Down Syndrome: A Day to Day Guide: Start

Tricycling at 3

Welcome! I'm Andi, mother to Jett, seven years old, who has Down syndrome (also called T21).

I'm sure you've already heard the possible negatives about T21: slow development, language impairment, cognitive delays, and a whole host of possible health problems.

Basically, you have also been told to lower your expectations for your precious baby.

But, in actuality, the most significant handicap that your baby has may be your lowered expectations!

I created this website to change that. Everything you have heard and read previously is probably about children who grow up untreated for T21. But with proper intervention — physical, nutritional, neurodevelopmental, medicinal, educational, and environmental — your baby's future will be full of opportunities instead of obstacles.

Painting at 4 years old

In fact, at four years old, Jett went through five hours of testing before he started 4K, and he did not qualify as having an intellectual disability, nor did he need speech therapy. He read at a 5th-grade level with comprehension at 2nd-grade. No, these results are not typical — not even for a neurotypical child!

Let's raise those expectations! Here's a post showing some of Jett's progress.

I share with you a proactive plan of action to treat your baby's root causes to prevent many of the symptoms of T21 from surfacing and how to deal with the symptoms that do appear until we find a way to prevent them. There's new research every day! This is an exciting journey, and I'm happy to guide you and learn from you as well.

S9 months

I designed these blog posts so that you can find your own way and create your own path, but if you would like me to help you create an action plan in a more personalized way (even help in finding local practitioners, etc.), you can contact me for my services which can include Zoom, Skype, a phone call and follow up emails, depending on what you would prefer. (I would love to continue providing this service for free, but the requests were so numerous that it interfered with my ability to care for my own family.)

Through my blog, I will explain what I have done and am doing with Jett to help him reach his potential. This information can help you to allow your baby to flourish. If your loved one is no longer a baby, welcome, there are plenty of tips for you as well!

It's natural to feel overwhelmed.... There's a lot of information here. You can't learn and do all of this in one day (or week or month...)! I'm hoping to save you the time and anguish of sorting through all the information that's out there on T21. I want to allow you to spend quality time enjoying and nurturing your child rather than spending the time I already have going through piles of research. I am very open-minded and update blog posts according to my latest findings, but I do have specific beliefs about what works best and what doesn't, and I only share what I either endorse or am still open to and am researching. Feel free to share your experiences and solutions you may have privately or as a comment for others to see.

Keep up-to-date by subscribing in a reader to this blog or signing up to get each new post automatically sent to you by entering your email address in the "Follow by Email" box on the right of your screen. I'd love to know that you are actively benefiting from this blog by signing in as a "follower." It's a small way to let me know you are listening! You can also friend me on Facebook, where I share DS-related news and let you know when I've updated posts.

A note to new parents: Please do not feel that you have to give your sweet little newborn with their delicate tummy lots of vitamins and supplements immediately! My Jett couldn't tolerate anything other than breast milk for the first four months, and he's turning out very well. Some babies can take a vitamin from day one, while others can't tolerate anything until six months old. All is not lost! It's most important that you attend to their basic baby needs, plus extra stimulation. Your love and attention are what he needs most during his precious early months! Please see the Prenatal/Newborn Page or Baby Page for details on what you can do now.

Plan of Action______________________________________________

Yes, all of our children have Down syndrome, but each one is unique and shows different symptoms of having DS. In fact, “among numerous abnormalities reported in DS, no finding except for the extra chromosomal material is constant” (Jeziorowska et al., 1988; De La Torre et al., 1996). (Remember this when your doctor/practitioner says, "It's just DS, and there's nothing you can do.") This action plan, therefore, is set up as a guide that you can tweak for your child's specific needs.

