a><br />Date: October 22, 2013 <br />Source: American Society of Human Genetics <br />Summary: Inspired by natural process that silences one copy of female mammals' two sex-determining X chromosomes during embryonic development, researchers develop way to silence extra chromosome of Trisomy 21.</span></span><br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><br /><a href="http://www.sciencedaily.com/releases/2013/07/130717132330.htm" target="_blank"><b>Scientists show proof-of-principle for silencing extra chromosome responsible for Down syndrome </b></a><br />Date: July 17, 2013 <br />Source: University of Massachusetts Medical School <br />Summary: Scientists have established that a naturally occurring X chromosome "off switch" can be rerouted to neutralize the extra chromosome responsible for trisomy 21, also known as Down syndrome, a genetic disorder characterized by cognitive impairment. The discovery provides the first evidence that the underlying genetic defect responsible for Down syndrome can be suppressed in cells in culture.</span></span><br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><br /></span></span>
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><a href="http://www.sciencedaily.com/releases/2013/09/130904140946.htm" target="_blank"><b>Experimental compound reverses down syndrome-like learning deficits in mice </b></a><br />Date: September 4, 2013 <br />Source: Johns Hopkins Medicine <br />Summary: Researchers have identified a compound that dramatically bolsters learning and memory when given to mice with a Down syndrome-like condition on the day of birth. The single-dose treatment appears to enable the cerebellum of the rodents' brains to grow to a normal size. This is promising research involving sonic hedgehog. <br /><br /><a href="http://www.sciencedaily.com/releases/2013/09/130911131953.htm" target="_blank"><b>Faulty stem cell regulation may contribute to cognitive deficits associated with Down syndrome </b></a><br />Date: September 11, 2013 <br />Source: Stanford University Medical Center <br />Summary: The learning and physical disabilities that affect people with Down syndrome may be due at least in part to defective stem cell regulation throughout the body, according to researchers. </span></span><br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="color: #990000;"><b><br /></b></span></span></span>
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="color: #990000;"><b><br />Dosage</b></span></span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"> </span></span><br />
<br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">To receive the benefits of anti-aging for the brain, neuroprotection from toxins etc., </span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">120 mg (~<b>5 mg of elemental</b>)</span></span> daily is suggested. BUT, for the DS population, it's best to keep the dose as low as possible. For Jett, he takes 2.5 mg (1/2 a capsule) once a day, which seems to be working well for him.</span></span><br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><br /></span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Consider starting with 1/2 capsule </span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">of 120 mg (~<b>2.5 mg of elemental</b>)</span></span></span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"> once a day.</span></span> </span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">If symptoms persist, increase to </span></span>1 tablet/capsule of 120 mg (~<b>5 mg of elemental</b>) once a day. If symptoms still persist, add a second dose. An adult or older child may need a dose of three times per day. </span></span><br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><br /></span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><b>Less is more:</b> I gave Jett a dose of 5 mg and then gave it twice a day until his symptoms went away. Then I went back down to 5 mg a day to see what would happen. I was able to stay at that dose since his symptoms subsided. Recently, I went down to 2.5 mg and saw that his symptoms are alleviated with that low of a dose.</span></span><br />
<br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Also, a daily supplement of 300-400 mcg folate is recommended as it enhances the brain's ability to utilize the protective properties of lithium orotate. </span></span><br />
<br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Dosage would continue with a small amount over a long period of time.</span></span><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"> </span></span></span></span><br />
<br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"></span></span><br /><span style="color: #990000;"><b>Sources</b></span></span></span><br />
<div class="im" style="border-collapse: collapse; color: #500050;">
<br />
<a href="http://www.globalhealingcenter.com/natural-health/lithium-orotate/" target="_blank"><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Global Healing Center Lithium Orotate</span></span></a><br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><a href="http://www.globalhealingcenter.com/natural-health/is-lithium-orotate-good-or-bad-for-you/" target="_blank">Global Healing Center Is Lithium Orotate Good or Bad for you</a></span></span><br />
<a href="http://www.onlineholistichealth.com/supplements-2/trace-minerals/lithium.html" target="_blank"><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Online Holistic Health</span></span></a><br />
<a href="http://mysite.verizon.net/res003jh/lithium-orotate/index.html" target="_blank"><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Lithium Orotate</span></span></a><br />
<br />
<br />
<span style="color: #990000;"><b><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Related Posts</span></span></b></span><br />
<br />
<span class="Apple-style-span" style="font-family: "verdana" , sans-serif;"><a href="http://dsdaytoday.blogspot.com/2011/03/complete-protocol.html" target="_blank">How to get started with supplementation</a></span><br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><a href="http://dsdaytoday.blogspot.com/2011/11/importance-of-magnesium.html">The Importance of Magnesium in the DS Population</a><br /><a href="http://dsdaytoday.blogspot.com/2011/10/why-supplement-and-monitor-zinc.html">Why Supplement and Monitor Zinc?</a> </span></span><br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><a href="http://dsdaytoday.blogspot.com/2013/03/cerebral-folate-deficiency-in-down.html" target="_blank">Cerebral Folate Deficiency in Down Sydrome</a></span></span><br />
<span class="Apple-style-span" style="font-family: "verdana" , sans-serif;"><a href="http://dsdaytoday.blogspot.com/2011/09/why-b12-folinic-acid-for-down-syndrome.html">Why B12 & Folinic Acid for Down syndrome?</a></span><br />
<a href="http://dsdaytoday.blogspot.com/2011/05/teething.html" target="_blank"><span class="Apple-style-span" style="font-family: "verdana" , sans-serif;">Teeth and Down Syndrome</span></a><br />
<span class="Apple-style-span" style="font-family: "verdana" , sans-serif;"><br /></span><script type="text/javascript" defer="defer" src="//script.opentracker.net/?site=dsdaytoday.blogspot.com"></script>
</div>
Andi Durkinhttp://www.blogger.com/profile/03651762223667606607noreply@blogger.com1tag:blogger.com,1999:blog-1989545445919628676.post-42826983153205431162015-03-27T07:30:00.001-04:002017-05-18T18:32:07.797-04:00Jett is Five Years Old!<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgG0u7Lszyc36GDFybwnIOv12jPgemlp9ZQc_gzLo65zqNpQO9uh1fUPuWB9KHcN4FGuzcsX4IwLmduaY-gJBWOwU3xCMrmfv8s0mZo3eGoemIbtqQFb5q_dTScJj_cxtXNb8Z5-aadoIg/s1600/Jett+Birthday+Mustache.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgG0u7Lszyc36GDFybwnIOv12jPgemlp9ZQc_gzLo65zqNpQO9uh1fUPuWB9KHcN4FGuzcsX4IwLmduaY-gJBWOwU3xCMrmfv8s0mZo3eGoemIbtqQFb5q_dTScJj_cxtXNb8Z5-aadoIg/s1600/Jett+Birthday+Mustache.jpg" height="320" width="233"></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Here's Jett's Birthday Mustache! (Chocolate avocado frosting)</td></tr>
</tbody></table>
<br />
In celebration of Jett turning five,
how about a donation?<br />
<br />
If you have ever been interested in donating to
me, this would be a good time... I have an account at a nonprofit called
Bridge to Healing that matches funds donated towards Jett and Oliver's
alternative therapies and doctor appointments. $10 would be $20, etc. up to $1,000 per child!<br />
<br />
1) Visit <a href="http://bridgetohealinginc.com/about-us-2/" target="_blank">http://bridgetohealinginc.com/project/jett-and-olivers-journey/</a> <br />
2) Just click the donate
button on the right and type Jett and/or Oliver Durkin.<br />
<br />
And if you want
to schedule a Skype or phone appointment with me, I bet $75
donation or above would get you one!! (Just let me know when you donate so that we can
schedule one.) <br />
<br />
The page hasn't been updated, so at 20 months old,
Jett's brother, Oliver can now eat well. Once he was able to eat, he started growing! He can now army crawl is finally attempting to get up on all
fours. And Jett is doing well, but has stopped growing again. So he's the size of a three year old. I'd love to be able to afford to continue therapy and services for both boys.<br />
<br />
Otherwise, you are always welcome to donate on the right. Those donations will go toward their supplements and other care that the Foundation's Fund doesn't cover.<br />
<br />
And anytime you are shopping online, just click the Amazon banner link on the right and I can get a percentage of your purchases at no extra cost to you. <br />
<br />
Thanks for appreciating and helping to support this blog. <br />
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEheyUjkbJ1sN1drMt01sMo1qmr6Bk2vRkfi_4tPWDfx9ofT10A5WGOj4yI8CWp1TpIF5AB6MYTK13KBzwLQL4Vd5i5pAeIBadwPmsGUpS3O9ZM8tJ9oo8xq6SR9zIK6WXLPml8czazA4Y4/s1600/BTHLogo.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEheyUjkbJ1sN1drMt01sMo1qmr6Bk2vRkfi_4tPWDfx9ofT10A5WGOj4yI8CWp1TpIF5AB6MYTK13KBzwLQL4Vd5i5pAeIBadwPmsGUpS3O9ZM8tJ9oo8xq6SR9zIK6WXLPml8czazA4Y4/s1600/BTHLogo.jpg" height="152" width="320"></a></div>
<br />
<a href="http://bridgetohealinginc.com/about-us-2/" target="_blank"><br /><script type="text/javascript" defer="defer" src="//script.opentracker.net/?site=dsdaytoday.blogspot.com"></script></a>Andi Durkinhttp://www.blogger.com/profile/03651762223667606607noreply@blogger.com3tag:blogger.com,1999:blog-1989545445919628676.post-89519927310188023282015-03-21T11:57:00.004-04:002017-05-18T18:32:32.984-04:00Happy World Down Syndrome Day, Juniper!Here's a video message from Jett to his friend, Juniper Naim.<br />
Turn the volume up, click the CC and enjoy!<br />
Feel free to share! <br />
<a href="https://www.blogger.com/%3Ciframe%20width=%22560%22%20height=%22315%22%20src=%22https://www.youtube.com/embed/Z6jTm4nwhj8%22%20frameborder=%220%22%20allowfullscreen%3E%3C/iframe%3E" target="_blank">https://youtu.be/Z6jTm4nwhj8 </a><br />
<br /><script type="text/javascript" defer="defer" src="//script.opentracker.net/?site=dsdaytoday.blogspot.com"></script>
<iframe allowfullscreen="" frameborder="0" height="315" src="https://www.youtube.com/embed/Z6jTm4nwhj8" width="560"></iframe>Andi Durkinhttp://www.blogger.com/profile/03651762223667606607noreply@blogger.com1tag:blogger.com,1999:blog-1989545445919628676.post-48369132494389693912015-02-25T16:24:00.000-05:002017-05-18T18:32:50.302-04:00Need Extra Guidance?<div>
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Need some help putting together a plan for your child? </span></span><br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><br /></span></span>
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Have specific questions?</span></span><br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><br /></span></span>
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Let's get to it!</span></span></div>
<div>
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><br /></span></span>
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">We can chat on the phone or Skype for an hour and then I can send you a personalized action plan in a follow up email.</span></span></div>
<ul><span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">*$100 for an hour. Sliding scale available. </span></span></ul>
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">Simply click here to set up a <a href="http://calendly.com/andidurkin" target="_blank">phone or Skype appointment</a>.<a href="http://calendly.com/andidurkin"></a></span></span><br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><br /></span></span>
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;">If we Skype, there is a chance that Jett will be home and you can meet him
as well. Let me know if that is a priority for you. :)<span class=""> </span></span></span><br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><br /></span></span>
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><span class="">*These blog posts were designed so that you can find your own way and create your own path, but our kids are all individual so, understandably, you may have questions. I would love to continue to provide
this service for free, but the requests are so numerous that it was interfering with my ability to care for my own family. I can't hurt my loved ones to help your loved ones, as I'm sure you can understand!</span></span></span><br />
<span style="font-size: small;"><span style="font-family: "verdana" , sans-serif;"><br /></span></span>
<span style="font-size: small;"><span class="" style="font-family: "verdana" , sans-serif;"><span style="font-size: small;"><i>Any discussion we may have is given as suggestions only
and should not be taken as a professional medical diagnosis or
opinion.</i><span style="font-style: italic;"> I'm not a physician. Be sure to check with yours<span style="font-family: "verdana" , sans-serif;">.</span></span> </span></span></span><br />
<div dir="ltr">
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<ul>
</ul>
Andi Durkinhttp://www.blogger.com/profile/03651762223667606607noreply@blogger.com4tag:blogger.com,1999:blog-1989545445919628676.post-52645833023293783632014-12-27T21:34:00.000-05:002017-05-18T18:33:16.593-04:00Seizures in the Down Syndrome Population: Information and Natural Treatment<span style="color: #990000;"><b><b>How common are s</b>eizure disorders in the DS population?</b></span><br />
<br />
Studies estimate that about 5 to 10% of people with DS have seizures, but in children with DS, approximately 1 to 13% do<span class="highlight"></span>,
with infantile spasm (IS) being the most common seen in the first two years of life. (1) Although the incidence of IS is similar between children with DS and neurotypical children, the diagnosis of <span class="highlight">seizures</span> in children with DS doesn't happen as quickly as it does in the typical population. (2) That's why it's important to educate yourself so that you can recognize the signs and be prepared to advocate for your child, just in case.<br />
<br />
<span style="color: #990000;"><b>What is a seizure and what does it look like?</b></span><br />
<br />
The brain temporarily loses control of the body during a seizure. Instead of it sending a meaningful message to the body, it sends a "nonsense message" or a sudden
surge of random "electrical activity," in a pattern of no particular usefulness,
that takes over the brain for anywhere from one or two seconds to hours. For
children with seizures, most are the type associated with infants/toddlers and fever; these are short and rarely cause health problems or
lasting side effects. However, if a person has more than one
seizure not associated with fever, then the condition is called
"epilepsy." (1)<br />
<b><br /></b>
<b>Types of seizures </b><br />
<blockquote class="tr_bq">
<b>Petite Mal</b> </blockquote>
<blockquote class="tr_bq">
<b>Infantile spasms</b> </blockquote>
<blockquote class="tr_bq">
An IS many not affect the infant's
state of consciousness. It can look like a quick drop of the head
and/or shoulders if the baby is sitting or standing up. (1)<span class="null"> But they do show up differently so are categorized
into three subtypes (flexor, extensor,and mixed flexor-extensor) based
on what body positions they are in and the patterns of muscle involvement during the
seizure. </span></blockquote>
<blockquote class="tr_bq">
<blockquote class="tr_bq">
<span class="null"><b>Flexor spasms</b> involve bending of the neck, trunk and
extremities, resulting in jack-knifing at the waist and a self-hugging
motion of the arms. </span></blockquote>
<blockquote class="tr_bq">
<span class="null"><b>Extensor spasms</b> consist of extension of the neck,
trunk and extremities. </span></blockquote>
<blockquote class="tr_bq">
<span class="null"><b>Mixed flexor-extensor spasms</b> involve
combinations of the above. While often confused with myoclonic or tonic
seizures, spasms represent a distinct seizure type. (3) </span></blockquote>
</blockquote>
<blockquote class="tr_bq">
<b>Absence seizures</b> </blockquote>
<blockquote class="tr_bq">
Absence seizures involve brief, sudden lapses of consciousness. They're
more common in children than adults. The child
may look like he is staring into space for a few seconds. This
type of seizure usually doesn't lead to physical injury.<br />
<br />
An indication of a simple absence seizure is a vacant stare, which may
be mistaken for a lapse in attention that lasts 10 to 15 seconds,
without any subsequent confusion, headache or drowsiness. Signs and
symptoms of absence seizures include:<br />
<ul>
<li>Sudden stop in motion without falling</li>
<li>Lip smacking</li>
<li>Eyelid flutters</li>
<li>Chewing motions</li>
<li>Finger rubbing</li>
<li>Small movements of both hands</li>
</ul>
Absence seizures generally last 10 to 15 seconds, followed
immediately by full recovery. Afterward, there's no memory of the
incident. Some people have dozens of episodes daily, which interfere
with school or daily activities. </blockquote>
<blockquote class="tr_bq">
A child may have absence seizures for some time before an adult
notices the seizures, because they're so brief. A decline in a child's
learning ability may be the first sign of this disorder. (4) For possible natural treatment of absence seizures, <a href="http://www.burhaninatural.com/absence-seizures-petit-mal/" target="_blank">see this article</a>. </blockquote>
<blockquote class="tr_bq">
<b>Drop seizures </b><br />
<br />
In atonic (head-drop) seizures, the eyelids may droop, the head may nod and the child may drop things
and often falls to the ground. These seizures are also called "drop
attacks" or "drop seizures." The child usually remains conscious. These
seizures typically last less than 15 seconds. (5)<br />
<br />
<b>Reflex
seizures</b><br />
<br />
Reflex (myoclonic, "startle")
seizures are a type of reflex epilepsy in which seizures are
provoked by loud noises or sudden surprises. Most patients with startle
epilepsy are only sensitive to one sensory modality (i.e. temperature,
taste, sound, pressure). However, it is the unexpected nature of the
stimulus rather than the sensory modality that characterizes startle
epilepsy.</blockquote>
<blockquote class="tr_bq">
Children with startle epilepsy usually have static cerebral lesions
and developmental delay. Many of them are hemiparetic, meaning
half of the body is partially paralyzed, and it is the weak side of the
body that is primarily involved in the startle seizures. Startle
epilepsy is often associated with disorders such as infantile
hemiplegia, Down syndrome, anoxic encephalopathy and cortical
dysplastic lesions. </blockquote>
<blockquote class="tr_bq">
These seizures usually last less than 30 seconds. The seizure begins
with a startle response, followed by a brief tonic phase. Children
sometimes fall to the ground and experience clonic jerks.
