tag:blogger.com,1999:blog-1989545445919628676.post1377662204071640663..comments2024-01-05T06:28:17.117-05:00Comments on Down Syndrome: A Day to Day Guide: Requests for Stories of Medical DiscriminationAndi Durkinhttp://www.blogger.com/profile/03651762223667606607noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-1989545445919628676.post-73566171812291766672011-11-19T12:11:51.446-05:002011-11-19T12:11:51.446-05:00Sadly, the truth is there are doctors out there th...Sadly, the truth is there are doctors out there that won’t treat a child with DS as they would typical children. I went to a specialist because my pediatrician was concerned that Mariah might have atlanto axial subluxation. The specialist confirmed she had it (didn't look or show me anything). When I asked more about it he said "she looks pretty good but she has down syndrome, so she had to get something." I cried over the long weekend wondering how I was going to keep my active child safe. I then went into what I call Mama Mode and called a nurse friend of mine. She agreed I needed a second opinion. I found another specialist who said she didn’t have it. I was shocked. He went over carefully every detail and proved to me she didn’t have it. It's a lesson that even the "experts" don't have all the answers.Anonymousnoreply@blogger.com