Here is a collection of links in this blog to help with caring for an adult with Down syndrome. Learn how to help lesson the effects of Alzheimer's disease, increase brain function, improve sleep, etc. Please feel free to share other great links and resources for adults. (It hasn't been my primary focus, so any suggestions would be great!)
If you are wondering how treatment can help adults, take a look at this short video about the Changing Minds Foundation: http://vimeo.com/2236150. You will see how treatment can make a difference at any age.
If you are wondering how treatment can help adults, take a look at this short video about the Changing Minds Foundation: http://vimeo.com/2236150. You will see how treatment can make a difference at any age.
Plan of Action
1) Fix the common, overlooked medical and physical situations our loved ones have.
a. How to Find A Quality Physician
b. Treat the Thyroid
c. Alzheimer's Disease & DS: Connection and Treatment
d. Celiac Disease & Down Syndrome (Sounds scarier than it is--easily controllable!)
d. Celiac Disease & Down Syndrome (Sounds scarier than it is--easily controllable!)
e. Sleep issues
2) Correct the diet with non toxic foods & foods that best support healing and health. See Nutritional Page for details.
3) Detoxify surroundings. See Environmental Page for details.
4) Supplement Accordingly.
a. Which Multivitamin?
b. Changing Minds Foundation Protocol
c. Learn about Alzheimer's Disease & DS: Connection and Treatments
2) Correct the diet with non toxic foods & foods that best support healing and health. See Nutritional Page for details.
3) Detoxify surroundings. See Environmental Page for details.
4) Supplement Accordingly.
a. Which Multivitamin?
b. Changing Minds Foundation Protocol
c. Learn about Alzheimer's Disease & DS: Connection and Treatments
Medical Care
Biomedical Intervention
Environmental Considerations
Nutritional Information
Advocacy
This post will lead you to a whole mind set in caring for your loved one.
Success Stories
Wondering how well treated people are doing? Take a look for yourself.
- Meet 10 year old Lydia Supplemented and was on neurodevelopment program, both at early ages.
- Gryffin & Lucas
- Lucas and his inventors
- Lucas en espanol Speaking Spanish at 4 years old. Supplemented and on neurodevelopment program with mom as OT.
- Laura's "K" Reading Ages 2-4 She's been on a neurodevelopment program early with a healthy, organic diet and started TNI at age 3.
- Jett Pretending to Read at 16 Months Started neurodevelopmental therapy since around birth and TNI at 3.5 months old.
- Here's a video of Jett sight reading at 18 months old.
- Jett at 19 months reading 9 words in 1 minute 40 seconds.
- Sleep Study: The Results
- Emmanuel Bishop playing the Bach Minuet on violin at age 14. I know he's on a multivitamin, not sure what else, but his Dad is an advocate and avid researcher. Emmanuel is also a great swimmer, golfer, is bilingual and does speaking engagements.
- Biomedical intervention in adults
- 20 year old Nathan Purdy Speaking He's been supplemented for many years and his awesome mom worked extensively with him. A delightful young man!
- Six Year Old Mac Austin: In the News
- Changing Mind Foundation Success Stories
- Gregory DeSilva on the Local News
Inspirational Stories about Adults with Down syndrome
I don't know if these lovely people are treated or untreated, but their stories are inspiring. Thanks to Liora for gathering these great links!
1) ZhouZhou ("JoJo") is a famous conductor in China has Down syndrome www.china.org.cn/english/
2) This woman is a Kindermusik Instructor.
http://www.wltx.com/news/
http://www.wltx.com/news/
3) This woman is an actress on the TV show Glee and dates an Einstein-Syndrome listmate's son, too!
4) This woman is a Journalist
http://www.jpost.com/
http://www.jpost.com/
5) This woman got married to a typical non disabled guy and had a healthy baby without Ds.
The basic story:
Cinthia met Miguel, they fell in love, got married and now Augusto is born.
The details: Cinthia has DS, Miguel doesnt have a disability, nor does Augusto.
Watch the video on the link below.
http://mediacenter.clicrbs.
Here the translation of the docs first line:
"I took the sonar, put on her stomach and heard the heart. I told her mother - jane, this is your grandsons heart. You can imagine what it was. Cintia took off her glasses , started to cry and said -thank god it is a baby i have inside my belly." "Later on they say "In the medical literature, there are 30 women with Down syndrome who have had perfect children, affirms her gynecologist and obstetrician, Dr Renato Poli"
Another story about it: Apparently, a documentary is being produced.
http://m.youtube.com/index?
http://m.youtube.com/index?