Responsiveness to the stimulus decreases as a result of repeated
exposure to the stimulus. Spontaneous seizures also occur in people
with startle epilepsy, but are infrequent in most cases. (6)</blockquote>
<blockquote class="tr_bq">
<b>Grand Mal</b> </blockquote>
<blockquote class="tr_bq">
Another type of
seizure is the generalized "tonic-clonic" seizure; this type of seizure involves the whole body, with
stiffening of the trunk and jerking of the extremities, followed by a
period of sleepiness. This is what people usually think of when they think of seizures.</blockquote>
<blockquote class="tr_bq">
Possible signs and symptoms of grand mal seizures:<br />
<ul>
<li><b>Aura.</b> Some people experience a warning feeling
(aura) before a grand mal seizure. This warning varies from person to
person, but may include feeling a sense of unexplained dread, a strange
smell or a feeling of numbness.</li>
<li><b>A scream.</b> Some people may cry out at the beginning of a seizure because the muscles around the vocal cords seize, forcing air out.</li>
<li><b>Loss of bowel and bladder control.</b> This may happen during or following a seizure.</li>
<li><b>Unresponsiveness after convulsions.</b> Unconsciousness may persist for several minutes after the convulsion has ended.</li>
<li><b>Confusion.</b> A period of disorientation often follows a grand mal seizure. This is referred to as postictal confusion.</li>
<li><b>Fatigue.</b> Sleepiness is common after a grand mal seizure.</li>
<li><b>Severe headache.</b> Headaches are common but not universal after grand mal seizures. (7)</li>
</ul>
</blockquote>
<span style="color: #990000;"><b>Why be concerned about seizures?</b></span><br />
<br />
Seizures can cause brain damage. Regressions (loss of previously acquired skill) can occur. A decline in a child's
learning ability may be the first sign of the more subtle type of seizures -- let that be the last sign!<br />
<br />
<span style="color: #990000;"><b>What are options for seizure </b></span><span style="color: #990000;"><b><span style="color: #990000;"><b>treatment</b></span>?</b></span><br />
<br />
<a href="http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3859980/" target="_blank"><b>A Review of Traditional and Novel Treatments for Seizures in Autism Spectrum Disorder: Findings from a Systematic Review and Expert Panel</b></a> Richard E. Frye,1,* et al, is an excellent study that has a lot of good information on different treatment methods including some ways to help recover damage done. It explores the use of <span class="small-caps">l</span>-carnitine, multivitamins, and <i>N</i>-acetyl-<span class="small-caps">l</span>-cysteine
in mitochondrial disease and dysfunction; folinic acid in cerebral
folate abnormalities and early treatment with vigabatrin in tuberous
sclerosis complex; magnesium with pyridoxine, omega-3 fatty
acids, the gluten-free casein-free diet and low-frequency repetitive
transcranial magnetic simulation; Zinc and <span class="small-caps">l</span>-carnosine as well as Homeopathy and Neurofeedback. (8)<br />
<br />
As mentioned in <b>A Review</b>, seizures can also be related to <b><a href="http://dsdaytoday.blogspot.com/2013/03/cerebral-folate-deficiency-in-down.html" target="_blank">cerebral folate deficiency</a>,</b>
which I have written about in a previous post. Jett does not have a
seizure disorder, but his little brother, Oliver, suffered seizures
while undergoing a medically-induced coma in NICU, so I've researched how to protect the brain from and
recover from seizures and am implementing these strategies for Oliver. <br />
<br />
Not discussed in the above article is the use of <b>curcumin</b> to help with major seizures. See:<br />
<a href="http://www.ncbi.nlm.nih.gov/pubmed/20840851" target="_blank">Protective effect of curcumin against seizures and </a><a href="http://www.ncbi.nlm.nih.gov/pubmed/20840851">cognitive impairment</a><a href="http://www.ncbi.nlm.nih.gov/pubmed/20840851"> in a pentylenetetrazole-kindled epileptic rat model."</a> In this study, the results indicate that pretreatment with curcumin
improves seizures, oxidative stress and cognitive impairment in PTZ
induced in rats. These results thus suggest the potential of
curcumin as an aid in epilepsy treatment both to prevent seizures as well as
to protect against seizure induced memory impairment. (9)<br />
<br />
Also see the <a href="http://rjptonline.org/RJPT_%20Vol1%284%29/22.pdf" target="_blank">Effect of Curcumin on Sub-Therapeutic Do</a><a href="http://rjptonline.org/RJPT_%20Vol1%284%29/22.pdf">ses of AED’S And Long Term Memory </a><br />
<a href="http://rjptonline.org/RJPT_%20Vol1%284%29/22.pdf">In Mice Induced GTC Type of Seizures in Rats. </a> <br />
<br />
Check out these <a href="http://www.ncbi.nlm.nih.gov/pubmed/?term=bacopa+seizures" target="_blank">pubmed articles</a> for information on <b>bacopa</b> for seizures.<br />
<br />
At 16 months old, Oliver is on curcumin, l-carnosine, bacopa, folate, B12, magnesium, zinc and fish oil. <br />
<br />
<i><b>But super-sleuth mom, Anne Holtz, actually found another way to stop her son's seizures! </b></i><br />
<i><b>Here is her candid story:</b></i><br />
<br />
<span style="color: #990000;"><span class="im"><b>Treating Infantile Spasms (Benign Myoclonic Seizures) Naturally: Our Journey</b></span></span><br />
<span class="im"><b>by Anne Hoelz </b><br /><br />We
have a five and a half year old son who has Down syndrome. He is the coolest, cutest
little boy in the world! Okay, I might be a little biased, haha. He
definitely is very naughty at this age! Anyway, let’s get on with our
story . . .</span><br />
<br />
Our son, Kaiden, developed Infantile Spasms
(IS) right around seven months old, after some health issues relating to
his prematurity and I believe, the vaccinations he received at his six-month well visit. I have a theory – well, I have lots of theories – but I
feel that he should not have been vaccinated since he was unwell at
that visit.<br />
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; margin-left: 1em; text-align: right;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgQfHHTfWbrgnGw5HKRpo-WO7v7MVFx5PCJWViNy2EZQECUJNynDt_j79jSUN8gQOOi3znwh0ezwc_Mt1GC2IZmLj8GKwuZHLerlgAYaX-dM1UoAZEB3QF2mQKQ2_xbakqbljTacwycoJo/s1600/Kaiden.jpg" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgQfHHTfWbrgnGw5HKRpo-WO7v7MVFx5PCJWViNy2EZQECUJNynDt_j79jSUN8gQOOi3znwh0ezwc_Mt1GC2IZmLj8GKwuZHLerlgAYaX-dM1UoAZEB3QF2mQKQ2_xbakqbljTacwycoJo/s1600/Kaiden.jpg" height="320" width="240"></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span class="im">Kaiden enjoying a boat ride.</span></td></tr>
</tbody></table>
One of the vaccinations he received was the DTAP vax –<span style="color: #1f497d;"> </span>there <i><b>is</b></i> a correlation between infants of that age receiving that vaccination and developing this particular type of seizure (10)<b><span style="color: #1f497d;">. </span></b>One
of my theories is that the DTAP caused brain inflammation, which possibly lead to Kaiden’s IS. I say "possibly lead to" because his seizures are also somehow related to food. I don’t know for sure if the DTAP played a role or
not – maybe the DTAP caused brain inflammation that led to
his food sensitivities; I really don’t know.
In the years since I’ve done my initial research, an interesting thing
has come to light: studies done regarding the SCN1A mutation and
infantile epileptic encephalopathies, which suggests the genetic mutation could be responsible (11). We have not had Kaiden genetically tested for anything other than Down syndrome.<span class="im"><br /><br />Kaiden
received breastmilk as his main source of nutrition until that 6 month
well visit, when I was instructed to start him on solids whether he was
ready for them or not. At that time, I was already holistically minded,
but still bringing him to a western medicine pediatrician. When the
seizures started, I noted that both carrots and sweet potatoes
aggravated the problem. I set up tests: I tried both foods separately on three
different occasions, with the same result = increased seizure activity. </span><br />
<br />
<span class="im">The neurologist we saw was supposed to be “the best” and the doctors
told us how lucky we were that he decided to see Kaiden, since he was nearing retirement and not taking new patients
anymore. Oh great, how wonderful, I think to myself. Full of optimism,
we visited the neurologist. Now here’s the thing: neurologists aren’t
nutritionists. When I brought up my findings regarding the connection
between sweet potatoes, carrots and Kaiden’s seizures, the neurologist
flat out said “food doesn’t have anything to do with it.” He didn’t care
about my observations and wouldn’t listen to anything I said. In fact,
in his official report to Kaiden’s pediatrician, he wrote “I doubt an
underlying metabolic abnormality.” He wasn’t just misinformed about
nutrition – he was also misinformed about IS. (So much for being “the
best”!) </span><br />
<br />
<span class="im">He told us how lucky we were that Kaiden had DS, so the seizures
wouldn’t affect him cognitively since he would already be cognitively
delayed. </span>Basically, that we had nothing to worry about and
even if he wasn’t treated, he might just outgrow the IS in a few years.
Oh so wrong. SO WRONG. I knew the seizures were affecting him
cognitively. He’d completely changed from a happy active baby to, as
another DS with IS mom put it, a "zombie baby." The neurologist wanted to use topamirate, and told us it could cause permanent vision damage. (<a href="http://www.topamax.com/tools-resources--safety-information.html" target="_blank">12</a>) Armed with what “knowledge” we were given by the neurologist, we felt comfortable treating holistically rather than giving Kaiden anti-seizure
meds that had possible permanent side effects.<br />
<br />
As a more holistic approach, the neurologist recommended we start Kaiden’s treatment with Vitamin B6<span style="color: #1f497d;"> </span>(<span style="color: #1f497d;"><a href="http://www.merckmanuals.com/professional/nutritional_disorders/vitamin_deficiency_dependency_and_toxicity/vitamin_b6.html" target="_blank">13</a></span>).
And, unfortunately, got nowhere. By that time, Kaiden was having
approximately six clusters of seizures each day, with the clusters lasting
anywhere from 10-45 minutes and then he’d scream and cry after each spasm.
I wanted to try an even more holistic route so we chose Native
Remedies Epi-Still<span style="color: #1f497d;"> (<a href="http://www.nativeremedies.com/products/epi-still-brain-and-nervous-system-health.html?ysmtac=CMP&ysmpla=GMF&gclid=CLSdqYiYo8ICFaVDMgodG2sANQ" target="_blank">14</a>)</span> and Triple Complex Nerve Tonic (name has since changed to Triple complex Calm Tonic: (15). Together, they reduced Kaiden’s seizures to 4-10 single spasms per
day. In doing more research (I was eating, breathing and sleeping
research!) I also decided to give Kaiden some OTC calcium to help
support his nervous system. It didn’t reduce his seizures, but we saw
such a dramatic result overnight. He was so much more active, alert and
loud – this is when we started looking into TNI (Targeted Nutrition
Intervention).<br />
<br />
When we ran out of the Native Remedies supplements, we moved to Dr. Christopher’s Ear & Nerve Tonic<span style="color: #1f497d;"> (<a href="http://www.herballegacy.com/Ear_Nerve.html" target="_blank">1<span style="color: #1f497d;">6</span></a></span> - this is an info only link, they do not sell to the public, but their products can be purchased on just about any herbal site and on Amazon).<span style="color: #1f497d;"> </span>
His seizures didn’t lessen in frequency, but rather in severity, in that
some were barely noticeable. He would have some though, that would lock
his body up for a few seconds and it would take a bit for him to snap
out of it when it was over. The other benefit we saw with the Ear &
Nerve Tonic was a HUGE increase in Kaiden’s balance!<span class="im"><br /><br />Now,
ever since the carrots and sweet potatoes early on, I suspected food
was playing a role in his IS. I kept both seizure and food logs,
looking for a connection. Kaiden was falling further and further behind
developmentally and everyone from doctors to family and friends said
it was “just DS” and that I needed to expect it. But Kaiden would have
lucid moments where he’d do normal baby things – sometimes it would last
minutes, sometimes maybe an hour. I knew there had to be more going on
and my intuition strongly said food HAD to have something to do with it. </span><br />
<span class="im"><br />Problem was, I wasn’t taking into account what <b><i>I</i></b> was eating.