1) Get inspired! Check out how well children who have benefited from biomedical intervention and alternative therapies are doing:

Meet 10 year old Lydia Supplemented and was on neurodevelopment program, both at early ages.
Gryffin & Lucas
Jett at 3 years old, reading a word in English, translating it to Japanese and then spelling the word using Hiragana, the Japanese alphabet.
Teyjas, 4 years old, recites the alphabet backwards. He was only taught it forwards.
Lucas and his inventors
Lucas en espanol Speaking Spanish at 4 years old. Supplemented and on neurodevelopment program with mom as OT.
11 year old Lydia speaking on what it's like to be a preteen.
Laura's "K" Reading Ages 2-4 She's been on a neurodevelopment program early with a healthy, organic diet and started TNI at age 3.
Jett, spelling at 4 years old, it was an off day, but you get the idea.
Jett Pretending to Read at 16 Months Started neurodevelopmental therapy since around birth and TNI at 3.5 months old.
Jett sight reading at 18 months old.
Jett at 19 months reading 9 words in 1 minute 40 seconds.
Sleep Study: The Results
Emmanuel Bishop playing the Bach Minuet on violin at age 14. I know he's on a multivitamin, not sure what else, but his Dad is an advocate and avid researcher. Emmanuel is also a great swimmer, golfer, is bilingual and does speaking engagements.
4-year-old Jett reading. He chose "An Alphabet of Dinosaurs". You'll see why it's hard to get a good video...
Biomedical intervention in adults
20 year old Nathan Purdy Speaking He's been supplemented for many years and his awesome mom worked extensively with him. A delightful young man!

2) Fix the common, often overlooked, medical and physical situations our loved ones often have.

a. How to Find A Quality Physician & Get Organized with a Medical Notebook

b. Learn about Immunizations. Please take the time to see this easy to understand video on Vacc ines and Down Syndrome.

c. Treat the Thyroid Vital! 100% of our kids will develop thyroid issues. You a have a small window to fix before permanent damage sets in.

d. Lab Tests: Which to Request, What they Mean and How to Get a Good Blood Draw

e. Learn How to Keep Nasal Passages Clear and Mouths Closed

f. Protect Your Child's Hearing

g. Celiac Disease & Down Syndrome

h. The Heart & Down Syndrome & Preparing for Heart Surgery/Hospital Stay

i. Help Your Child to Communicate Better

j. Find out why Crawling is more Important than Sitting or Standing and then learn tips on Teaching Your Baby to Crawl

k. Learn how to Stimulate Growth

l. Low Muscle Tone: What to Do

m. Support proper sleep. See Sleep Study: The Results

n. Learn Natural Ways to Help with ADD & Hyperactivity

o. Improve Your Child's Vision

3) Clean up your family's diet with non toxic foods & foods that best support healing and health. See Nutritional Page for details.

4) Detoxify your surroundings.
This issue is more important for our children than you may realize. See Environmental Page for details.

5) Start therapy that addresses the core issues.
See Therapy Page for details.

6) Supplement Accordingly.

Our kids have much more difficult time with getting nutrients from food because of gut issues so supplementation is very important for their health and well being.

Starting with a Down syndrome-specific multivitamin is a good idea. Then you can figure out what your child might be specifically deficient in by checking out Signs of nutritional deficiency, getting muscle tested from an NAET practitioner/ some chiropractors, getting blood work for vitamin levels or by getting tested from a zyto machine technician.

NAET, (Nambudripad's Allergy Elimination Technique) are energy treatments that help "clear" allergies. You can read the book: NAET: Say Good-bye to your Allergies by Davi S. Nambudripad or go to naet.com to better understand how it works.

ZYTO technology uses quantum physics as well as established Galvanic Skin Response (GSR) technology to measure fluctuations in electrical conductivity of the skin. The response helps the practitioner to see how the body responds to the items being assessed, which ones it prefers, and how much it prefers them.

a. Which Multivitamin?

b. Here is Jett's Supplement List with links to my explanations as to why I chose them and how I give them.

c. Learn about The Connection Between Alzheimer's Disease & Down Syndrome

d. Here is one mom's Journey with Diet and Supplements

e. Another mom shares her simple explanation of why she supplements her child with DS with more tips and explanations.

7) Learn More & Get Connected

Check out the Parent's Resources for Guidance on Down Syndrome for books, websites, blogs, DVDs and forums that I recommend.
Subscribe to this blog
Join me on Facebook
Join the community at the not for profit Down Syndrome OPTIONs.

8) If you can't find the answer to your question in this blog, or if you would like me to help you create an action plan in a more personalized way, you can contact me via email or Facebook for my services.

Blog Pages

Prenatal & Newborn Care Start Here

Infant/Baby Care Start Here

Children Care Start Here

Adult Care Start Here
Treatment can be started at any age and with great results. It's never too late to make a difference!