The basic story:
Cinthia met Miguel, they fell in love, got married and now Augusto is born.
The details: Cinthia has DS, Miguel doesnt have a disability, nor does Augusto.
Watch the video on the link below.
http://mediacenter.clicrbs.
Here the translation of the docs first line:
"I took the sonar, put on her stomach and heard the heart. I told her mother - jane, this is your grandsons heart. You can imagine what it was. Cintia took off her glasses , started to cry and said -thank god it is a baby i have inside my belly." "Later on they say "In the medical literature, there are 30 women with Down syndrome who have had perfect children, affirms her gynecologist and obstetrician, Dr Renato Poli"
Another story about it: Apparently, a documentary is being produced.
http://m.youtube.com/index?
http://m.youtube.com/index?
6) This man is a musician, black belt in Tae Kwan Do, and a World Game special Olympian.
www.sujeet.com
www.sujeet.com
7) This man is an artist
users.psln.com/sharing/
8) These two men are authors and activists
http://www.amazon.com/Count-
9) These 4 young adults with Ds (and one with Williams Syndrome) live together. They attend college, work, go dancing, bar hopping, vacationing together, to karaoke. (web Reality Show, short segments)
http://the-specials.com/
10) Sanna Sepponen, a woman with down syndrome, has been an actress in a famous local soap opera here in Finland. Here is a youtube clip. Unfortunately it is in finnish language but shows at least that she actually is pretty good in what she is doing (in that clip she is getting angry to another girl as she thinks the girl stole his boyfriend). Nowadays she is in a reality show which tells about life of five friends who are all somehow handicapped and living together in a service house.
http://www.youtube.com/watch?
And below a wikipedia link in english to this info:
http://en.wikipedia.org/wiki/
users.psln.com/sharing/
8) These two men are authors and activists
http://www.amazon.com/Count-
9) These 4 young adults with Ds (and one with Williams Syndrome) live together. They attend college, work, go dancing, bar hopping, vacationing together, to karaoke. (web Reality Show, short segments)
http://the-specials.com/
10) Sanna Sepponen, a woman with down syndrome, has been an actress in a famous local soap opera here in Finland. Here is a youtube clip. Unfortunately it is in finnish language but shows at least that she actually is pretty good in what she is doing (in that clip she is getting angry to another girl as she thinks the girl stole his boyfriend). Nowadays she is in a reality show which tells about life of five friends who are all somehow handicapped and living together in a service house.
http://www.youtube.com/watch?
And below a wikipedia link in english to this info:
http://en.wikipedia.org/wiki/
11) first reporter with ds from brasilhttp://www.youtube.com/
12) Down Syndrome Doesn’t Keep Plano Boy From Getting Black Belt
http://dfw.cbslocal.com/2011/
12) Down Syndrome Doesn’t Keep Plano Boy From Getting Black Belt
http://dfw.cbslocal.com/2011/
13) An 18 year old competitive swimmer
http://www.dawn.com/2011/06/
http://www.dawn.com/2011/06/
14) A well spoken and critically acclaimed actor with Down syndrome
http://www.thejewishweek.com/
http://www.thejewishweek.com/
15) Jan 2012 Dancer With Down Syndrome Wins First Place In Contest
Man With Down Syndrome Wins In National Ballroom Competition
Man With Down Syndrome Wins In National Ballroom Competition
16) Woman with DS starring in role in Upstairs Downstairs
http://www.dailymail.co.uk/
http://www.dailymail.co.uk/
17) Dance Troupe in Madrid all with DS
http://current.com/groups/
http://current.com/groups/
18) Sheri Byrnard (from South Africa) has diploma in Educare
and has been appointed as assistant teacher. She is also a motivational
speaker!
http://www.peoplemagazine.co.
watch her inspirational speech:http://www.youtube.com/
http://www.welcome.to/
http://members.tripod.com/~
http://www.
http://loveandlearning.com/
and has been appointed as assistant teacher. She is also a motivational
speaker!
http://www.peoplemagazine.co.
watch her inspirational speech:http://www.youtube.com/
http://www.welcome.to/
http://members.tripod.com/~
http://www.
http://loveandlearning.com/