Kaiden was still getting my breastmilk, and it wasn’t until I ate an
eggplant dish for the first time and saw how his now-reduced seizure
rate skyrocketed, that I found another connection. Then a few months
after that, I ate a good helping of green peppers (I had ditched green
peppers in Kaiden’s early months - pre-seizures - as they gave him a
rash via my breastmilk) and his seizure rate skyrocketed again. It took
me a few days to figure that one out – I literally walked around the
house saying “What the F@#)$*^% do green peppers and eggplant have in
common that he reacts so badly to them?” And Google gave me the answer:
they are both nightshades. </span><br />
<br />
<span class="im">Nightshades are potatoes, tomatoes, all
peppers – sweet and hot, tomatillos, ground cherries, eggplant, paprika,
goji (wolf) berries, etc. Hardly a meal went by in our house that
didn’t have nightshades in it! I cut out all nightshades from both my
and Kaiden’s diets and within a couple days saw his seizure rate drop to
2 – 3 seizures per day. A few days later I ate some nightshades
(tomato, mayo with paprika) and his seizure rate increased. Eliminated
nightshades again, saw the IS drop again. Then ate them again (mustard
with paprika) and watched his seizure rate go up again. Ding, ding, DING
we have a WINNER!! I eliminated nightshades completely and within a
week, his seizures were completely gone. GONE!<br /><br />But eliminating
the seizures was, in my opinion, only a side effect of eliminating
nightshades: Kaiden’s development began to FLY! In three short weeks, he’d
gained three to six months of development. By six weeks, he’d gained 9 – 12
months in development and continued learning. My theory is that the
nightshades overloaded his nervous system so much that his brain shut it
down.<br /><br />Now, four and half years later, I think I know why carrots triggered
his IS – carrotatoxin (falcarinol), but I still have absolutely no idea
why sweet potatoes did too.<br /><br />I wish I could say that stopping the seizures was the end
of the experience, but they robbed Kaiden of his speech. It had been
developing normally, but then with the seizures, he lost everything
except vowel sounds. We waited a while to see if it would come back on
its own given how well his other development was going, but no such luck
there. With omega oil supplementation, I can tell that his communication has
exploded and he has gained some consonants back, but it is still not
words, or is even close to words. I had to push the school system to
recognize that he has both speech and motor apraxia – having both of those,
expressive communication is extremely difficult for him. We’re now
working with a speech device and program he’ll be able to use for the
rest of his life, if he is never verbal.<br /><br />Will this method of IS
treatment work for your child? I honestly don’t know. It might, it might
not. I do believe brain inflammation and the buildup of nightshades’
glycoalkaloids both played a significant role, as well as what carrots
and sweet potatoes put into him early on. After eliminating nightshades
from my diet for Kaiden, I found I was sensitive to them, too. But not
everyone is sensitive to nightshades. I’m certainly not sensitive to
carrots.<br /><br />My point with all of this is – doctors don’t know
everything. Even specialists who think they have all the answers can
clearly be wrong. Doctors are not nutritionists. Nutritionists can be
wrong, too. Follow your gut; intuition is rarely wrong. If the
“specialists” aren’t willing to work with you, find a doctor who will.
They don’t have to be a specialist; they may be willing to learn right
along with you. Don’t let anyone tell you it’s “just DS”. Metabolic
disorders can be treated; it’s just a matter of finding what works for
your child’s individual needs.</span><br />
<br />
Our journey has been a long one, and it’s still going on. Inspired by Kaiden’s needs, I wrote a paleo cookbook called <a href="https://www.etsy.com/listing/130168935/cookbook-paleo-cavemoms-cooking-simple?ref=shop_home_active" target="_blank">Cavemom’s Cooking</a> and Volume 2 is currently in the works! If you’d like to read more about us, please visit my blog at <a href="http://thegreenchildchronicles.blogspot.com/" target="_blank">The greenchild Chronicles</a>, and our introductory post at <a href="http://thegreenchildchronicles.blogspot.com/2010/06/introduction.html" target="_blank">The greenchild Chronicles Introduction</a>.<br />
<br />
<b>Other foods to avoid</b><br />
<br />
There was a 2.6-fold higher rate of febrile <span class="highlight">seizures</span>
[4.2% versus 1.6%, OR = 2.6, 95% CI = 1.3-5.3], a 2.1-fold higher rate
of epilepsy comorbidity [3.6% versus 1.7%, OR = 2.2, 95% CI = 1.1-4.7]
and a 4-fold higher rate of simple partial <span class="highlight">seizures</span> [1.2% versus 0.3%, OR = 4.8, 95% CI = 1.0-23] in the autistic children fed soy-based formula. See <b>Soy infant formula and seizures in children with autism: a retrospective study.</b> Westmark CJ. (19) <br />
<br />
<span style="color: #990000;"><b>Further Reading</b></span><br />
<br />
<a href="http://www.amazon.com/Complementary-Alternative-Therapies-Epilepsy-Devinsky/dp/1888799897/ref=sr_1_2?ie=UTF8&qid=1326731465&sr=8-2" rel="external nofollow" target="_blank">Complementary and Alternative Therapies for Epilepsy </a><br />
The book is edited and co-authored by Dr Orrin
Devinsky, a neurologist at NYU, one of the top epileptologists in the
country.<br />
<br />
<a href="https://www.etsy.com/listing/130168935/cookbook-paleo-cavemoms-cooking-simple?ref=shop_home_active" target="_blank">Cavemom’s Cooking</a> a paleo cookbook inspired by Kaiden's story, written by <span class="im">Anne Hoelz.</span> <br />
<div class="auths">
<br />
<b><span style="color: #990000;">Sources</span></b><br />
<ol>
<li>http://ds-health.com/epilepsy.htm</li>
<li><a href="http://www.ncbi.nlm.nih.gov/pubmed/25309120">http://www.ncbi.nlm.nih.gov/pubmed/25309120</a> </li>
<li><span class="null"><a class="_553k" href="http://neuro.wustl.edu/patientcare/clinicalservices/pediatricepilepsycenter/patientfamilyphysician/infantilespasms/" rel="nofollow" target="_blank">http://neuro.wustl.edu/patientcare/clinicalservices/pediatricepilepsycenter/patientfamilyphysician/infantilespasms/</a>.</span> </li>
<li>http://www.mayoclinic.org/diseases-conditions/petit-mal-seizure/basics/definition/con-20021252</li>
<li>http://www.epilepsy.com/learn/types-seizures/atonic-seizures</li>
<li>http://epilepsyontario.org/startle-epilepsy/</li>
<li>http://www.mayoclinic.org/diseases-conditions/grand-mal-seizure/basics/symptoms/CON-20021356</li>
<li>A Review of Traditional and Novel Treatments for Seizures in Autism
Spectrum Disorder: Findings from a Systematic Review and Expert Panel Richard E. Frye,1,* et al <a href="http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3859980/">http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3859980/</a></li>
<li><a href="http://www.ncbi.nlm.nih.gov/pubmed/20840851" target="_blank">Protective effect of curcumin against seizures and cognitive impairment in a pentylenetetrazole-kindled epileptic rat model." </a><a href="http://www.ncbi.nlm.nih.gov/pubmed/20840851">http://www.ncbi.nlm.nih.gov/pubmed/20840851</a></li>
<li>http://en.wikipedia.org/wiki/Epileptic_spasms </li>
<li>http://brain.oxfordjournals.org/content/130/3/843</li>
<li>http://www.topamax.com/tools-resources--safety-information.html</li>
<li>http://www.merckmanuals.com/professional/nutritional_disorders/vitamin_deficiency_dependency_and_toxicity/vitamin_b6.html </li>
<li>http://www.nativeremedies.com/products/epi-still-brain-and-nervous-system-health.html?ysmtac=CMP&ysmpla=GMF&gclid=CLSdqYiYo8ICFaVDMgodG2sANQ </li>
<li><a href="http://www.nativeremedies.com/products/calm-tonic-relieve-stress-symptoms.html">http://www.nativeremedies.com/products/calm-tonic-relieve-stress-symptoms.html</a></li>
<li><a href="https://www.etsy.com/listing/130168935/cookbook-paleo-cavemoms-cooking-simple?ref=shop_home_active">https://www.etsy.com/listing/130168935/cookbook-paleo-cavemoms-cooking-simple?ref=shop_home_active</a></li>
<li> <a href="http://thegreenchildchronicles.blogspot.com/" target="_blank">http://thegreenchildchronicles.blogspot.com </a></li>
<li><a href="http://thegreenchildchronicles.blogspot.com/2010/06/introduction.html" target="_blank">http://thegreenchildchronicles.blogspot.com/2010/06/introduction.html </a></li>
<li>Soy infant formula and seizures in children with autism: a retrospective study. Westmark CJ. <a href="http://www.ncbi.nlm.nih.gov/pubmed/24622158" target="_blank">http://www.ncbi.nlm.nih.gov/pubmed/24622158 </a></li>
</ol>
</div>
<div class="auths">
<br />
<span style="color: #990000;"><b>Related Posts</b></span><br />
<br />
<a href="http://dsdaytoday.blogspot.com/2013/03/cerebral-folate-deficiency-in-down.html">Cerebral Folate Deficiency and Down Syndrome</a> <br />
<a href="http://dsdaytoday.blogspot.com/2011/05/bacopa-monera-extract-bme.html">Bacopa in the DS population</a></div>
<div class="auths">
<a href="http://dsdaytoday.blogspot.com/2012/07/why-l-carnosine-for-t21-population.html" target="_blank">Why L-carnosine for the T21 population? </a></div>
<div class="auths">
<a href="http://dsdaytoday.blogspot.com/2011/03/longvida-curcumin.html" target="_blank">Longvida Curcumin and DS</a></div>
<div class="auths">
<a href="http://dsdaytoday.blogspot.com/2011/10/why-supplement-and-monitor-zinc.html" target="_blank">Why Supplement and Monitor Zinc?</a></div>
<div class="auths">
<a href="http://dsdaytoday.blogspot.com/2011/11/importance-of-magnesium.html" target="_blank">The Importance of Magnesium for those with DS </a></div>
<div class="auths">
<a href="http://dsdaytoday.blogspot.com/2014/03/treating-apraxia-in-children-with-down.html" target="_blank">Treating Apraxia in Children with Down Syndrome</a></div>
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<br /></div>
<div class="auths">
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Andi Durkinhttp://www.blogger.com/profile/03651762223667606607noreply@blogger.com0tag:blogger.com,1999:blog-1989545445919628676.post-36588708032356063182014-11-14T17:45:00.000-05:002017-05-18T18:33:49.537-04:00Finding Time/Jett's Daily Schedule<div>
<span style="font-family: Verdana,sans-serif;">Parents ask me all the time about how I've been able to fit everything I do into one day. So I've put together an overview and some sample schedules from various times in Jett's life, that I hope you will find helpful.</span><br />
<span style="font-family: Verdana,sans-serif;"><br /></span>
<span style="font-family: Verdana,sans-serif;">First, I stopped working when Jett was born so I am a stay-at-home mom. And for the first few years, Jett took two, two-hour naps a day, so that's when I worked
on my blog. The screen time definitely made me behind in preparing for when he woke up, but I needed to put the blog together so I had an organized place
to keep my notes and to figure stuff out in my head. (Since nothing like
my blog existed at the time.) It was too much info and I would have been more crazy, I
think, if I hadn't put it together. So, in the long run, it saved, and still saves me, a lot of time.
I'm a "have to know" person and I'm a workaholic w/out a paying job so I had to funnel my energy somewhere. </span><br />
<span style="font-family: Verdana,sans-serif;"><br /></span>
<span style="font-family: Verdana,sans-serif;">I
also only slept about 6 hours a day. </span></div>
<div>
<span style="font-family: Verdana,sans-serif;">At around age 2 1/2 - 3 years old, Jett may
have slept for 2 hours, if I was really lucky, but mostly he slept an hour or
skipped the nap altogether. But, at that age, he was cognitively more advanced
and could actually independently play some, so I could work on the blog when
he was awake. Since he had many signs of autism (almost cured, a couple more symptoms
left), he did stimm sometimes when I'm wasn't right with him, but I
immediately stopped and redirected him if that occurred. </span><br />
<span style="font-family: Verdana,sans-serif;"><br /></span>
<span style="color: #990000;"><span style="font-family: Verdana,sans-serif;"><b>Cleaning </b></span></span><br />
<span style="font-family: Verdana,sans-serif;"><br /></span>
<span style="font-family: Verdana,sans-serif;">Fortunately, my husband understands
that keeping the house up has to take a back burner to figuring out
this information and attending to Jett's needs. He sees the results in Jett and helps out around the
house as he can. Jett's therapy, constantly changing biomedical
"profile" and getting three healthy meals out a day are my priorities…
As Jett gets older, I see him helping me with the cooking (lots of
learning opportunities there! In fact, a lot of his homeschooling will
take place in the kitchen) and cleaning so I see a light at the end of
the tunnel. I hate a house that is not perfectly kept up, but I can not
possibly do everything!</span></div>
<div>
<span style="font-family: Verdana,sans-serif;"><br /></span>
<span style="font-family: Verdana,sans-serif;">One thing we've done is box up our "extra" stuff. So now, we just have a few plates, cups, etc. out so that all the <span class="il">dishes</span> fit in one dishwasher load. That way, as we eat/cook, the <span class="il">dishes</span> go in, and at the end of the night, they all get washed and are ready for the next day. So there's not enough <span class="il">dishes</span>
to lay around. Same for clothes and towels, we just wash what we have
out w/out having lots of dirty towels/clothes that need to be washed piled up. </span><span style="font-family: Verdana,sans-serif;"><span style="font-family: Verdana,sans-serif;">All out of season clothes are in vacuum bags in the closets.</span>
There's enough that the dirty clothes can fill the laundry basket, some
can be washing and some drying…. Less to keep track of. You just have to
be creative...</span><br />
<br />
<span style="font-family: Verdana,sans-serif;">At four years old, Jett does insist on helping out... He often sings the Daniel Tiger song: "Everyone one is big enough--big enough to do something!" </span><br />
<span style="font-family: Verdana,sans-serif;"><br /></span>
<span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><b>Cooking</b></span></span><br />
<span style="font-family: Verdana,sans-serif;"><br /></span>
<span style="font-family: Verdana,sans-serif;">I've learned to set aside one day a week to devote to cooking. Have neighbor/young relative watch the kids while you are at home. (I can get his 12-year old cousin for about $10.) Cook as much as you can! Prepare as many make-ahead meals as possible. A good way to do this is to grocery shop and cut up all the veggies etc. and put them in freezer bags so assembly is quicker later. As soon as you get home, divide up your bulk buys of meats into usable portions, etc. I separate mixtures of cut fruits and veggies and protein powder into bags so I can just pull one out, dump in the blender, add liquid and make a smoothie real quick. I also make up a month's worth of Jett's "Larabars" (recipe is on <a href="https://www.facebook.com/ds.daytoday" target="_blank">my facebook page</a>... or not, LOL... here's </span><span style="font-family: Verdana,sans-serif;"><span data-ft="{"tn":"K"}" data-reactid=".1z2.1:3:1:$comment593173190811210_593202370808292:0.0.$right.0.$left.0.0.1:$comment-body"><span class="UFICommentBody" data-reactid=".1z2.1:3:1:$comment593173190811210_593202370808292:0.0.$right.0.$left.0.0.1:$comment-body.0"><span data-reactid=".1z2.1:3:1:$comment593173190811210_593202370808292:0.0.$right.0.$left.0.0.1:$comment-body.0.$text0:0:$0:0">a <a href="http://leitesculinaria.com/88638/recipes-homemade-larabars.html" target="_blank">similar recipe</a>. I do add chia seeds, sun nut/pumpkin seed/tahini butters and
soaked, then toasted nuts and oats as well</span></span></span>) and freeze. (I freeze everything in glass jars or toxin free wax paper covered in aluminum foil [I don't let the foil touch the food].) I am working on a post about this, but quick ideas that freeze easily: We buy about 10 gluten free non GMO corn-based pizza crusts and I make all of them at one time and freeze them uncooked. I make up quiches, chicken pot pies, spinach-lasagna noodle rolls (no Jett can't eat it), breakfast-friendly cookies, chicken nuggets, cut up sweet potato fries and enchiladas. Once a week, my husband makes up a huge patch of healthy pancakes or waffles. </span><span style="font-family: Verdana,sans-serif;">See these <a href="http://www.mommysfabulousfinds.com/2014/03/crockpot-freezer-meal-recipes.html" target="_blank">freezer to crock pot recipes</a> for more inspiration. </span></div>
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<span style="font-family: Verdana,sans-serif;"><span style="color: #990000; font-weight: bold;">Appointments/Errands with a baby/toddler</span></span><br />
<span style="font-family: Verdana,sans-serif;"><br /></span>
<span style="font-family: Verdana,sans-serif;">I schedule Jett's doctor's appointments/errands around his sleep pattern so that the restraints of the car seat won't cut into his crawl time. He wakes at 10am, so I schedule morning appointments at 11/11:30 am. This is because most of our appointments are an hour from the house. So, I ease him out of bed at 9:30 (change his diaper and clothes in the bed) and he falls back to sleep in the car. He wakes up a half an hour before the appointment so, on the way there, I have time to feed him his supplements and breakfast (something he'd be sitting for anyway). My mother comes with me (retired, lives 20 minutes away) or my husband drives us to appointments so that either my mother or me can sit in the back and make sure that Jett is constantly cared for and stimulated. At doctor's offices, I lay out a thin blanket and toys for him to play with on the floor. (Keeping him on the blanket is another story.) People seem to think it's fun to watch him play. I try to keep him out of the line of traffic and I've yet to have anyone ask me to put the blanket away or anything.</span><br />
<br />
<span style="font-family: Verdana,sans-serif;">I try to schedule it so that we'll be back in the car at 2 PM, his normal nap time. An hour later, we are home and he's well-rested and ready to rock and roll (and to go on his potty). </span><br />
<span style="font-family: Verdana,sans-serif;"><br /></span>
<span style="font-family: Verdana,sans-serif;">At 3 years old, I try to schedule it so that he's in the car at around 3 </span><span style="font-family: Verdana,sans-serif;"><span style="font-family: Verdana,sans-serif;">PM</span> because that is when he likes to take his nap.</span><br />
<br />
<span style="font-family: Verdana,sans-serif;">At 4 years old, I just keep a stack of children's encyclopedias, dictionaries and thick books of stories and poetry (all of his choosing) in the car. (See store above for his favorite books.) I look in the rear view mirror and see him smiling behind the books. :) If I'm really lucky, he will fall asleep! That would usually be around 4 PM, for some reason. </span><br />
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<span style="font-family: Verdana,sans-serif;"><span style="color: #990000; font-weight: bold;">Our <span class="il">Schedules</span></span></span><br />
<span style="font-family: Verdana,sans-serif;"><br /></span>
<span style="font-family: Verdana,sans-serif;">I have had many requests for our schedule, but I've been
hesitant to post because I've never had a perfectly scheduled day!
So, don't think for one second that I do everything on my schedule
everyday. The other thing is that a schedule is completely dependent on
you. For me, I need structure and to be focused, but I have a huge need
to be able to move it around, especially according to what Jett is
interested in that day. So, the neurodevelopment exercises give me
structure and a list focuses me on priorities, but <span style="font-style: italic;">when</span>
I do them is dependent on Jett's cues. If he is in the mood to explore
all over the house, that is what I encourage him to do. If he is wanting
me to interact with him more, that is what we will do. If he asks to go
outside or for "worksheets" or a puzzle, etc. that's what we do at that
time. When he was younger, independent play was minimal and he insisted
that I read to him a lot. And he got better and better at independent
play and reading a lot on his own. Jett and I are in this for the long
run. We are partners that need to work together in a lasting educational
relationship. Children learn best when their basic needs are met, are
happy and at play. So I do not push Jett, but rather gently "one up" him
at every opportunity.</span><br />
<span style="font-family: Verdana,sans-serif;"><br /></span>
<span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><b>Schedule at Baby/Toddler stage</b></span></span><br />
<span style="font-family: Verdana,sans-serif;">(When I say "now," Jett was 2 1/2 - 3 years old.) </span><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><b><br /></b></span></span><br />
<span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;"><br />7 - 8</span></span><span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;"><span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;">:00</span></span> AM</span>
I get up, each one square of 85% chocolate, and start my breakfast
(thaw gluten free English muffin & heat pan for eggs). I load or
unload dishes. Get diapers or other laundry running and/or in the dryer. (I eat my chocolate first so that I don't miss out on it! I can't tolerate caffeine after noon or it keeps me up all night.)</span><br />
<span style="font-family: Verdana,sans-serif;"><br /></span>
<span style="font-family: Verdana,sans-serif;">Cook my breakfast and a soft scrambled egg that I set aside for Jett. Eat breakfast while checking email/blogging/working on <a href="http://www.downsyndromeoptions.org/" target="_blank">Down Syndrome OPTIONs</a>, (of which I am president).</span><br />
<span style="font-family: Verdana,sans-serif;"><br /></span>
<span style="font-family: Verdana,sans-serif;">Roast
vegetables in the toaster oven, cook beans, rice or gluten free pasta, etc.
for Jett's meals that day. This takes minimal prep time, but 20-60
minutes cook time. After it's cooled, I freeze the excess.</span><br />
<span style="font-family: Verdana,sans-serif;"><br /></span>
<span style="font-family: Verdana,sans-serif;">Get all of Jett's supplements ready for the day: 1)
w/juice first thing 2)with breakfast 3)with lunch 4)</span><span style="font-family: Verdana,sans-serif;"><span style="font-family: Verdana,sans-serif;">with dinner</span> 5) </span><span style="font-family: Verdana,sans-serif;">on an empty stomach
w/juice before bed </span><br />
<span style="font-family: Verdana,sans-serif;"><span style="min-height: 50px;"> </span></span><br />
<div class="content marginRight">
<span style="font-family: Verdana,sans-serif;">Jett gets his supplement mix 4-5 times a day.</span><br />
<span style="font-family: Verdana,sans-serif;">1st thing in AM (needs to be on empty stomach), under tongue or spray: B12</span><br />
<span style="font-family: Verdana,sans-serif;">Next: l-carnosine, probiotics, l-tyrosine, nutri-med (thyroid) in goji berry juice or elderberry extract & coconut water. I put royal jelly on the edge of the cup so he gets the honey mix with every sip. </span><br />
<span style="font-family: Verdana,sans-serif;">At breakfast mixed in applesauce or bananas and honey: 1/4 zinc, 1/2 mlybd,
curcumin, chokeberry powder, 1/3 vitamin C, vitamin D3, 1/2 folinic acid, ginkgo, astralagus, fermented CLO, coconut
oil, 1/2 acetyl carnitine, (I was able to stop adding the honey by 2.5 to 3 years old.)</span><br />
<span style="font-family: Verdana,sans-serif;">Note: Thyroid meds should actually be given first thing, on an empty stomach (I didn't realize that then.) </span><br />
<span style="font-family: Verdana,sans-serif;"><br /></span>
<span style="font-family: Verdana,sans-serif;">At lunch mixed in bananas, applesauce, or sweet potato, etc. and honey: 1/4 zinc, 1/2
mlybd, NeuroProtek, chokeberry powder, 1/3 vitamin C, 1/2
folinic acid, ginkgo, astralagus, coconut oil, 1/2 acetyl carnitine, zeaxanthin, wild blueberry powder, thyroid</span><br />
<span style="font-family: Verdana,sans-serif;"><br /></span>
<span style="font-family: Verdana,sans-serif;">At dinner mixed in coconut milk yogurt and bananas: 1/2 zinc, a touch of mlybd (vitamin C needs minerals present), chokeberry
powder, 1/3 vitamin C, 1/2 folinic acid, ginkgo,
astralagus, coconut oil, wild blueberry powder, thyroid</span><br />
<span style="font-family: Verdana,sans-serif;"><br /></span>
<span style="font-family: Verdana,sans-serif;">2 hours before bed, mixed in goji berry juice or coconut milk probiotic drink: 5-HTP, l-orthinine, and magnesium </span></div>
<span style="font-family: Verdana,sans-serif;"><br /></span>
<span style="font-family: Verdana,sans-serif;">See the Rainbow Recipe at the <a href="http://downsyndromeoptions.org/" target="_blank">OPTIONs website</a> under nutrition for the recipe I use for most of Jett's meals.</span><br />
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<span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;">9-10</span></span><span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;"><span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;">:00</span></span> </span></span><span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;"><span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;">AM</span></span></span> Jett
wakes up, and my husband sets him right outside the bedroom door. (Husband works late so sleeps late.) Jett
usually starts playing with the musical toys (piano, shakers,
tambourine, etc.) that I keep in a box right outside the bedroom door.
(I have a small box of toys in every room. Yes, lovely decor!) This
gives me a little time if I'm mid-sentence in an email or something. Plus, the noise alerts me that he's awake..</span><br />
<span style="font-family: Verdana,sans-serif;">I
take Jett to the child seat on the toilet and give him his B12 drops
and first juice/supplements with a dropper (sometimes he just drinks
it). Then he gets a diaper change
with iodine, nose cleaning and therapy I can do such as RMT and
MacDonald interactions, etc. (He gets an enthusiastic lesson in colors since I use colorful cloth diapers. Once he knows them in English, you can teach him in another language of your choice.) I end with lifting him with a dowel then
swinging. I just incorporate my ND program to suit whatever mood he's
in. Sometimes he's super playful and initiates these exercises on his
own and sometimes he just wants the diaper change over and to get down
on the floor.</span><br />
<span style="font-family: Verdana,sans-serif;">Turn on music (<a href="http://pandora.com/" target="_blank">pandora.com</a>). (I start with Mozart
until he realizes it and insists on Julie Andrews or some other music where the words are distinguishable. A really good station is Sesame Street.) Set
him down for free exploring time. If I haven't
finished making his breakfast and he's not getting into something on his
own, I give him a hand full of organic, gluten-free cereal in a silicone ice cube tray for him to
feed himself and to practice fine motor skills. </span><br />
<span style="font-family: Verdana,sans-serif;"><br /></span>
<span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;">10:30</span> <b>AM</b>
I put his therapy glasses on and turn on Readeez/Brill Kids/other
computer based educational program so I can feed him his small bowl of
supplements. (You can subscribe to <a href="https://www.youtube.com/user/andiandi222/playlists" target="_blank">my youtube channel</a> and see what I play for him.)</span><br />
<span style="font-family: Verdana,sans-serif;"><br /></span>
<span style="font-family: Verdana,sans-serif;">After
supplements, I give him a "nibbler tray" (finger foods that aren't too
messy to clean up: raw zucchini circles, gluten free cereal, celery
sticks, chunks of chicken, apple cubes) to practice fine motor skills.
Or I put him in his chair w/tray and let him feed himself the rest of
his food.</span><br />
<span style="font-family: Verdana,sans-serif;"><br /></span>
<span style="font-family: Verdana,sans-serif;">Once
he's finished eating, I clean him off. I sweep up and get the
automatic mop (SCUBA) started in a different room every day. I do the
same for the Roomba (automatic vacuum). For the carpeted areas, I just take a broom and sweep all the toys quickly in a pile and put them in a toy box I have in each room or just sweep the toys onto the blanket he's played on and put the blanket and contents on the sofa or chair.</span><br />
<span style="font-family: Verdana,sans-serif;"><br /></span>
<span style="font-family: Verdana,sans-serif;"> Then I and take him outside to play, shirtless and
sunscreenless in the sun (ingested coconut oil and fermented cod liver oil offer sun
protection). He plays in the dirt with sandbox toys, we write/draw with
chalk all over the sidewalk, he slides, plays with his push toys and
balls. I incorporate therapy when I can (swinging, walking, etc.). I read my email via cell phone
when he's engaged on his own. When back inside, I stop the SCUBA and
Roomba, do the quick minor cleaning to them and put them away.</span><br />
<span style="font-family: Verdana,sans-serif;"><br /></span>
<span style="font-family: Verdana,sans-serif;">When he was younger and less able to play on his own, his <span class="il">schedule</span> was like this after eating:</span><br />
<span style="font-family: Verdana,sans-serif;">Music off, on floor, while playing: First set of sight words & math lesson.</span><br />
<span style="font-family: Verdana,sans-serif;">Picture flash cards. </span><br />
<span style="font-family: Verdana,sans-serif;">Turn
music back on. I go to the more active play area. Play ball, have him
crawl through his tunnel, have him climb up slide and go over, etc.</span><br />
<span style="font-family: Verdana,sans-serif;">Second
set of sight words & math lesson. Then I set out toys that makes
him crawl around a lot and let him free play. (He enjoyed chasing a
morocco, ball or cup around the house.)</span><br />
<span style="font-family: Verdana,sans-serif;"><br /></span>
<span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;">noon</span> Stair climbing/book.</span><br />
<span style="font-family: Verdana,sans-serif;">Music in headphones.</span><br />
<span style="font-family: Verdana,sans-serif;">Pinhole glasses while watching Readeez. (15 minutes)</span><br />
<span style="font-family: Verdana,sans-serif;">Third set of sight words & math lesson. Stair climbing/book.</span><br />
<span style="font-family: Verdana,sans-serif;">I eat lunch.</span><br />
<span style="font-family: Verdana,sans-serif;"><br /></span>
<span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;">1:30 </span></span><span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;"><span style="font-family: Verdana,sans-serif;">PM</span></span> nap time-- tactile sequence and then breastfeeding until asleep.</span><br />
<span style="font-family: Verdana,sans-serif;"><br /></span>
<span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;">2:30 or 3</span></span><span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;"><span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;">:00</span></span> </span></span><span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;"><span style="font-family: Verdana,sans-serif;">PM</span></span>
(When wakes up from nap.) When he was younger, he'd go on his potty
& watch Between the Lions which is recorded on the DVR. Now, when he sits on the child seat in the bathroom toilet, I play a story on my iPhone from a couple of free story websites. That way we get some auditory processing in.</span><br />
<span style="font-family: Verdana,sans-serif;"><br /></span>
<span style="font-family: Verdana,sans-serif;">Fourth set of sight words & math lesson.</span><br />
<span style="font-family: Verdana,sans-serif;">face to face alphabet</span><br />
<span style="font-family: Verdana,sans-serif;">language related photo cards</span><br />
<span style="font-family: Verdana,sans-serif;"><br /></span>
<span style="font-family: Verdana,sans-serif;"><b>2-4</b></span><span style="font-family: Verdana,sans-serif;"><b><span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;">:00</span></span> </b></span><span style="font-family: Verdana,sans-serif;"><b><span style="font-family: Verdana,sans-serif;">PM</span></b>
Now that he's older, he sleeps from 2-4pm. I get done what I can while
he sleeps. I have lunch ready for him for when he wakes up. </span><br />
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<span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;">4:00 </span></span><span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;"><span style="font-family: Verdana,sans-serif;">PM</span></span> Feed him supplements. Let him feed himself in high chair while I do dishes or eat.</span><br />
<span style="font-family: Verdana,sans-serif;">Read books.</span><br />
<span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;">6:15</span> Go for a walk, play outside until dark.</span><br />
<span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;">9</span></span><span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;"><span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;">:00</span></span> </span></span><span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;"><span style="font-family: Verdana,sans-serif;">PM</span> </span>Give
him a bath. (I have a glass shower, so I sometimes shower at the same
time he's in the bathtub, but I don't know that I'd recommend this. If I
do shower, I write sentences backward to him and he reads them to me.
Sometimes I bring the laptop in and work while he plays in the tub.) In
the tub, he has a xylophone, letters that stick on the side of the tub,
stacking toys, a boat, etc. At 26 months, he makes up crazy words and reads
them out loud.</span><br />
<span style="font-family: Verdana,sans-serif;"><br /></span>
<span style="font-family: Verdana,sans-serif;">Last set of sight words & math lesson.</span><br />
<span style="font-family: Verdana,sans-serif;">Free exploring time in his room & swinging/eye exercises or reading (depending on how active he feels.)</span><br />
<span style="font-family: Verdana,sans-serif;">Read at least five books.</span><br />
<span style="font-family: Verdana,sans-serif;"><br /></span>
<span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;">10</span></span><span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;"><span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;">:00</span></span> </span></span><span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;"><span style="font-family: Verdana,sans-serif;">PM</span></span> Give him supplements in juice. Feed him last supplements and dinner.</span><br />
<span style="font-family: Verdana,sans-serif;">Last diaper change w/essential oils on belly and feet as needed.</span><br />
<span style="font-family: Verdana,sans-serif;"><br /></span>
<span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;">11:00 </span></span><span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;"><span style="font-family: Verdana,sans-serif;">PM</span></span> When he was younger, I'd pick him up and give him tactile stimulation/massage or read a book to calm him down.</span><br />
<span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;">11:15 </span></span><span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;"><span style="font-family: Verdana,sans-serif;">PM</span></span> breastfeed until he falls asleep. Set him down.</span><br />
<span style="font-family: Verdana,sans-serif;">Clean kitchen, load dishes.</span><br />
<span style="font-family: Verdana,sans-serif;">Set food aside for breakfast.</span><br />
<span style="font-family: Verdana,sans-serif;">Pull out his foods for the next day from the freezer.</span><br />
<span style="font-family: Verdana,sans-serif;">Put something together for Daddy's dinner. </span><br />
<span style="font-family: Verdana,sans-serif;"><br /></span>
<span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;">12:15 </span></span><span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;"><span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;">AM</span></span></span> Daddy comes home. Eat dinner with him.</span><br />
<span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;">1-2:00</span> </span><span style="font-family: Verdana,sans-serif;"><span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;">AM</span></span> Go to bed.</span><br />
<span style="font-family: Verdana,sans-serif;"><b><br /></b></span>
<span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><b>Our Schedule at 4 years old</b></span> (with addition of baby brother, Oliver, 15 months old, who is recovering well from a brain injury)</span><br />
<span style="font-family: Verdana,sans-serif;"><br /></span>
<span style="font-family: Verdana,sans-serif;"><b>8:30 </b></span><span style="font-family: Verdana,sans-serif;"><b><span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;">AM</span></span></b> We all wake up (all in the same room, so it's simultaneous...)</span><br />
<span style="font-family: Verdana,sans-serif;">1/2 of his Thyroid meds (He can't eat any food for a 1/2 an hour after thyroid meds.)</span><br />
<span style="font-family: Verdana,sans-serif;">Potty</span><br />
<span style="font-family: Verdana,sans-serif;">Jett puts on his "eating clothes" (so that supplements won't stain, etc.) (I lay out his clothes on the floor and he puts them on himself. If it's winter, I lay them in front of the heater.)</span><br />
<span style="font-family: Verdana,sans-serif;">I get dressed and eat my square of chocolate. </span><br />
<span style="font-family: Verdana,sans-serif;">Jett has free time while I attend to Oliver's diaper, essential oils application, clothes change and while Daddy makes breakfast upstairs (yes, he's a keeper!) Jett can get into his Lego's, musical toys, blocks, books, etc. on his own. I put essential oils on Jett as well.</span><br />
<span style="font-family: Verdana,sans-serif;">I switch over the laundry from washer to dryer to laundry basket, etc. Jett helps by separating the socks before they go into the washer. He also will sort things into baskets (but we don't put them away yet).</span><br />
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<span style="font-family: Verdana,sans-serif;"><b>9:00</b> </span><span style="font-family: Verdana,sans-serif;"><span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;">AM </span></span>We move upstairs. Music is on and Oliver gets floor time (either in kitchen at Daddy's feet or near where Jett and I are. We put him on a big blanket and put his favorite stuff on the perimeter like a keyboard, huge stack of blocks to knock over, a ukelele, a xylophone, tray of wooden food, books, etc.) I feed Jett his supplements (yes, I still do this because I want to make sure he eats it all. I will be transitioning to small capsules ASAP so he can do this on his own, with me watching.) During supplements, we do his Spanish or Japanese. For Spanish, we are using the Play and Learn Spanish book and CD so we learn one song a week and the corresponding vocabulary and conversation. I use Google translate on my phone for proper pronunciation of each word. He will take a bite of supplements for each new word he hears. (Yes, he's a nerd!) For Japanese, we are using the Teach Me Japanese book and CD in the same manner.</span><br />
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<span style="font-family: Verdana,sans-serif;"><b>9:30</b> </span><span style="font-family: Verdana,sans-serif;"><span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;">AM </span></span>Breakfast! Jett feeds himself, of course. Oliver is in the high chair feeding himself. I'm eating and feeding Oliver his supplements too (or Daddy is, depending). Jett goes through his My Second Dictionary and picks out his word of the day. (He chooses a word that he hasn't seen before.) We take turns making sentences with the new word.</span><br />
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<span style="font-family: Verdana,sans-serif;">by <b>10:30</b> </span><span style="font-family: Verdana,sans-serif;"><span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;">AM </span></span>breakfast is finished. When Jett's done, he tells me and we wash off and Jett, Oliver and I go outside or I turn on a "movement show" like Bo on the Go!, Barney Dance, the Wiggles (only ones with Closed Captions for Jett), Rock N Learn's Dance with Animals, Get Fit America for Kids, Little Yogis or Yoga Kids. Once Oliver is done, he joins Jett on blankets on the floor. Daddy or I clean up the kitchen. Daddy escapes downstairs to do his freelance work.</span><br />
<span style="font-family: Verdana,sans-serif;">If Jett has homework, this is when we do it. If I'm running behind, I might feed Jett his supplements while he's dancing.</span><br />
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<span style="font-family: Verdana,sans-serif;"><b>11:00</b> </span><span style="font-family: Verdana,sans-serif;"><span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;">AM </span></span>Brush teeth, potty and put on school clothes. I give Jett a lot of time here to do it himself as much as possible. At this point, he does it all except for shoes and jacket.</span><br />
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<span style="font-family: Verdana,sans-serif;"><b>11:30</b> </span><span style="font-family: Verdana,sans-serif;"><span style="font-family: Verdana,sans-serif;"><span style="font-weight: bold;">AM </span></span>Jett, Oliver and I are out the door to drop him off school. (This is when I would schedule any appointments for myself or go grocery shopping and be back in time to pick Jett up from his 3-hour school day. On Thursdays, I take Oliver for the next 5 hours to his various therapies. On Jett's days off school, I take Jett to his therapies for the next five hours.) If the weather is bad, or someone (grandma, grandpa) is available to watch Oliver, he stays and plays with them.</span><br />
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<span style="font-family: Verdana,sans-serif;"><b>12:00</b> <b>PM</b> Oliver and I are back. I put down Oliver for a nap.</span><br />
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<span style="font-family: Verdana,sans-serif;"><b>12:30</b></span><span style="font-family: Verdana,sans-serif;"><b><span style="font-family: Verdana,sans-serif;"> <b>PM</b></span></b> I make lunch (for me and also for Jett when he gets home), eat lunch, clean up, get Jett's supplements ready for the next three days. This is also when I schedule Skypes with parents.</span><br />
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<span style="font-family: Verdana,sans-serif;"><b>1:30</b></span><span style="font-family: Verdana,sans-serif;"><span style="font-family: Verdana,sans-serif;"> <b>PM</b></span> Oliver wakes up (Sometimes he only sleeps for ten minutes -- but I'm being optimistic by leaving an hour and a half here!)</span><br />
<span style="font-family: Verdana,sans-serif;">Oliver gets fed then we do his MNRI and ND exercises. </span><br />
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<span style="font-family: Verdana,sans-serif;"><b>2:30</b></span><span style="font-family: Verdana,sans-serif;"><b><span style="font-family: Verdana,sans-serif;"> <b>PM</b></span></b> Oliver and I get Jett from school. (Or I leave him if some sweet relative is available!) Jett gets the second half of his thyroid at 2:45.</span><br />
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<span style="font-family: Verdana,sans-serif;"><b>3:00</b></span><span style="font-family: Verdana,sans-serif;"><b><span style="font-family: Verdana,sans-serif;"> <b>PM</b></span></b> Jett takes off his shoes, goes potty, changes into his eating clothes. He has free time. Sometimes he's in the mood for another movement show.</span><br />
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<span style="font-family: Verdana,sans-serif;"><b>3:15</b></span><span style="font-family: Verdana,sans-serif;"><span style="font-family: Verdana,sans-serif;"> <b>PM</b></span> (Half an hour after thyroid dose.) Jett gets his second set of supplements. He eats lunch. Oliver has floor time, either in kitchen with me while I make/start dinner or nearer to Jett. He helps me sweep up under the table. He has his own broom and dustpan and holds the dustpan for me then dumps it out.</span><br />
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<span style="font-family: Verdana,sans-serif;"><b>4:00</b> </span><span style="font-family: Verdana,sans-serif;"><span style="font-family: Verdana,sans-serif;"> <b>PM </b></span>Jett has free time. We go outside whenever possible. I do MNRI/ND exercises with him or with Oliver or both.</span><br />
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<span style="font-family: Verdana,sans-serif;"><b>6:00</b> </span><span style="font-family: Verdana,sans-serif;"><span style="font-family: Verdana,sans-serif;"> <b>PM </b></span>Finish dinner (Jett helps when possible, or more like when I'm in a particularly patient mood!), eat dinner, clean up after dinner. I pick out what frozen foods I need to thaw overnight for the next day. Afterwards, Jett helps clean up his toys and books.</span><br />
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<span style="font-family: Verdana,sans-serif;"><b>7:15</b> </span><span style="font-family: Verdana,sans-serif;"><span style="font-family: Verdana,sans-serif;"> <b>PM </b></span>This would be bath time. Right now, Oliver, Jett and I take a bath together (I'm in a swimsuit) because Oliver can't sit up yet and Jett is just now going through separation anxiety and won't bathe on his own. Or Daddy and Jett will shower together. Or I will get to shower alone. If Jett takes a bath alone, I play an audio book like Tales of Peter Rabbit or, his favorite, Poems every Child Should Know. Then we move downstairs. This is when Jett helps me with the laundry. He loves to sort and put his clothes away, including folding.</span><br />
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<span style="font-family: Verdana,sans-serif;"><b>8:00</b> </span><span style="font-family: Verdana,sans-serif;"><span style="font-family: Verdana,sans-serif;"> <b>PM </b></span>Oliver has floor time and Jett has free time or watches an educational show (like The Cat in the Hat knows a Lot about That, Daniel Tiger's Neighborhood, Sid the Science Kid, Peg + Cat, Little Einsteins, Dora or Diego etc.) TV time this late is not ideal, but... Sometimes Jett and I play a game. I go on the internet.</span><br />
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<span style="font-family: Verdana,sans-serif;"><b>8:30 </b></span><span style="font-family: Verdana,sans-serif;"><b><span style="font-family: Verdana,sans-serif;"><b>PM</b></span></b> I do the more calming MNRI/ND stuff with either child. Sometimes Daddy does one while I do the other.</span><br />
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<span style="font-family: Verdana,sans-serif;"><b>9:00</b> </span><span style="font-family: Verdana,sans-serif;"><span style="font-family: Verdana,sans-serif;"> <b>PM </b></span>Jett's on the potty. I give him his night time supplements. We take turns brushing his teeth. I switch over the laundry from washer to dryer to laundry basket, etc. </span><span style="font-family: Verdana,sans-serif;">I put essential oils on both boys. </span><br />
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<span style="font-family: Verdana,sans-serif;"><b>9:30</b> </span><span style="font-family: Verdana,sans-serif;"><span style="font-family: Verdana,sans-serif;"> <b>PM </b></span>Everyone's in the bed. Daddy verbally tells one story (to increase auditory processing) with lights out.</span><br />
<span style="font-family: Verdana,sans-serif;">...(This is when I try to sneak out of bed and go online.)</span><br />
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</span></span><span style="font-family: Verdana,sans-serif;"><br /><script type="text/javascript" defer="defer" src="//script.opentracker.net/?site=dsdaytoday.blogspot.com"></script></span>Andi Durkinhttp://www.blogger.com/profile/03651762223667606607noreply@blogger.com3tag:blogger.com,1999:blog-1989545445919628676.post-14472011662741333322014-10-21T21:44:00.000-04:002017-05-18T18:34:22.072-04:00What is the Anat Baniel Method and How does it work with Neurodevelopmental Therapy?I used Neurodevelopomental therapy with Jett and have gotten great results. (See my Therapy page for details.) So, when I had Jett's baby brother, Oliver, who suffered a brain injury shortly after birth, I naturally went to ND. Well... because of Oliver's PSTD (Post Traumatic Stress Disorder) and because of his spasticity (muscle ridgeness), I couldn't really manipulate him as needed for some aspects of his ND program. (It made him tighter and angrier.) Instead, I had to look to the ABM and MNRI to get him calm enough and loose enough to continue with ND.<br />
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I haven't yet tried ABM or MNRI for Jett, but am interested in exploring the benefits of ABM for our children with Down syndrome. That brings me to Rashmi Sundareswara, a lovely mom with a child with Down syndrome who uses both ABM and ND when working with her adorable and smart, Teyjas. She has graciously taken the time to write this beautiful piece for us....<br />
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<i>You can see a World in a Grain of Sand</i><br />
<i>And a Heaven in a Wild Flower</i><br />
<i>Hold Infinity in the palm of your hand</i><br />
<i>And Eternity in an hour</i><br />
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-William Blake<br />
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Have you ever experienced wonder in the midst of a mundane or an unpleasant experience? If so, then it’s probably because you stopped to pay very close attention, even if just for a few seconds, to the beauty of it all – the process of unfolding, of discovery.<br />
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That “attention” is the one of the nine essentials of the “Anat Baniel Method” (ABM) [Baniel, 2012]. When combined with the other 8 essentials, it can be very powerful in transforming our movement, our thinking and our lives, wherever we are at. The power of the ABM philosophy (as well as mindfulness in parenting in general [Zinn, 1997]) has been vital for our family. It gives us a way to see our kids for who they are and not through our veils of fear and anxiety. Science is now validating that ancient practices of mindfulness meditation can bring about beneficial effects on attention and emotion regulation, both of which are important for cognition[Kilpatrick, 2011, Kang 2013, Wells, 2013, Zeidan, 2010]. In addition, studies show that it can delay the progression of Alzheimer's, probably due to its influence on the brain's attentional and emotional networks. <br />
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The brain longs to find patterns, make sense and “create order from the chaos” [Baniel, 2012] it sees around it. Our brains are endowed with billions of neurons and trillions of connections for the purpose of interpreting stimuli from our sense organs. What we make sense of depends on what we bring our attention to. During an infant’s first couple of months, there is a lot of differentiation in the brain – straight lines vs curves, mother’s voice versus father’s voice, mother’s smell versus dad’s, straightening out a knee versus bending, etc. In all this, a baby is actively moving and sensing with attention (Essential No. 1) and often doing so slowly (Essential No. 2) to get new input for feeding its hungry brain’s need to differentiate. The brain is craving “variation” (Essential No. 3) and hence the little scientist is motivated to gather input by experimenting with different ways of bending that knee or moving the pelvis. As the baby grows, the differentiation becomes more subtle (Essential No. 4) for example, grabbing the rattle ever so gently versus attempting to grab it with force. Imagining (Essential No. 8) herself being picked up when her mother comes near, a baby can replicate the sensation by activating the strong muscles in her pelvis. This skill, with enough practice, turns into another skill of rolling over – something a baby practices over and over because she is so enthusiastic about it (Essential No. 5). Throughout the child’s life, learning is taking place as long as the child is motivated and aware (Essential No. 9), which keeps the child’s “learning switch” on (Essential No. 7). Freeing ourselves from rigidity and having flexible goals (Essential No. 6) for our children gives them the freedom to experiment with their movement and their thinking and can help them become curious, independent, motivated, gritty and happy individuals. <br />
<a href="http://www.amazon.com/gp/product/0399537368/ref=as_li_tl?ie=UTF8&camp=1789&creative=9325&creativeASIN=0399537368&linkCode=as2&tag=dosyadatodagu-20&linkId=QKZUJVH7FFIDHZOY" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://ws-na.amazon-adsystem.com/widgets/q?_encoding=UTF8&ASIN=0399537368&Format=_SL160_&ID=AsinImage&MarketPlace=US&ServiceVersion=20070822&WS=1&tag=dosyadatodagu-20"></a><img alt="" border="0" src="https://ir-na.amazon-adsystem.com/e/ir?t=dosyadatodagu-20&l=as2&o=1&a=0399537368" height="1" style="border: none !important; margin: 0px !important;" width="1">
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These nine essentials, brilliantly described by Anat, are what the “typical” brain does naturally. When a child has special needs, one or more of these essentials is not functioning well. What the Anat Baniel Method (ABM) and concepts in the book, <a href="https://www.blogger.com/%3Ca%20href=%22http://www.amazon.com/gp/product/0399537368/ref=as_li_tl?ie=UTF8&camp=1789&creative=9325&creativeASIN=0399537368&linkCode=as2&tag=dosyadatodagu-20&linkId=Q7RCCHHWPJFMPJW5%22%3EKids%20Beyond%20Limits:%20The%20Anat%20Baniel%20Method%20for%20Awakening%20the%20Brain%20and%20Transforming%20the%20Life%20of%20Your%20Child%20With%20Special%20Needs%3C/a%3E%3Cimg%20src=%22http://ir-na.amazon-adsystem.com/e/ir?t=dosyadatodagu-20&l=as2&o=1&a=0399537368%22%20width=%221%22%20height=%221%22%20border=%220%22%20alt=%22%22%20style=%22border:none%20!important;%20margin:0px%20!important;%22%20/%3E" target="_blank"><b>Kids Beyond Limits</b></a> (KBL) [Baniel, 2012] aim to do is bring back the missing essential(s) into the movement or thought pattern that is compromised so that learning can be improved. <br />
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The ABM method imparts a deep respect for the “process” of development and discovery by the child rather than milestones in and of themselves. By focusing on the process, we as parents are present to the wonder of our child’s current abilities rather than what “should” be. When a learning process unfolds naturally, it creates a rich web of connections in the brain that are intentionally redundant. Redundancy makes sure that the brain learns many ways of doing the same thing. Imagine a spider web that is richly woven. This rich web makes sure that there are many ways to get to the same spot. Redundancy is everywhere in nature – from the blood vessels in our brain to the rich network of veins on a leaf. When something gets broken, redundant networks make sure that the job can still get done. They provide resistance to damage and allow space for creativity. <br />
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Neurodevelopmental programs provide activities that are geared to help the child’s developmental process as well and/or to address sensory needs (in addition to a whole host of other programs like reading, math, etc). Many ND programs have a list of activities to be done with a certain frequency, intensity and duration. In several activities (especially those for younger children), the goal is to provide input to the child’s brain by the parent since the child’s muscle tone or sensation/perception system is not allowing them to generate the input for themselves. We do NACD with our son, which also wants the “process” to unfold by itself – by helping to develop areas such as muscle tone, oral awareness or auditory processing just to name a few. They have techniques that go beyond the original Doman-Delacato method that they are based on and are also continuously evolving in their quest to help children achieve their fullest potential. <br />
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There are many who feel that neurodevelopmental (ND) programs are at odds with various aspects of the nine essentials of the ABM method. So can the two be reconciled? I believe so and I hope this blog entry can help you find ways to add an ABM flavor to whatever ND program you might follow. I would also highly recommend reading Anat’s book, <b>Kids Beyond Limits</b> for a thorough explanation of the nine essentials and taking classes with an ABM practitioner. This short blog opinion is in no way doing justice to the rich information that is contained in the book. In addition to going into detail about each Essential, the book contains lots of scientific studies validating the nine Essentials. I am extremely grateful for Anat and her work, as well as her practitioners, Marcy Lindheimer and Brendan Elms, who have all helped my child (and myself) and thousands of other children. My heart was palpitating with excitement when I first read her book – every sentence is exactly in line with my background and interest in mindfulness. I was so excited that there was someone out there who validated the importance of mindfulness for raising a child with special needs. <br />
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For me, doing the suggested activities in our ND program while keeping the ABM principles in mind required a shift in my thinking. I had to be creative and attentive, rather than do them on automatic pilot . Even though I may only get in 30%-40% of a day’s frequency (hard enough for a working mom who also wants her son to primarily play after he returns from his wonderfully stimulating preschool), what is important to me is to have done it mindfully and with my son’s attention. Sometimes, the stress and the anxiety of not getting through a program can deter us from doing it with mindfulness. The beauty and rich possibility of the present moment with our child will dissipate very quickly if we let concerns of the future, our anxiety or our schedules take over. And most unfortunately, this is what our children too will learn – our anxiety and stress. I am guilty of this every day, but I am getting better (it’s a process, right?!). However, I want to parent for the long-term – I want to have fun with my child during these crucial, formative years but do so in a productive manner. <br />
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For the remainder of this discussion, I will use examples of four activities that are quite common to most ND programs for kids with Down syndrome: deep pressure on the limbs, the sit-stand sequence, oral stimulation and auditory processing. For each one, I’ll describe how I do it while keeping the nine Essentials in mind. <br />
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<b>Deep-pressure/sit-stand</b><br />
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This activity in an ND program is suggested to increase the sensation in the low-muscle tone child. It comes with a certain daily frequency, intensity and duration to normalize the tone. I wondered when my son would get bored with it and not care for it anymore. I mean, honestly, if I was deep-pressured or tickled 6 times a day for weeks on end, would I still be tickled? Wouldn’t I become desensitized to it? But I have normal muscle tone and my son does not, so I do not know if he will have the same reaction. However, I do know how I can make sure that my child is paying attention to it. So, I use the Essentials: “awareness” and “movement with attention” not just for my son, but for myself as I interact with him. When I apply deep pressure, I think of it as way of discovering him, as if the first time. “Hmmm…. This is what his toes feel like – his little toe is just as cute as when he was born! …. Interesting, I had not noticed before how his thigh skin is so much softer than the skin on his calf.” My brain was developing subtleties and hence becoming more differentiated too because I was not on “automatic pilot”! He too, seemed to be enjoying the activity more because I showed him so much more attention. That is one of the best gifts we can give our children – our full attention. But wait! He soon got tired of me doing that, so then I had to think of other ways of holding his and my own attention. I started drawing alphabets on his legs and he was so excited to guess what they were! Some other suggestions from the book are to pause when you are about to start a movement with him and to support and exaggerate the movement. For the sit-stand portion of the activity (this is where the one or more parents help the child pull-up to stand from a sitting position) I also tried to exaggerate the movement of pulling him up to stand. I asked him to feel how strong his legs were – and he used to laugh. I changed up the way I said “strong” to a deep, deep tone. I varied what he would be sitting on when he was pulled up to stand. Sometimes, the platform he was sitting on was only an inch high; sometimes, it was 5 inches high. I would sometimes give him only one arm to hold onto, sometimes two.<br />
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I would vary the spacing between his left and right leg, putting one or both feed on the platform, sometimes even let him get close to falling … you get the idea. Variation. It’s important – the brain thrives on it. My brain thrives on it! I needed to think of ways to change it up to prevent myself from going on auto-pilot. That is something I want to avoid for myself and my son because that is end of useful information for the brain. We want the information to be as novel as possible because that means new synaptic connections in the brain. The end result is hopefully multiple ways of completing a task from a host of starting points. When you see your child successfully learn to use a shape-sorter, for instance, you will probably have noticed that at first the child was experimenting with all sorts of incorrect orientations of the shape through the sorter until the right one clicked. Having learned this way time and time again probably meant that he could fit the piece correctly no matter what orientation it started in his hand. That is the idea here with “variation” and can apply to almost any skill your child learns. I’ll end this section by saying that it had come to a point where my son would beg me to do “sit-stand” with him!<br />
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<b>Patterning? </b><br />
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As far as the activity of patterning goes, I’ve wondered why it works for some kids and some do not. I think the key is “attention.” Here are my thoughts: ABM says that stimulation, for example, given by the parents, by moving the child’s limbs for them – patterning – is not the same as information to the brain. What does this mean? This means that as long as the child’s brain is not paying attention to the particular sensation, then it’s not information to the brain – it is just stimulation. Attention to anything – even for us adults – is what transforms outside stimulation into usable information by the brain. How many times have you walked in your neighborhood and discovered some aspect of a house (or an entire house!) that’s always been there and you have looked at a thousand times before? We need to have our children feel, be aware, interested and excited about the activity – then the attention to the movement happens – and the connections form. Without it, one can pattern, pattern, pattern and not get the desired results – what one might get instead is a lot of frustration for both parent and child. You want to, as much as possible, as Anat says, to “invite” the movement, rather than “impose” it. <br />
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<b>Oral Stimulation</b><br />
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Hard one. Most people reading this might be familiar with the ‘nuk’ brush. The bumpy brush that we are supposed to rub and massage the insides of the mouth with. Again, same idea here: if you want the child to feel it as much as possible, we have to make them 1) look forward to doing it and 2) feel the sensations that we intend for them by having them pay attention to it. To this end, I sometimes have him feel the bumps on his finger and then I ask him, “hmm… I wonder what this would feel like inside your mouth?” Once when I said that, he grabbed the brush excitedly from me and put it in his mouth! Sometimes, I draw letters on his tongue and ask him to guess what they are or I ask him what alphabet he would like me to draw. I do the same for around his cheeks. If your child is not familiar with the alphabet yet, you can try drawing a “ball” or a “triangle” or anything simple that your child is familiar with. I have also asked him if the nuk brush feels differently on his fingers than it does on his tongue, and how so. The possibilities are endless. I will admit that it can be exhausting constantly think up new ways of having him feel the brush in his mouth, so I sometimes just use it on his body for a change.<br />
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<b>Auditory Processing</b><br />
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There are many suggested ways of doing auditory processing. I will take one example to expound upon: digit span. This activity requires the caregiver/teacher to say out loud to the child a certain amount of digits, a second apart, and the child repeats it back in the correct sequence. The number of digits usually grows linearly with age up to a point. My son counts in four different languages (English, French, Spanish and my native language of Kannada – a language of one of the states in the Southern India). We do digit span in different languages. He was first used to doing it in English only, so when we introduced the different languages, it threw him off a little. The result was that he paid more attention and got back on track. He still prefers to do the activity in English, but the other languages provide enough variation to keep it interesting and difficult.<br />
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<b>And in the end...</b><br />
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Doing our ND program is not easy. It requires enormous discipline to come back and do the same set of activities day in and out. The only way one can come back and do it over and over again is if there is the strong belief that it will work. This belief, for my husband and myself, wavers all the time, even though we have seen good results for our son and have a huge amount of respect for NACD. Let me explain why. The first issue is that of time – both my husband and I work full-time. The second is our own parenting legacies: My husband and I were raised in two different continents. We were both just left to play, however we wished to by our parents, when we were under their care. Neither of our parents are technical-minded, however now my husband has a Masters in Mathematics (almost a doctorate) and I have a doctorate in Computer Science (my focus incidentally is Artificial Intelligence). Granted we achieved this because of the opportunities that environment provided for us and hard work – but it was not in the way of our parents helping us when were young other than allowing us to be whatever we wanted to be. I understand that our children need more help than typical kids, but just how much help is a question I constantly struggle with… I want him to learn to read by himself because he wants to do so; because he sees how excited I am to read with him, not necessarily through flashcards. You see my dilemma. I do want to work hard with my son, but what I really want to teach him, along with increasing his muscle tone, sensory issues, is “grit” because that studies show that is more powerful than IQ [Tough, 2012] in navigating our world. (Quick digression here, I just want to mention even though reading does change the brain in desirable ways, specifically sharpening visual attention skills, strengthening split-second micro movements of eye muscles, it also makes one less adept at other visual feats that people with dyslexia are good at – spotting visual anomalies and a propensity for visual causal reasoning [Schneps, 2014], skills that serve scientists well).<br />
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<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEir4ck6-imxfL796jgmakFV6TPaQqknKThcv89Q1evgmUwiXYtjINuMSYXt86hckXCdmF2MXXWwPhbv14fo33JwSxidzlBwFwFlSZEhKmlDzeRGlMnKaS7Iv09I87tH8iH_vbg_e8brdBw/s1600/Puzzle.png" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEir4ck6-imxfL796jgmakFV6TPaQqknKThcv89Q1evgmUwiXYtjINuMSYXt86hckXCdmF2MXXWwPhbv14fo33JwSxidzlBwFwFlSZEhKmlDzeRGlMnKaS7Iv09I87tH8iH_vbg_e8brdBw/s1600/Puzzle.png" height="320" width="320"></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Teyjas independently finishing a 24-piece jigsaw puzzle.</td></tr>
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Doing our ND program with the nine Essentials in mind makes it a bit more exciting and hopefully more effective. However it also requires a huge amount of discipline – discipline to be completely aware of my intention as I work or play with my son (Is it kind or anxious or greedy?), discipline to not “impose” desired movement on him but to gently “invite” it from him, and discipline to not let feelings of discouragement come through in my interactions with him. It is a daily practice achieved through frequently becoming aware of the state of our body, breath and mind. This skill of focused contemplation gets better with time – not just with frequency, intensity, duration, (ha ha – sorry, couldn’t help it!), but with a generous amount of self-compassion. Parenting any child is hard enough, but parenting a child who has some extra needs is phenomenally hard. It is easy to judge ourselves all day long. If we are compassionate to ourselves first, then it becomes easier to transfer it to the other people in our lives – including and especially our children who are doing marvelously despite the issues they face.<br />
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The old adage, “It’s the journey, not the destination” (or the process, not the milestone!) really fits my journey on this path of parenting my son. My son, Teyjas, just turned four. He continues to surprise me everyday – not just with his cognition and speech, but his “grit”, his motivation and his humor. I want my son to glean from my husband’s and my own experiences – successes and failures – in parenting him. I want him to know that just like there are innumerable questions/methods on how to help our kids – there is always an answer lurking around – and its an exciting, gritty, grateful, journey to sort through it all – and best of all – to see each new moment as ripe with potential.<br />
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Thank you Andi for extending to me the opportunity to voice my thoughts on your well-deserved, extremely inspiring blog for parents of children with Down syndrome.<br />
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<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjrUYYe_jba3YLonO_fxVKCQRxrqtZIQuecVzQ-4SK0Uc8NpjZCpARMpuglXqjAnEKHg0-8ps1o8hanALBctkWgMYgRlwmqTr8BN_34_jYUAWOan3NyplrwVOFsWU6FsP93zpx0zmqA__c/s1600/Coconut.png" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjrUYYe_jba3YLonO_fxVKCQRxrqtZIQuecVzQ-4SK0Uc8NpjZCpARMpuglXqjAnEKHg0-8ps1o8hanALBctkWgMYgRlwmqTr8BN_34_jYUAWOan3NyplrwVOFsWU6FsP93zpx0zmqA__c/s1600/Coconut.png" height="320" width="175"></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Teyjas loves coconuts!</td></tr>
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May all our children break through stereotypes of the past.<br />
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May we all gracefully walk the fine line of high expectations and acceptance.<br />
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May we all be present to the enormous love, compassion and possibility in every moment.<br />
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Rashmi Sundareswara and her (incredible) husband Sam Peterson are parents to Teyjas, recently turned 4 year old (with Down syndrome), and 6-month old Maya. We all live in sunny Santa Monica, CA.<br />
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<br /><br />*Anat's take on “intensity”: The “intensity” issue. Amos Tversky and Daniel Kahaneman’s research demonstrated that under uncertainty conditions people will not diverge more than 30% off their baseline/start point. ND is based on the DD (Doman-Delacato) approach that believed in lots of hours daily of exercising the desired function. <br />That can easily lead to greater grooving in of existing limitations, or portions there of. <br />Current research shows the incredible instantaneous and HUGE changes that can occur within a few minutes if the brain gets the info it needs and that continued “practice” right away actually can inhibit the changes. So if ND can go beyond the 30% change from the baseline, I would redefine intensity to mean – CHANGE! And when change occurred it is time to stop for a while – preferable at least a day and come back to it gently and minimally later. And if there is no change after a few minutes then – STOP – because its not working. Do something else.<br />
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<span style="color: #990000;"><b>References</b></span><br />
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Baniel, Anat, (2012), Kids Beyond Limits, New York, NY. Penguin Group.<br />
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Decharms RC, Merzenich M., (1996). Neural Representations, Experience and Change. The Mind-Brain Continuum, MIT Press.<br />
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Tough, P. (2012) How Children Succeed. Grit, Curiosity and the Hidden Power of Character, New York, NY, Houghton Mifflin Hartcourt, 2012<br />
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Zinn, Jon-Kabat, (1997) Everyday Blessings: The Inner work of Mindful Parenting, New York, NY, Hyperion.<br />
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Schneps, Matthew (2014) The Advantages of Dyslexia. Scientific American. August 19, 2014. http://www.scientificamerican.com/article/the-advantages-of-dyslexia/<br />
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Kilpatrick LA, Suyenobu BY, Smith SR, Bueller JA, Goodman T, Creswell JD, Tillisch K, Mayer EA, Naliboff BD (2011) Impact of Mindfulness-Based Stress Reduction training on intrinsic brain connectivity, NeuroImage. 56(1):290-8. doi: 10.1016/j.neuroimage.2011.02.034. Epub 2011 Feb 18.<br />
http://www.ncbi.nlm.nih.gov/pubmed/21334442<br />
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Kang DH, Jo HJ, Jung WH, Kim SH, Jung YH, Choi CH, Lee US, An SC, Jang JH, Kwon JS. (2013) The effect of meditation on brain structure: cortical thickness mapping and diffusion tensor imaging. Soc Cogn Affect Neurosci. 2013 Jan;8(1):27-33. doi: 10.1093/scan/nss056. Epub 2012 May 7.<br />
http://www.ncbi.nlm.nih.gov/pubmed/22569185<br />
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Rebecca Erwin Wells, Gloria Y. Yeh, Catherine E. Kerr, Jennifer Wolkin, Roger B. Davis, Ying Tan, Rosa Spaeth, Robert B. Wall, Jacquelyn Walsh, Ted J. Kaptchuk, Daniel Press, Russell S. Phillips, Jian Kong. (2013). Meditation's impact on default mode network and hippocampus in mild cognitive impairment: A pilot study. Neuroscience Letters, 2013; 556: 15 DOI:10.1016/j.neulet.2013.10.001<br />
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Zeidan F, Susan K. Johnson, Bruce J. Diamond,, Zhanna David, Paula Goolkasian, (2010) Mindfulness Meditation Improves Cognition: Evidence of Brief Mental Training. Consciousness and Cognition, Volume 19, Issue 2, June 2010, Pages 597–605<br />
http://www.sciencedirect.com/science/article/pii/S1053810010000681<br />
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<b style="font-size: x-large; text-align: left;">Down Syndrome Day to Day</b><span style="font-size: large; text-align: left;"> blog readers often ask me what they can do for ME...</span></div>
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<span style="font-size: large;"><i>Well, this is your chance!</i></span><br />
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<span style="font-family: Verdana, sans-serif;"> Just </span><a href="http://www.change.org/petitions/down-syndrome-specialty-clinics-recognize-the-value-of-biomedical-treatment-of-children-and-adults-with-down-syndrome?utm_campaign=petition_created&utm_medium=email&utm_source=guides"><span style="font-family: Verdana, sans-serif;">sign this petition</span></a><span style="font-family: Verdana, sans-serif;"> for better health care for children and adults with Down syndrome! Do share it with friends and family.<br /><br /><strong>What good will this do?</strong><br /><br />With enough signatures to show support, we can bring our story to big media and physician associations. This is the only way we can show the world the support that's out there for children with DS! Think of all of the kids who will be helped. The new generation of DS treatment is here and NOW!<br /><br /><strong>Petition Summary:</strong><br /><br />We simply ask doctors to read the research that already exists to help understand the underlying causes for the health issues commonly experienced by children with Down syndrome and to recognize the possibility that the health of a child with Down syndrome can be greatly impacted by diet, lifestyle, supplements and proper thyroid treatment.</span></div>
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<b>Petitioning Down Syndrome Specialty Clinics</b></div>
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This petition will be delivered to:</div>
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Down Syndrome Specialty Clinics </div>
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Medical Geneticists </div>
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Endocrinologists</div>
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<strong>Recognize the value of biomedical treatment of children and adults with Down syndrome</strong><br />
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The completion of the Human Genome project in 2003 opened up research into the underlying cause of many genetic conditions, including Down syndrome. The over-expression of genes for the enzymes SOD, CBS and DRYK1A are all linked to the phenotype of Down syndrome. There has been a recent explosion of research in the area of understanding the cognitive delays that often accompany Down syndrome. A large collection of research occurred before this recent explosion to uncover vitamin and amino acid deficiencies, defects in the methylation cycle and causes of oxidative stress, to name a few. The underlying causes of the Down syndrome phenotype are recognized by many well-known and respected researchers, but not by the very doctors that see these patients on a daily basis.<br />
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Some parents of children with Down syndrome choose to give their children supplements like a multivitamin, fish oil and green tea extract, among others. Many parents who give their children supplements do so, not with the goal of improved cognition, but to help their children be healthier. <br />
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There is a growing online community of parents of children with Down syndrome who have expressed their frustration with doctors who dismiss their concerns for their child's symptoms. Many doctors excuse these concerns as "just Down syndrome". These parents seek help from one another to better understand their child's own health when doctors can't. There are only a handful of doctors who have the knowledge and training to help guide these parents through the vast amount of information available on supplements that have been researched and shown to be helpful.<br />
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In addition, the symptoms of Down syndrome are identical to that of congenital hypothyroidism. The type of hypothyroidism experienced by many children and adults with Down syndrome is not detected by a TSH or T4 lab test. Cellular hypothyroidism is the term that has been used to describe what people with Down syndrome experience. The symptoms of this type of hypothyroidism are the same as hypothyroidism caused by a defect in the thyroid gland itself. The conversion of T4 to the active thyroid hormone T3 is imperative to the function of all cells. A second version of T3 exists that is called reverse T3. It is a stereoisomer, a mirror image, of active T3 and is inactive within the cell. <br />
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Physiologic processes that contribute to an elevated reverse T3 are low iron, low or high cortisol levels, inflammation and oxidative stress. People with Down syndrome experience all of these processes. Active thyroid hormone is essential for the functioning of literally every cell of the body. Without it people experience slow gut motility, slow growth, delayed cognition and many other symptoms that are so common to people with Down syndrome.<br />
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We simply ask that doctors start reading the large body of research that exists to help understand the underlying causes for the health issues commonly experienced by children with Down syndrome and open up to the possibility that the health of a child with Down syndrome can be greatly impacted by diet, lifestyle, supplements and proper thyroid treatment.<br />
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To: <br />
Down Syndrome Specialty Clinics <br />
Medical Geneticists <br />
Endocrinologists <br />
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Recognize the value of biomedical treatment of children and adults with Down syndrome <br />
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Sincerely, <br />
[Your name] <br />
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If you need more information about anything mentioned in this petition, please feel free to ask!</div>
Andi Durkinhttp://www.blogger.com/profile/03651762223667606607noreply@blogger.com0tag:blogger.com,1999:blog-1989545445919628676.post-5518128845013873572014-03-21T19:02:00.001-04:002014-03-30T14:30:09.358-04:00Celebrate World Down Syndrome Day!<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjS-ijKx-tPv2Hh7Zx3LXs6pFXl1ZqXrqDvdAkpRDeU-WOAUxLoXR8F7CcfdYEDkQqG0yCk4d6vO57DBBa9jA7M24D628i1bZLr6sjcB4Hwof4awCcYK_uNhF7wHjtvQPHpmLz6-4pC5ac/s1600/DS+day+logo.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjS-ijKx-tPv2Hh7Zx3LXs6pFXl1ZqXrqDvdAkpRDeU-WOAUxLoXR8F7CcfdYEDkQqG0yCk4d6vO57DBBa9jA7M24D628i1bZLr6sjcB4Hwof4awCcYK_uNhF7wHjtvQPHpmLz6-4pC5ac/s1600/DS+day+logo.jpg" height="118" width="320" /></a></div>
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<span style="font-size: large;">Celebrate World Down Syndrome Day by <a href="http://www.change.org/petitions/down-syndrome-specialty-clinics-recognize-the-value-of-biomedical-treatment-of-children-and-adults-with-down-syndrome?utm_campaign=petition_created&utm_medium=email&utm_source=guides" target="_blank">signing this petition</a> for better health care for children and adults with Down syndrome.</span> </div>
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<span style="font-size: large;">Down Syndrome OPTIONs is educating parents NOW to improve the health and development of our loved ones. Come join us and make a difference!</span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjiAjOYZVIcPQVuyAI9pZYE3Jz3y3-7o_cqIsRzCx5RSSjy08fg_7ORxc9bND9criUBzcxxLqs1a2MgrpYGQmDB_J9j0_l1uyYmt6h0g822ZiHd8CZfiLkkWUlmLZq7Cc6bSlz0Qsk6a4Y/s1600/OPTIONs+Logo+New+copy.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjiAjOYZVIcPQVuyAI9pZYE3Jz3y3-7o_cqIsRzCx5RSSjy08fg_7ORxc9bND9criUBzcxxLqs1a2MgrpYGQmDB_J9j0_l1uyYmt6h0g822ZiHd8CZfiLkkWUlmLZq7Cc6bSlz0Qsk6a4Y/s1600/OPTIONs+Logo+New+copy.jpg" height="122" width="320" /></a></div>
Andi Durkinhttp://www.blogger.com/profile/03651762223667606607noreply@blogger.com0tag:blogger.com,1999:blog-1989545445919628676.post-5550595944256493042014-03-19T13:16:00.003-04:002014-03-19T13:39:31.268-04:00Down Syndrome Conference May 2014<div data-mce-style="text-align: center;">
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<span style="color: #0b5394; font-family: Verdana, sans-serif;"><b><b><i><a href="http://www.downsyndromeoptions.org/" target="_blank">Down Syndrome OPTIONs</a> presents</i></b></b></span></div>
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</b><span style="font-size: large;"><b><span class="Apple-style-span" data-mce-style="color: #3d85c6; font-family: Arial, Helvetica, sans-serif;"> </span><span class="Apple-style-span" data-mce-style="color: #3d85c6; font-family: Arial, Helvetica, sans-serif;">T</span><span class="Apple-style-span" data-mce-style="color: #3d85c6; font-family: Arial, Helvetica, sans-serif;">he </span></b><b><span class="Apple-style-span" data-mce-style="color: #3d85c6; font-family: Arial, Helvetica, sans-serif;">Down Syndrome Track </span></b></span><br /><b><span class="Apple-style-span" data-mce-style="color: #3d85c6; font-family: Arial, Helvetica, sans-serif;">at the </span></b><br /><b><span class="Apple-style-span" data-mce-style="color: #3d85c6; font-family: Arial, Helvetica, sans-serif;">2014 AutismOne Conference</span></b><b style="line-height: 16px;">!</b></span></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;"><b style="line-height: 16px;">May 21-22, 2014 </b></span></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;"><span style="line-height: 16px;"><b><br /></b></span><b>at the </b><br /><b>Intercontinental Hotel O'Hare Chicago </b><br /><b>in </b><b>Rosemeont IL</b></span></div>
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<span style="color: #0b5394; font-family: Verdana, sans-serif;"><b><span class="Apple-style-span" data-mce-style="color: #3d85c6; font-family: Arial, Helvetica, sans-serif;" style="font-size: medium;"><a href="http://www.autismone.org/ao_conference_registration" style="outline: none;" target="_blank">Register now</a> </span></b><b style="text-align: center;"></b></span><br />
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<span style="color: #0b5394; font-family: Verdana, sans-serif;"><b style="text-align: center;"><b><span class="Apple-style-span" data-mce-style="color: #3d85c6; font-family: Arial, Helvetica, sans-serif;" style="font-size: medium;">to experience the event of the year!</span></b></b></span></div>
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<span style="font-family: Verdana, sans-serif;"><br />The conference (May 21-25) is $99, with two full days of Down Syndrome specific presentations (May 21-22) and five days of pertinent, helpful topics from the autism community like fermentation, homeopathy, healthy cooking, boosting immunity, supporting gut health and much, much more. That's a small price to pay for access to such great information!<br /><br />In addition to the life-changing information, you will meet up with parents, researchers and doctors in person. It will be an amazing experience you won't want to miss!</span></div>
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<span style="font-family: Verdana, sans-serif;">I'm excited to meet you at the <a href="http://www.downsyndromeoptions.org/" target="_blank">Down Syndrome OPTIONs</a> booth.</span><br />
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<a href="http://www.autismone.org/Childcare-Autismone-Conference-2014" style="color: #417b96; font-family: Verdana, sans-serif; outline: none;" target="_blank">Childcare is available</a><span style="font-family: Verdana, sans-serif;">.</span><span style="font-family: Verdana, sans-serif;"><br /></span><br />
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<b><span style="font-size: medium;"><span style="color: #0b5394; font-family: Verdana, sans-serif;">Speaker Sneak Peek:</span></span></b></div>
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<span style="font-family: Verdana, sans-serif;">Dr. Norman Schwartz</span></div>
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<span style="font-family: Verdana, sans-serif;">Jill Rabin, MS, CCC-SLP</span></div>
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<span style="font-family: Verdana, sans-serif;">Dr. Russell Jaffe</span></div>
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<span style="font-family: Verdana, sans-serif;">Jane Winans, Mom</span></div>
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<span style="font-family: Verdana, sans-serif;">Dr. Richard Freely</span></div>
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<span style="font-family: Verdana, sans-serif;">Lydia Winans, elementary school student</span></div>
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<span style="font-family: Verdana, sans-serif;">Dr. Erica Peirson</span></div>
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<span style="font-family: Verdana, sans-serif;">Leslie Boswell, Mom</span></div>
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<span style="font-family: Verdana, sans-serif;">Dr. Jared Skowron</span></div>
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<span style="font-family: Verdana, sans-serif;">Allison Wimmer, neurodevelopmentalist</span></div>
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<span style="font-family: Verdana, sans-serif;">Dr. Richard Deth</span></div>
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<span style="font-family: Verdana, sans-serif;">Dr. P.J. Baggot</span></div>
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<span style="font-family: Verdana, sans-serif;">Andi Durkin, Mom</span></div>
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<span style="font-size: medium;"><b><span style="color: #0b5394; font-family: Verdana, sans-serif;">Topic Sneak Peek:</span></b></span></div>
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<span style="font-family: Verdana, sans-serif;">Optimizing Pregnancy and Early Infancy</span></div>
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<span style="font-family: Verdana, sans-serif;">Available tests – treatment staging</span></div>
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<span style="font-family: Verdana, sans-serif;">Navigating the Journey</span></div>
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<span style="font-family: Verdana, sans-serif;">Methylation and Epigenetic Regulation in Down Syndrome</span></div>
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<span style="font-family: Verdana, sans-serif;"><br /><br /><b><span style="font-size: medium;">Click the links to check out previous year's presentations:</span></b><br /><b><span style="font-size: medium;"><br /></span></b></span><br />
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<span style="font-family: Verdana, sans-serif;"><b><span style="color: #3d85c6;"><a href="http://www.autismone.org/content/glutamate-how-monitor-and-mediate-its-effects-down-syndrome-erica-peirson-nd" style="color: #417b96; outline: none;" target="_blank">Glutamate: How to monitor and mediate its effects in Down Syndrome</a></span></b><span style="background-color: white; color: #393939; line-height: 16.890625px;"><br /></span><br /><b><span style="color: #3d85c6;">Notes: <a href="http://www.autismone.org/content/glutamate-how-monitor-and-mediate-its-effects-down-syndrome" style="color: #417b96; outline: none;">Glutamate: How to monitor and mediate its effects in Down Syndrome</a></span></b></span></div>
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<span style="font-family: Verdana, sans-serif;">Glutamate, the major excitatory neurotransmitter in the brain, is both essential and highly toxic. Patients with Down Syndrome experience a higher rate of oxidative stress that damages neurons, potentially exposing them to the harmful effects of excess glutamate released from damaged neurons. Mediating the effects of excess glutamate is essential to optimizing the health of neurons.<span style="color: #3d85c6;"><br /></span></span><br />
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<span style="color: #3d85c6;"><i><span style="color: #444444;"><span style="font-family: Verdana, sans-serif;">Erica Peirson, ND</span></span></i></span></div>
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<span style="font-family: Verdana, sans-serif;"><br /><b><span style="color: #3d85c6;"><a href="http://www.autismone.org/content/norm-schwartz-md-biomedical-and-thyroid-basics-where-begin" style="color: #417b96; outline: none;" target="_blank">Biomedical and Thyroid Basics: Where to Begin</a></span></b></span></div>
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<span style="font-family: Verdana, sans-serif;"><span style="color: #3d85c6;"><b><br /></b></span><b><span style="color: #3d85c6;">Notes: <a href="http://www.autismone.org/content/biomedical-and-thyroid-basics-where-begin" style="color: #417b96; outline: none;">Biomedical and Thyroid Basics: Where to Begin</a></span></b></span></div>
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<span style="font-family: Verdana, sans-serif;">Dr. Schwartz will review the history and scientific research documenting the benefit of nutrient and thyroid support in Down Syndrome. He will explain low risk, high gain interventions to: optimize nutrition and supplementation; monitor and support thyroid; choose first line, functional lab tests; avoid environmental toxins; and support detoxification. These are the building blocks needed to form a solid foundation upon which your child may flourish.<span style="color: #3d85c6;"><br /></span></span><br />
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<span style="color: #3d85c6;"><i><span style="color: #444444;"><span style="font-family: Verdana, sans-serif;">Norm Schwartz, MD</span></span></i></span></div>
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<span style="font-family: Verdana, sans-serif;"><b><span style="color: #3d85c6;"><span style="outline: none;"><a href="http://www.autismone.org/content/biochemistry-down-syndrome-opportunities-intervention-kent-macleod" style="color: #417b96; outline: none;" target="_blank">The Biochemistry of Down Syndrome: Opportunities for Intervention</a></span></span></b></span></div>
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<span style="font-family: Verdana, sans-serif;"><b><span style="color: #3d85c6;">Notes: <a href="http://www.autismone.org/content/biochemistry-down-syndrome-opportunities-intervention" style="color: #417b96; outline: none;">The Biochemistry of Down Syndrome: Opportunities for Intervention</a></span></b></span></div>
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<span style="font-family: Verdana, sans-serif;">Can nutritional supplements benefit individuals with Down syndrome? Kent MacLeod will review the history of supplementation in Down syndrome, and discuss recent advances in nutritional science and how those innovations can be used to positively impact the biochemistry of Down syndrome.</span></div>
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<span style="color: #3d85c6;"><i><span style="color: #444444;"><span style="font-family: Verdana, sans-serif;">Kent MacLeod</span></span></i></span></div>
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<span style="font-family: Verdana, sans-serif;"><b><a href="http://www.autismone.org/content/action-plan-parents-children-down-syndrome-andi-durkin" style="outline: none;" target="_blank">Action Plan for Parents of Children with Down Syndrome</a></b></span></div>
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<span style="font-family: Verdana, sans-serif;"><b><br /></b><b><span style="color: #3d85c6;">Notes: <a href="http://www.autismone.org/content/action-plan-parents-children-down-syndrome" style="color: #417b96; outline: none;">Action Plan for Parents of Children with Down Syndrome</a></span></b></span></div>
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<span style="font-family: Verdana, sans-serif;">With proper intervention—physical, nutritional, neurodevelopmental, medicinal and environmental—your child's future can be full of opportunities instead of obstacles.<br />I've devised a proactive plan of action while addressing my three year old child's root causes and symptoms of Down syndrome. This is an exciting journey and I'm happy to share with you what I have learned.<span style="color: #3d85c6;"><br /></span></span><br />
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<span style="color: #3d85c6;"><i><span style="color: #444444;"><span style="font-family: Verdana, sans-serif;">Andi Durkin</span></span></i></span></div>
<span style="font-family: Verdana, sans-serif;"><span style="color: #3d85c6;"></span><span style="color: #3d85c6;"><b><a href="http://www.autismone.org/content/gaps-gut-and-psychologyphysiology-syndrome-kris-gustafson" style="color: #417b96; outline: none;" target="_blank">GAPS™ - Gut And Psychology/Physiology Syndrome</a></b></span></span></div>
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<span style="font-family: Verdana, sans-serif;"><span style="color: #3d85c6;"><b><br /></b></span><b style="color: #3d85c6;">Notes: <a href="http://www.autismone.org/content/gaps%E2%84%A2-gut-and-psychologyphysiology-syndrome" style="color: #417b96; outline: none;">GAPS™ - Gut And Psychology/Physiology Syndrome</a></b></span></div>
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<span style="font-family: Verdana, sans-serif;">GAPS™ (Gut And Psychology/Physiology Syndrome) shows the underlying cause of some of the symptoms that plague special needs children, such as digestive issues, malabsorption, food sensitivities and toxicity. This session will explain how the state of the gut directly affects the health of the body and how the GAPS™ nutritional protocol can heal or greatly improve many of these symptoms.<span style="color: #3d85c6;"><br /></span></span><br />
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<span style="color: #3d85c6;"><i style="color: #444444;"><span style="font-family: Verdana, sans-serif;">Kristin Gustafson</span></i></span></div>
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<span style="color: #3d85c6;"><b><span style="font-family: Verdana, sans-serif;"><br /><a href="http://www.autismone.org/content/enzymes-and-gut-health" style="color: #417b96; outline: none;"><span style="color: #3d85c6;">Enzymes and Gut Health</span></a></span></b></span></div>
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<span style="font-family: Verdana, sans-serif;"><span style="color: #3d85c6;"><b><br /></b></span>Parents deal with gut issues on a daily basis. Many parents of children with Down's Syndrome deal with the same GI problems experienced by those with autism. Digestive enzymes from non-animal sources can often improve many problems associated with food intolerance and malabsorption. This lecture will help parents understand what enzymes are and how they work in digestive health</span></div>
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<i style="color: #444444;"><span style="font-family: Verdana, sans-serif;">Devin Houston, PhD</span></i></div>
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<b><a href="http://www.autismone.org/content/feeding-options-and-oral-motor-methods-paving-way-optimal-speech" style="color: #417b96; outline: none;"><span style="color: #3d85c6;"><span style="font-family: Verdana, sans-serif;">Feeding Options and Oral Motor Methods: Paving the Way for Optimal Speech </span></span></a></b></div>
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<span style="font-family: Verdana, sans-serif;">This talk will educate participants on current and optimal dietary options to ensure better overall health for their child with Down syndrome. The impact of diet and different methods on how to transition children with Down syndrome to solid foods will be discussed. Oral motor and feeding treatment methods will be explained as well as the importance of using these methods in order to develop a strong foundation for feeding skills and the development of speech.<span style="color: #3d85c6;"><br /></span></span><br />
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<span style="color: #3d85c6;"><i style="color: #444444;"><span style="font-family: Verdana, sans-serif;">Jill Rabin M.S. CCC-SLP/L IBCLC</span></i></span></div>
<span style="font-family: Verdana, sans-serif;"><span style="color: #3d85c6;"></span><br /><b><a href="http://www.autismone.org/content/lets-learn-reading-math-and-fun-stuff" style="color: #417b96; outline: none;"><span style="color: #3d85c6;">Let's Learn - Reading Math and Fun Stuff</span></a></b></span></div>
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<span style="font-family: Verdana, sans-serif;">Learn and discuss fun ways to help your child read, do math, socialize, and play. Explore simple, logical strategies and activities which will increase overall retention of the information being presented. Sometimes the best teaching strategies are the most obvious.<span style="color: #3d85c6;"><br /></span></span><br />
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<span style="color: #3d85c6;"><i style="color: #444444;"><span style="font-family: Verdana, sans-serif;">Alison Wimmer</span></i></span></div>
<span style="font-family: Verdana, sans-serif;"><span style="color: #3d85c6;"></span><br /><b><a href="http://www.autismone.org/content/balance-tips-busy-household-lydia-presents-her-life" style="color: #417b96; outline: none;"><span style="color: #3d85c6;">Balance tips for a busy household & Lydia presents her life</span></a></b></span></div>
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<span style="font-family: Verdana, sans-serif;">How do I balance it all? This talk gives helpful tips for maintaining balance while juggling therapies, doctor appointments, food restrictions, other children, marriage and self. What are the possibilities for my child? Lydia is in 4th grade and will share a slice of her life with you.<span style="color: #3d85c6;"><br /></span></span><br />
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<span style="color: #3d85c6;"><i data-mce-style="color: #444444; font-style: italic;" style="color: #444444;"><span style="font-family: Verdana, sans-serif;">Jane Winans, MA and Lydia Winans</span></i></span></div>
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<span style="font-family: Verdana, sans-serif;"><span style="color: #3d85c6;"></span><br /><b><a href="http://www.autismone.org/content/predictive-biomarkers-t21" style="color: #417b96; outline: none;"><span style="color: #3d85c6;">Predictive Biomarkers in T21</span></a></b></span></div>
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<span style="font-family: Verdana, sans-serif;">Comparative effectiveness research depends upon a group of objective, independent predictive biomarkers. A current state of the art in regard to evidence based predictive biomarkers will be presented and discussed.<span style="color: #3d85c6;"><b><br /></b></span></span><br />
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<span style="color: #3d85c6;"><i><span style="color: #444444;"><span style="font-family: Verdana, sans-serif;">Russell Jaffe, MD, PhD, CCN</span></span></i></span></div>
<span style="font-family: Verdana, sans-serif;"><span style="color: #3d85c6;"><b></b></span><span style="color: #3d85c6;"><br /></span><b><a href="http://www.autismone.org/content/down-syndrome-evidence-susceptible-subgroup-vaccine-injury" style="color: #417b96; outline: none;" target="_blank"><span style="color: #3d85c6;">Down Syndrome: Evidence of a Susceptible Subgroup for Vaccine Injury</span></a></b></span></div>
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<span style="font-family: Verdana, sans-serif;">This talk will present biologically based evidence that children with Down syndrome are uniquely susceptible to injury from vaccines. With an 18% ASD comorbidity, we will explore the mechanisms that may connect vaccines to autism in this highly vulnerable population. The relationship of vaccines to Alzheimer’s will also be discussed.<span style="color: #3d85c6;"><br /></span></span><br />
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<span style="color: #3d85c6;"><i style="color: #444444;"><span style="font-family: Verdana, sans-serif;">Laurette Janak</span></i></span></div>
<span style="font-family: Verdana, sans-serif;"><span style="color: #3d85c6;"></span><br /><b><a href="http://www.autismone.org/content/health-risks-down-syndrome-moms-and-what-do-about-it" style="color: #417b96; outline: none;"><span style="color: #3d85c6;">Health Risks for Down Syndrome Moms and What to Do About It</span></a></b></span></div>
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<span style="font-family: Verdana, sans-serif;">Layman’s terms will be used to explain the folate cycle and its implication to the health risks for a mother with a Down syndrome child. Topics to be discussed include: depression, heart disease, Alzheimer’s, cancer and risk for having a child with autism. Strategies to minimize these risks will be presented.<span style="color: #3d85c6;"><br /></span></span><br />
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<span style="color: #3d85c6;"><i><span style="color: #444444;"><span style="font-family: Verdana, sans-serif;">Laurette Janak</span></span></i></span></div>
<span style="font-family: Verdana, sans-serif;"><span style="color: #3d85c6;"></span><br /><b><a href="http://www.autismone.org/content/boost-cognition-potential" style="color: #417b96; outline: none;"><span style="color: #3d85c6;">Boost Cognition Potential</span></a></b></span></div>
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<span style="font-family: Verdana, sans-serif;">Dr. Anju Usman will explain biomedical techniques for optimizing a healthy gut-brain connection including uncovering roadblocks to function as well as introducing nutrients for brain repair and neurogenesis.</span></div>
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<i><span style="color: #444444;"><span style="font-family: Verdana, sans-serif;">Anju Usman, MD</span></span></i></div>
<span style="font-family: Verdana, sans-serif;"><br /><a href="http://www.autismone.org/content/neuroepigenetic-regulation-and-down-syndrome" style="color: #417b96; outline: none;"><span style="color: #3d85c6;"><b>Neuroepigenetic Regulation and Down Syndrome</b></span></a><br /><span style="background-color: white; color: #393939; line-height: 16.890625px;"><br /></span></span></div>
<span style="font-family: Verdana, sans-serif;">What is epigenetic regulation of gene expression, and why is it particularly important in brain development? This presentation will provide a fundamental understanding of epigenetics, focusing on the specific implications of chromosome 21 trisomy.</span><br />
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<i><span style="color: #444444;"><span style="font-family: Verdana, sans-serif;">Richard Deth, PhD</span></span></i></div>
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Andi Durkinhttp://www.blogger.com/profile/03651762223667606607noreply@blogger.com4